Re: CEDA Brothers and sisters.....

June 19, 2004

Just letting you know that your instant message came in on the

laptop and I have both read and responded to it. I wasn't logged on

to IM on this machine so I didn't see it here when you sent it. In

brief, I asked you to send me an off-list email with contact info

(phone/address/email address) so we can plan schedules on stopping

by to see you. You listed at least five conditions between the two

of you that are " areas of interest " to me.

June 19, 2004

Dear DUV 002,

My name is S. I think some people may have our names confused?

S.

Re: CEDA Brothers and sisters.....

> I wish I was here sooner...maybe next time around. I think it's a

> great idea. I have been unable to post much even though I have tons

> of questions. I fall alseep too easily when on the computer and

> can't stay alert for a movie anymore. My son broke his arm and can't

> do his physical therapy. I'm hoping his doctor will write an order

> for him to get a personal care attendant to do all that needs to be

> done with him. It's been a long struggle trying to find out all that

> is going on with him, still not finished yet. The research articles

> posted have armed me with information I can take to his doctors.

> ~

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

June 19, 2004