Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Re: Re: chiropractor ...... and now im on 120 mgs of morphine a day. ****************************************************** TJ, do you find the morphine helps? No matter what the Drs try for Dylan, nothing gets him lower that a 7.5 in pain. The Dr has him on 200 MG a day morphine Slow release and 60 MG instant release for break through. I don't know what it is going to take to get him at a functional level. I so badly want to get this kid out of his room and back in the world. Cindylouwho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 From: concreteangel To: ceda Sent: Sunday, May 30, 2004 10:36 AM Subject: Re: Morphine/TJ Not sure yet Cindy- Too soon to tell- this is only the 3rd day I've been on it, but sure helps more than that methadone-.... Good, that's a start. Took him aout 3 weeks to really settle into it. I didn't even know they had 200 mg morphine-...... That's 200 total. One 100 in morning and night. hope not to have to take that much- makes me scared that when I have an emergency and go in, that nothing will be able to help my pain ( grown immune to all ).... That is diffenat a worry, but the every day is too. A 17 year old spending a year in his room because of pain is my priority. - I still haven't been out except court and drs- and it kills me to get out- but I am able to move around in my house better on these than the methadone.... gosh that was so many pills to swallow..... I felt like a human drug shoppe....... He hated the constant pill swallowing too. Wondering why they put him on such high dose and no tests? Seems like a lot for a kid without tests and being watched over.... or is he?....... Not sure what tests your talkin about. I keep a daily pain journal, and every month the pain Dr reads it and decides where to go from there. The pain Dr has never run bllod or urine tests. Feels like the whole world is caving in lately- and most likely there will be no breathing until that hearing is over on June 4..... I know things with your X and the boys have been hard and very trying, but I sure hope things run smooth soon. My be the lawyers will prove in court how the X really is and how he plays his games. Good luck in court. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 I see I have mixed up talking about the two meds. Dylan is now on MS Contin which is morphine. The Methadone he was on many months ago. He went up to 60 MG a day, but made him too ill from side affects. It is the morphine that he takes 200 mg aday total then adds the break through as needed. Cindylouwho Re: Morphine/TJ Not sure yet Cindy- Too soon to tell- this is only the 3rd day I've been on it, but sure helps more than that methadone-.... Good, that's a start. Took him aout 3 weeks to really settle into it. I didn't even know they had 200 mg morphine-...... That's 200 total. One 100 in morning and night. hope not to have to take that much- makes me scared that when I have an emergency and go in, that nothing will be able to help my pain ( grown immune to all ).... That is diffenat a worry, but the every day is too. A 17 year old spending a year in his room because of pain is my priority. - I still haven't been out except court and drs- and it kills me to get out- but I am able to move around in my house better on these than the methadone.... gosh that was so many pills to swallow..... I felt like a human drug shoppe....... He hated the constant pill swallowing too. Wondering why they put him on such high dose and no tests? Seems like a lot for a kid without tests and being watched over.... or is he?....... Not sure what tests your talkin about. I keep a daily pain journal, and every month the pain Dr reads it and decides where to go from there. The pain Dr has never run bllod or urine tests. Feels like the whole world is caving in lately- and most likely there will be no breathing until that hearing is over on June 4..... I know things with your X and the boys have been hard and very trying, but I sure hope things run smooth soon. My be the lawyers will prove in court how the X really is and how he plays his games. Good luck in court. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Yes I did mention to my dr that most in the EDS group were on MS Contin and he did tell me its the same thing, just diff name- well then why not name them all the same...... Gotta be some difference? Somewhere? Somehow? The methadone- I was up to 120 mgs per day- sometimes snuck more because it wasn't doing a darn thing....... but it never really gave me side affects except when he totally dropped the morphine that time whewwwwwwww..... that was horrible....... That still is a lot of morphine - 200 wow....... the 120 is kicking my butt- but only by making me sleep more than 2 hrs at a time- last 2 nites I actually slept a full six hrs at a time..... shocked me and my cats..... LOL......... Keeping you and Dylan in my prayers as well....... gosh how horrible it must be to feel as he does at such a young age- Im stuck in the house too but- can't imagine being a teen and being stuck inside yek! Many Hugs- TJ I see I have mixed up talking about the two meds. Dylan is now on MS Contin which is morphine. The Methadone he was on many months ago. He went up to 60 MG a day, but made him too ill from side affects. It is the morphine that he takes 200 mg aday total then adds the break through as needed. Cindylouwho Re: Morphine/TJ Not sure yet Cindy- Too soon to tell- this is only the 3rd day I've been on it, but sure helps more than that methadone-.... Good, that's a start. Took him aout 3 weeks to really settle into it. I didn't even know they had 200 mg morphine-...... That's 200 total. One 100 in morning and night. hope not to have to take that much- makes me scared that when I have an emergency and go in, that nothing will be able to help my pain ( grown immune to all ).... That is diffenat a worry, but the every day is too. A 17 year old spending a year in his room because of pain is my priority. - I still haven't been out except court and drs- and it kills me to get out- but I am able to move around in my house better on these than the methadone.... gosh that was so many pills to swallow..... I felt like a human drug shoppe....... He hated the constant pill swallowing too. Wondering why they put him on such high dose and no tests? Seems like a lot for a kid without tests and being watched over.... or is he?....... Not sure what tests your talkin about. I keep a daily pain journal, and every month the pain Dr reads it and decides where to go from there. The pain Dr has never run bllod or urine tests. Feels like the whole world is caving in lately- and most likely there will be no breathing until that hearing is over on June 4..... I know things with your X and the boys have been hard and very trying, but I sure hope things run smooth soon. My be the lawyers will prove in court how the X really is and how he plays his games. Good luck in court. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 I homeschool one son too- which I think Cindy knows- but its not anything to do with a group- he's basically taking online classes and it does work better for him so far... but social life is a lot different- he's not at all ill- he just was removed from school by some stupid dream that got longer and longer - so the principle sent him home- he's getting better grades here anyhow- he went from E's to A's and B's- but beings he is not ill- he does still go out ( not often ) with friends- but mostly relatives his age- in other words he isn't doing group effort things but still gets out of the house- he took drivers training but has to wait so many days for license- but has his car etc..... so that is another way too Cindy but I don't think the way my son is being homeschooled would really give Dylan the social life he needs- just a graduation certificate....... Re: Morphine/TJ > > > > The pain has really changed his life. I still have some hope that the Drs can continue to work on these meds so that he can return to school in Sept with his Elec. chair. He needs a social life and some teen age experiances. I'm afraid he is beginning to get some social mental problems now, being at home for so long. He doesn't want anyone to see him like this. > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
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