Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Hi Mark, You seem worried you are not going to get into the NIH study. You will, Dr. McDonnell all ready sent you the e-mail, right? No consent form like mine.You are in, they will call soon, but they are swamped with the scheduling right now.But they would not have sent the e-mail if you were not in. If ya don't hear from them this week, call them. I've got phone numbers.: Dr. McDonnell 1- @ Harbor City Hospital, where she is the most and the study is done. 1- @ other office Write me if you need her cell phone number privately,OK? ngsamuelson@... Best Wishes, I believe you are in, but only they can confirm it. Love, S. NIH > > That's the only thing that worries me, actually -- I mean, personally. > I hope they don't run out of spaces... > > > > > Unfortunately, they are also getting FAR more EDS participants than > > Marfans > > and Sticklers. They really need about 100 for each of the different > > disorders > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
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