Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Lenore, You'll be missed here, but I am so pleased for you that you have the opportunity to obtain your doctorate! Best of luck and please send along a note to keep us posted! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Take care darl and good luck with your Phd, I'll be thinking of you and praying for you! Love and hugs...Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 > I know of one professor in my > field who was able to complete his PhD in 2 years (almost unheard of > time frame!), primarily, he said, because because he turned off his > email completely. Lenore, We will miss you, but I can imagine that the PhD work is unbelievable! Good luck to you and I hope to see you at a WA EDS meeting sometime when you have time to take a break. -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 I wish you the very best, Lenore! What achievements you are making - I'm very impressed indeed. I hope you can join us once again after you've received your PhD and things slow down for you. Love Lana > > > I forgot to add to my posts regarding this --that congential or > > aquired cervical stenosis CAN cause much the same set of > > symtpoms as chiari can -- both forms of stenosis can narrow the > > csf passageways and cause CSF to back up with higher presure > > in the head too . > > > > It can be difficult to find a neurosurgeon who KNOWS those > > internal diameter " normal " measurements of each veratabra > > and has true expertise in sorting out congenital issues for > > example --again the chiari neurosurgeon guru's often seem the > > best choice to diagnosis this . > > > > Chiari itself that is congenital is OFTEN associated with a > > degree of congential spinal stenosis in the cervical vertabrae too > > -- there IS need to open the top vertabrae in some instances -but > > doing so below the level of c1 can pose integreity issues of > > stablity with cervical shifting occuring later -- with an EDS > > diagnosis I'd approach this with TRUE caution given the > > ligament /tendon issues with EDS and the dura integrity issues > > ect . -- AGAIN if this were suspected I " D head for the NY chiari > > instutue where the neurosurgeons know this conditon well too > > -and know /have some experience with EDS and issues of > > neurosurgery /dura grafting ect --it's NOT something to jump into > > surgery with lesser experienced neurosurgeons in MY opinion . > > > > Aquired stenosis can occur with trama - cervical disc's shifting > > ect and again that dura ingretiy would pose a special chaallnege > > in those with EDS . > > > > ONE diagnostic clue that the TCI neurosurgeons discovered too > > - is on 3d Ct scans in those with EDS the ligament's /tendons > > are often VERY enlarged taking up MORE room that normal -- > > they develope in this larger way trying to provide /compensate for > > the weakness in the tissue and provide stablity to the spinal > > collum ect . -- they are spoting this now -and able to SKIP part of > > the EDS diagnostic criteria ( still checking finger joints ect though > > ) and KNOW at that first glance seeing this enlargement that the > > person IS affected by EDS . > > > > Hmmm -- I'm SURE I'm forgetting some other bits Dr Bolognese > > explained in his discussion of the diagnosis for chiari /EDS > > jointly --I'll keep adding bits as the come back to my shaky > > memory's - LOL . > > > > > > > > > > > > > > > > To learn more about EDS, visit our website:http://www.ehlersdanlos.ca > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 I wish you the very best, Lenore! What achievements you are making - I'm very impressed indeed. I hope you can join us once again after you've received your PhD and things slow down for you. Love Lana > > > I forgot to add to my posts regarding this --that congential or > > aquired cervical stenosis CAN cause much the same set of > > symtpoms as chiari can -- both forms of stenosis can narrow the > > csf passageways and cause CSF to back up with higher presure > > in the head too . > > > > It can be difficult to find a neurosurgeon who KNOWS those > > internal diameter " normal " measurements of each veratabra > > and has true expertise in sorting out congenital issues for > > example --again the chiari neurosurgeon guru's often seem the > > best choice to diagnosis this . > > > > Chiari itself that is congenital is OFTEN associated with a > > degree of congential spinal stenosis in the cervical vertabrae too > > -- there IS need to open the top vertabrae in some instances -but > > doing so below the level of c1 can pose integreity issues of > > stablity with cervical shifting occuring later -- with an EDS > > diagnosis I'd approach this with TRUE caution given the > > ligament /tendon issues with EDS and the dura integrity issues > > ect . -- AGAIN if this were suspected I " D head for the NY chiari > > instutue where the neurosurgeons know this conditon well too > > -and know /have some experience with EDS and issues of > > neurosurgery /dura grafting ect --it's NOT something to jump into > > surgery with lesser experienced neurosurgeons in MY opinion . > > > > Aquired stenosis can occur with trama - cervical disc's shifting > > ect and again that dura ingretiy would pose a special chaallnege > > in those with EDS . > > > > ONE diagnostic clue that the TCI neurosurgeons discovered too > > - is on 3d Ct scans in those with EDS the ligament's /tendons > > are often VERY enlarged taking up MORE room that normal -- > > they develope in this larger way trying to provide /compensate for > > the weakness in the tissue and provide stablity to the spinal > > collum ect . -- they are spoting this now -and able to SKIP part of > > the EDS diagnostic criteria ( still checking finger joints ect though > > ) and KNOW at that first glance seeing this enlargement that the > > person IS affected by EDS . > > > > Hmmm -- I'm SURE I'm forgetting some other bits Dr Bolognese > > explained in his discussion of the diagnosis for chiari /EDS > > jointly --I'll keep adding bits as the come back to my shaky > > memory's - LOL . > > > > > > > > > > > > > > > > To learn more about EDS, visit our website:http://www.ehlersdanlos.ca > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 I wish you the very best, Lenore! What achievements you are making - I'm very impressed indeed. I hope you can join us once again after you've received your PhD and things slow down for you. Love Lana > > > I forgot to add to my posts regarding this --that congential or > > aquired cervical stenosis CAN cause much the same set of > > symtpoms as chiari can -- both forms of stenosis can narrow the > > csf passageways and cause CSF to back up with higher presure > > in the head too . > > > > It can be difficult to find a neurosurgeon who KNOWS those > > internal diameter " normal " measurements of each veratabra > > and has true expertise in sorting out congenital issues for > > example --again the chiari neurosurgeon guru's often seem the > > best choice to diagnosis this . > > > > Chiari itself that is congenital is OFTEN associated with a > > degree of congential spinal stenosis in the cervical vertabrae too > > -- there IS need to open the top vertabrae in some instances -but > > doing so below the level of c1 can pose integreity issues of > > stablity with cervical shifting occuring later -- with an EDS > > diagnosis I'd approach this with TRUE caution given the > > ligament /tendon issues with EDS and the dura integrity issues > > ect . -- AGAIN if this were suspected I " D head for the NY chiari > > instutue where the neurosurgeons know this conditon well too > > -and know /have some experience with EDS and issues of > > neurosurgery /dura grafting ect --it's NOT something to jump into > > surgery with lesser experienced neurosurgeons in MY opinion . > > > > Aquired stenosis can occur with trama - cervical disc's shifting > > ect and again that dura ingretiy would pose a special chaallnege > > in those with EDS . > > > > ONE diagnostic clue that the TCI neurosurgeons discovered too > > - is on 3d Ct scans in those with EDS the ligament's /tendons > > are often VERY enlarged taking up MORE room that normal -- > > they develope in this larger way trying to provide /compensate for > > the weakness in the tissue and provide stablity to the spinal > > collum ect . -- they are spoting this now -and able to SKIP part of > > the EDS diagnostic criteria ( still checking finger joints ect though > > ) and KNOW at that first glance seeing this enlargement that the > > person IS affected by EDS . > > > > Hmmm -- I'm SURE I'm forgetting some other bits Dr Bolognese > > explained in his discussion of the diagnosis for chiari /EDS > > jointly --I'll keep adding bits as the come back to my shaky > > memory's - LOL . > > > > > > > > > > > > > > > > To learn more about EDS, visit our website:http://www.ehlersdanlos.ca > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Good luck to you. Betty I have to sign off I am sorry to say that I decided to sign off the CEDA list for the time being. I have learned so much from all of you. Strength, perseverance, asking for help--these come through so clearly on this list. But having learned all that, I realize that only way I am going to complete my PhD is by drastically reducing distractions. I know of one professor in my field who was able to complete his PhD in 2 years (almost unheard of time frame!), primarily, he said, because because he turned off his email completely. So cheers, all, and I will continue to pray for you. Sincerely, Lenore in Seattle > I forgot to add to my posts regarding this --that congential or > aquired cervical stenosis CAN cause much the same set of > symtpoms as chiari can -- both forms of stenosis can narrow the > csf passageways and cause CSF to back up with higher presure > in the head too . > > It can be difficult to find a neurosurgeon who KNOWS those > internal diameter " normal " measurements of each veratabra > and has true expertise in sorting out congenital issues for > example --again the chiari neurosurgeon guru's often seem the > best choice to diagnosis this . > > Chiari itself that is congenital is OFTEN associated with a > degree of congential spinal stenosis in the cervical vertabrae too > -- there IS need to open the top vertabrae in some instances -but > doing so below the level of c1 can pose integreity issues of > stablity with cervical shifting occuring later -- with an EDS > diagnosis I'd approach this with TRUE caution given the > ligament /tendon issues with EDS and the dura integrity issues > ect . -- AGAIN if this were suspected I " D head for the NY chiari > instutue where the neurosurgeons know this conditon well too > -and know /have some experience with EDS and issues of > neurosurgery /dura grafting ect --it's NOT something to jump into > surgery with lesser experienced neurosurgeons in MY opinion . > > Aquired stenosis can occur with trama - cervical disc's shifting > ect and again that dura ingretiy would pose a special chaallnege > in those with EDS . > > ONE diagnostic clue that the TCI neurosurgeons discovered too > - is on 3d Ct scans in those with EDS the ligament's /tendons > are often VERY enlarged taking up MORE room that normal -- > they develope in this larger way trying to provide /compensate for > the weakness in the tissue and provide stablity to the spinal > collum ect . -- they are spoting this now -and able to SKIP part of > the EDS diagnostic criteria ( still checking finger joints ect though > ) and KNOW at that first glance seeing this enlargement that the > person IS affected by EDS . > > Hmmm -- I'm SURE I'm forgetting some other bits Dr Bolognese > explained in his discussion of the diagnosis for chiari /EDS > jointly --I'll keep adding bits as the come back to my shaky > memory's - LOL . > > > > > > > > To learn more about EDS, visit our website:http://www.ehlersdanlos.ca > > > > > Quote Link to comment Share on other sites More sharing options...
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