NIH/All members of CEDA

[Guest guest]

hEY ALL, I'm hVING TROUBLE with this PC, it's nothing like

mine,Anyway, DR F. and Dr Naz asked me to put this up to our list.

Apparently they didn't know this study was not on the NIH list for

all to find. They guess that is because it is at the Bayview Hospital

instead, something like that. Anyway, they asked me to put this on

the list for all. They want people. All types EDS even if they don't

have a definate DX from a Genetics DR. They will interview you on the

phone if you don't have a DX. (Dang PC) When I get home late tomorrow

PM I will give all the info. They want you to caLL. i AM ALREADY

AMAZED ABOUT THINGS WE HAVE FOUND OUT HERE ABOUT dYLAN. To much to

even try to explain this late at night. We have more answers in 24

hours than we have had in over a year. My heAD IS SPINNING. ( dang

PC!) I want my own bed and computer. Whaaa. No really, this is just

great. My gut told me this is where we needed to be. Just bring your

own pillows!!!! On Thursday look for the info if you can travel to

land. Today, Jen in Ariz got in, Lana got in, S got in, and

Dr F looked at Meagans (Canada) Papers and looked at me and said I'll

see what I can do. But Meagan, the papers I had, didn't have your

home info on it. Just Dr Grubbs. I'll have you contact Dr f when I

get home. She is very interested in helping however she can.

I'll write later on what we have found ABOUT dYLAN. all is so much

more involved than what we knew. My head is spinning. Seems things

are much worse than we thought. Tomorrows test should help put things

together a BIT CLEARER. tHE dOCS ARE WAiTING FOR TESTS DONE NEAR

HOME, from last year, TO ARRIVE HERE IN THE am TO DO COMPArisims to

make a determination on what is happening to him. ( I do not like

this key board, or it does not like me). I'll write more tomorrow.

Night aLL. tHIS PLAce is amazing.

Cindylouwho