Finally found the PCP of my dreams!

August 9, 2004

HI all,

Today I Went to a new family practitioner/internal medicine doctor. He was

absoluteoly awesome. HE ordered all these tests that he said should be done

every year on me such as seeing an opthamologist to check for detatched retinas.

He himelf had one with no pain or symptoms.He also ordered me an ultrascan of

the abdoman.aorta area and best of all he thinks I need a special triple phase

CT scan of my ankle. He says that is the only test that will show whether the

osteomyletis is still active in the bone. Does anyone know the difference

between a triple phase CT scan and a regular one? This dr also gave me my

monthly

meds and will help me out with the pain meds till i get back into a pain

clinic. He also wants to follow my belly problems closely. Also intends to keep

an

eye on my MVP. It's funny because I got this doctor because he was the only

one who took medicaid in my area. Right now I am in an area that is quite well

off and most Dr's wouldn't accept the medicaid or medicare. In fact my

brother's doctor only takes cash now and doesn't even take any insurance. Anyway

,

it's funny how I lucked out with this doctor. I went in and this was my first

visit and he spent over 45 minutes talking to me. If he had a question or

concern

about EDS he asked me and even went out to get textbooks a few times. He

admitted I was the first EDSer ever including med school but he was willing to

learn and help me whatever way he could. When I got to the office I didn't have

to wait as the appointment time was just for me and there was no running from

patient to patient.What a breath of fresh air! Just when I was begining to give

up hope in the medical profession. if anyone lives in the Bucks County, PA

area and needs a great PCP or internist I'd be more then happy to pass this

doctors name on.

Ya know maybe we should invent an anti-shock-doc for the few rare moments

like this when a doctor does everything they can and more for a patient? There

should be an award for this kind or wonderful caring doctor that isn't as

abundant as in years past. Just had to share the good as well.

Goodnight!

Sue k

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