Re:For Jill and Rhea - Cardioogist Visit in Hamilton

[Guest guest]

> Am disappointed that we did not receive further clarification re

cardiac

> status and issues my dtr. has.

That's a bummer, Bernie! Let's hope things improve.

Love Lana

[Guest guest]

I'm so sorry that the appt was dissapointing Bernie! I hope the next

appointment in 6 weeks goes better when he's got her history,

treatment, test results, and symptoms figured out. Thank-you for the

heads up on what to expect.

I think that the prognosis of what to expect really can't be given.

No one knows what the future will hold because everyone is so

different. I've read on lots of sites on google that many young

women outgrow POTS at around 25 yrs or so while some may not. I

don't know if that applies to EDS/HMSers though. Even comparing one

H-EDSer's past, present, and future to another and still its just

about impossible to predict how things will go. Some improve when

they grow older, others deteriorate, others stay the same.

Hang in there Bernie. There are a lot of Drs. who find are

overwhelmed by some patients multiple issues while other Drs. like

the different challenge. I hope this DR. works out for your dtr. in

the end! Was he able to offer any insight into her arythmias?

All the best with the geneticist appt June 1. May I ask whom you're

seeing?

Take care!

-Rhea

PS. All my results finally came in and the secretary got me an appt

in two days time today with the internist. I'm very curious to hear

about my tests results. I've never gotten an appt that quickly with

any Dr. before so that was a surprise. The geneticist I see will be

on the 26th and I requested to please have 1 appt with the internist

before than so the geneticist would have a bit of an idea as to what

is going on. I will let you know what I find out...

[Guest guest]

I'm so sorry that the appt was dissapointing Bernie! I hope the next

appointment in 6 weeks goes better when he's got her history,

treatment, test results, and symptoms figured out. Thank-you for the

heads up on what to expect.

I think that the prognosis of what to expect really can't be given.

No one knows what the future will hold because everyone is so

different. I've read on lots of sites on google that many young

women outgrow POTS at around 25 yrs or so while some may not. I

don't know if that applies to EDS/HMSers though. Even comparing one

H-EDSer's past, present, and future to another and still its just

about impossible to predict how things will go. Some improve when

they grow older, others deteriorate, others stay the same.

Hang in there Bernie. There are a lot of Drs. who find are

overwhelmed by some patients multiple issues while other Drs. like

the different challenge. I hope this DR. works out for your dtr. in

the end! Was he able to offer any insight into her arythmias?

All the best with the geneticist appt June 1. May I ask whom you're

seeing?

Take care!

-Rhea

PS. All my results finally came in and the secretary got me an appt

in two days time today with the internist. I'm very curious to hear

about my tests results. I've never gotten an appt that quickly with

any Dr. before so that was a surprise. The geneticist I see will be

on the 26th and I requested to please have 1 appt with the internist

before than so the geneticist would have a bit of an idea as to what

is going on. I will let you know what I find out...