9 yr old with eds-new

[Guest guest]

Hi all! Hope everyone is good today! I am a new member here. My

daughter has eds and I have no clue on where to start with any of

this. I am 29 and have fibromyalgia/cfs, bursitis,and arthritis. I

have 2 children-9 and 7, 4 dogs and a husband. I know the pain my 9

yr old is going through, but I can't seem to find proper info on this

disorder for her. She has asthma, arthritis, and migrain headaches.

She is on Fioricet for her migraines and ibuprophen for other pains,

but the ibuprophen doesn't seem to be helping her. The doctors around

here(Illinois) don't want to put her on any other medications. Is

there anything else I can do for her pain to help her? She has type 3

if that helps. If you have any questions for me, don't be afraid to

ask. I am very open with anything, just email me. We could use all

the help in the world right now. Thank you all so much! Take care!

Hugs!!!!

Becca and Family

[Guest guest]

Hello,

Welcome. I'm new as well. My oldsest, youngest and I have EDS. We don't know

what type. Your lucky that you know what type you have. It makes things so much

harder not knowing. I am falling apart and docs can't figure it out....UGH. I

don't know what more you can do for your daughters pain. I wish she didn't have

to go threw all that. My oldest takes Propranolol for his migrains. So far it

works. I hope you find something out soon. I'll keep her in my prayers.

HUGGLES,

Grace

9 yr old with eds-new

Hi all! Hope everyone is good today! I am a new member here. My

daughter has eds and I have no clue on where to start with any of

this. I am 29 and have fibromyalgia/cfs, bursitis,and arthritis. I

have 2 children-9 and 7, 4 dogs and a husband. I know the pain my 9

yr old is going through, but I can't seem to find proper info on this

disorder for her. She has asthma, arthritis, and migrain headaches.

She is on Fioricet for her migraines and ibuprophen for other pains,

but the ibuprophen doesn't seem to be helping her. The doctors around

here(Illinois) don't want to put her on any other medications. Is

there anything else I can do for her pain to help her? She has type 3

if that helps. If you have any questions for me, don't be afraid to

ask. I am very open with anything, just email me. We could use all

the help in the world right now. Thank you all so much! Take care!

Hugs!!!!

Becca and Family

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca