About SSI and or SSDI and ehlers danlos syndrome

May 31, 2004

Not too sure about that- I am granted it and waiting yet to hear from them after

receiving a fully favorable notification- but it did state on there that ehlers

danlos syndrome- and or- vascular ehlers danlos syndrome were not enough by

themselves to warrant SSDI or SSI........ its the what you are unable to do at

the time of application and hearing- if it disabled you from doing something for

over a year. In Michigan anyhow- I was shocked when I read that ehlers danlos

was NOT a good enough reason by itself to warrant disablement for SSI or

SSDI....... what are they thinking?

Congrats- hugs TJ

Dear Family and Friends,

I just wanted to thank everyone for all the prayers and support. I

was finally granted Disability on Friday 1-16-04 from the social

security. I am now officially disabled. I made my case and they said I

was disabled without even an appeal. Maybe now they are considering

Ehlers-Danlos Syndrome a medical condition, which needs to be seriously

looked at for disability. Anyway, thank you all for your support and

prayers. Take care and God Bless.

To learn more about EDS, visit our website: http://www.ceda.ca

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