Late in asking -- buttttttttt have till June 4th

[Guest guest]

Now there is another upcoming hearing stating that we have to have another

go again and because I am on state aid for time being till hopefully SSI

comes thru- my lawyer suggested I get someone from support group to come in

with me at the hearing to tell the symptoms and the dangers of VEDS.......

Now anyone here willing to come to court with me? Mercy- how do I do that?

She said ,,,, not your doctor but someone hopefully from a support

group......

I wrote the above a while back and just found it as I was putting stuff together

for the upcoming hearing- some said they would be glad

to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were affecting

them so that I could take them along to court with me- I would really

appreciate it if any of you are able to still do that- as that date is too fast

approaching and I want to be able to be prepared if necessary .... Especially

now that my x married a nurse who claims to know allllllllllll about it.......

uhhuh- yet she had to ask my son what it was a few times and his dad didn't even

know or remember- and he was GIVEN PAPERS at the last hearing in case of Dakota

inheriting it ..... grrrrrrrrrrrrrr @ him.

Anyhow- don't mean to get into the anger session of that twit again oooops that

just slipped on out lol. But if any of you could do this, I'd really appreciate

it, just send me a note - telling the symptoms and dangers of VEDS and/or EDS

and how it affects your lives.

Thanks much in Advance!

Hugsssssssss TJ