Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Re: Re: chiropractor ...... and now im on 120 mgs of morphine a day. ****************************************************** TJ, do you find the morphine helps? No matter what the Drs try for Dylan, nothing gets him lower that a 7.5 in pain. The Dr has him on 200 MG a day morphine Slow release and 60 MG instant release for break through. I don't know what it is going to take to get him at a functional level. I so badly want to get this kid out of his room and back in the world. Cindylouwho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Not sure yet Cindy- Too soon to tell- this is only the 3rd day I've been on it, but sure helps more than that methadone- I'm at least getting some sleep. I'd say I'm pretty much at same pain level mostly continuous as Dylan there- with ups of about 13 when it strikes bad bad- I didn't even know they had 200 mg morphine- wow- I hope not to have to take that much- makes me scared that when I have an emergency and go in, that nothing will be able to help my pain ( grown immune to all )- I still haven't been out except court and drs- and it kills me to get out- but I am able to move around in my house better on these than the methadone.... gosh that was so many pills to swallow..... I felt like a human drug shoppe. Wondering why they put him on such high dose and no tests? Seems like a lot for a kid without tests and being watched over.... or is he? Sorry- guess with mom being sick too- my memory is failing.... Feels like the whole world is caving in lately- and most likely there will be no breathing until that hearing is over on June 4..... I hate liars- and when my 11 yr old tells me something his dad said to him that is a lie- which the dad knows is a lie gets my goat- example- when he tried to kill their dogs and my parents got the papers with kens signature- he told the boys i forged his name- what a jerk- what a jerk........ here he told the lady ( that they were dropp offs and he didnt have the proper attire to care for them ) - he had em for a yr with MY DOG PEN...... because I was too ill to care for them.... but it was temporary and night before we had made plans for my dad and the boys to come get them- dad was going to take care of the dogs- and that idiot let his own son show up to an EMPTY pen and no source of info where they were- so when the younger one called him crying- he said " I gave them to someone who will take care of them- a friend at work " - another lie........... for some reason Dakota kept bugging me to call the dog pound...... even though I didn't think they'd be there I did call to hush Dakota- Dakota was right- there they were- and papers signed by ken etc- that he tells the boys I forged his name on- grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr How can someone lie so much- and that is not the only time- he's lied from day 1 and gets away with it.... wish I wasn't so ill, It would be worth a permanent stay in jail to stand on his face with a high heel. A heel for a heel! Sorry- got a bit winded. He just irritates me so and Dakota just mentioned this and got my goat again..... lies all lies and now he married quick a nurse ------ a nurseeeeeeee who claims to know all about EDS........ then she asked Dakota " What illness does your mother ------- claim --------- she has.. ughhhhhh and will be working at my hospital??? Guess she went to find her little medical book to look up my illness- like thats gonna be up to date- Why can't they just bug off..... both of em? Hugssss TJ ...... and now im on 120 mgs of morphine a day. ****************************************************** TJ, do you find the morphine helps? No matter what the Drs try for Dylan, nothing gets him lower that a 7.5 in pain. The Dr has him on 200 MG a day morphine Slow release and 60 MG instant release for break through. I don't know what it is going to take to get him at a functional level. I so badly want to get this kid out of his room and back in the world. Cindylouwho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 I see I have mixed up talking about the two meds. Dylan is now on MS Contin which is morphine. The Methadone he was on many months ago. He went up to 60 MG a day, but made him too ill from side affects. It is the morphine that he takes 200 mg aday total then adds the break through as needed. Cindylouwho Re: Morphine/TJ Not sure yet Cindy- Too soon to tell- this is only the 3rd day I've been on it, but sure helps more than that methadone-.... Good, that's a start. Took him aout 3 weeks to really settle into it. I didn't even know they had 200 mg morphine-...... That's 200 total. One 100 in morning and night. hope not to have to take that much- makes me scared that when I have an emergency and go in, that nothing will be able to help my pain ( grown immune to all ).... That is diffenat a worry, but the every day is too. A 17 year old spending a year in his room because of pain is my priority. - I still haven't been out except court and drs- and it kills me to get out- but I am able to move around in my house better on these than the methadone.... gosh that was so many pills to swallow..... I felt like a human drug shoppe....... He hated the constant pill swallowing too. Wondering why they put him on such high dose and no tests? Seems like a lot for a kid without tests and being watched over.... or is he?....... Not sure what tests your talkin about. I keep a daily pain journal, and every month the pain Dr reads it and decides where to go from there. The pain Dr has never run bllod or urine tests. Feels like the whole world is caving in lately- and most likely there will be no breathing until that hearing is over on June 4..... I know things with your X and the boys have been hard and very trying, but I sure hope things run smooth soon. My be the lawyers will prove in court how the X really is and how he plays his games. Good luck in court. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Yes I did mention to my dr that most in the EDS group were on MS Contin and he did tell me its the same thing, just diff name- well then why not name them all the same...... Gotta be some difference? Somewhere? Somehow? The methadone- I was up to 120 mgs per day- sometimes snuck more because it wasn't doing a darn thing....... but it never really gave me side affects except when he totally dropped the morphine that time whewwwwwwww..... that was horrible....... That still is a lot of morphine - 200 wow....... the 120 is kicking my butt- but only by making me sleep more than 2 hrs at a time- last 2 nites I actually slept a full six hrs at a time..... shocked me and my cats..... LOL......... Keeping you and Dylan in my prayers as well....... gosh how horrible it must be to feel as he does at such a young age- Im stuck in the house too but- can't imagine being a teen and being stuck inside yek! Many Hugs- TJ I see I have mixed up talking about the two meds. Dylan is now on MS Contin which is morphine. The Methadone he was on many months ago. He went up to 60 MG a day, but made him too ill from side affects. It is the morphine that he takes 200 mg aday total then adds the break through as needed. Cindylouwho Re: Morphine/TJ Not sure yet Cindy- Too soon to tell- this is only the 3rd day I've been on it, but sure helps more than that methadone-.... Good, that's a start. Took him aout 3 weeks to really settle into it. I didn't even know they had 200 mg morphine-...... That's 200 total. One 100 in morning and night. hope not to have to take that much- makes me scared that when I have an emergency and go in, that nothing will be able to help my pain ( grown immune to all ).... That is diffenat a worry, but the every day is too. A 17 year old spending a year in his room because of pain is my priority. - I still haven't been out except court and drs- and it kills me to get out- but I am able to move around in my house better on these than the methadone.... gosh that was so many pills to swallow..... I felt like a human drug shoppe....... He hated the constant pill swallowing too. Wondering why they put him on such high dose and no tests? Seems like a lot for a kid without tests and being watched over.... or is he?....... Not sure what tests your talkin about. I keep a daily pain journal, and every month the pain Dr reads it and decides where to go from there. The pain Dr has never run bllod or urine tests. Feels like the whole world is caving in lately- and most likely there will be no breathing until that hearing is over on June 4..... I know things with your X and the boys have been hard and very trying, but I sure hope things run smooth soon. My be the lawyers will prove in court how the X really is and how he plays his games. Good luck in court. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Cindy - not sure if it work for your son - but have you ever thought of checking into a homeschool group? Depending on where you live there are either many or few. However, most homeschoolers I have been involved with are much more tolerant and understanding and flexible than those in school. Not to knock school - it's just that a lot of people who don't fit in school for some reason or other often homeschool. If you are interested and need help locating a group - let me know. Prayers are with you, > From: concreteangel > To: ceda > Sent: Sunday, May 30, 2004 1:02 PM > Subject: Re: Morphine/TJ > > > > The pain has really changed his life. I still have some hope that the Drs can continue to work on these meds so that he can return to school in Sept with his Elec. chair. He needs a social life and some teen age experiances. I'm afraid he is beginning to get some social mental problems now, being at home for so long. He doesn't want anyone to see him like this. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.