RE: How do you cope? (a bit of a read) Onale !

[Guest guest]

Onale: you are one gutsy lady!! You make me smile and I like your style!

Take care, Bernie

Re: How do you cope? (a bit of a read)

Hi Grace.

I'm Onale. I don't contribute much to the list, mostly just because I'm

always so busy and topics are old by the time I read about them. I'm 31,

mom of 2 boys. I was diagnosed with EDS when I was about 15 I think. I

went from being a very athletic, active person to someone who had EDS.

I have very much spent my life with this " black cloud " over my head that

has seemed to follow me everywhere. Since I was a little girl, I just

seemed to have really bad luck. I had many accidents, broke bones, etc.

And above that, it seems that everything that has ever seemed like it

was going good in my life, took a hard right turn and failed.

I have tried very hard to keep positive and for the most part I do...

but then something horrible will happen to beat me down again. Most of

it has nothing to do with EDS but when it seems like nothing in your

life can work out, it gets really hard to cope with the pain and other

realities of this disorder.

I decided a long time ago that I was given this for a reason. My very

religious aunt has always told me that I can't " own it " , I have to

'refuse' the EDS and not let it into my body. Which would also mean not

wearing my braces or doing anything to adjust to it. Don't get me

wrong... I absolutely believe that there is a lot more power in people

than most of us know (or can accept) and that healing comes in many

different ways, but I just don't think that commanding my joints to come

back together and it just 'happening' is quite the point.

I have always really felt like I have a reason and a purpose, and a long

time ago I decided that my purpose was to take the phrase " you can't do

that " as a challenge.

When my mom broke down in tears and told me to realize that I would

never ride a horse again... I couldn't accept that. Not only did I ride

a horse again, I packed up a bag, moved to Alberta, got a job working in

Bull sales and then on a big cattle ranch. I did more physical labor in

a few months than a lot of people do in years!

Doctors told me that my back was really bad and my hips were so loose

that I couldn't carry a baby past 5 months and I'd be in a wheelchair. I

have two kids, 2nd pregnancy was really hard but I never spent one

minute in a wheelchair.

There have been countless things that someone said that I couldn't do

and I did. That's my purpose... to show people that only you know what

you're capable of and that there are hurdles to get over but you just

have to get over them, adjust, and keep going. Sometimes we have to do

things differently, but we still do them. And yes, sometimes there comes

something that I just can't do anymore, then I have to get creative and

find a different crazy way to do it.

I'm sorry that I'm really babbling and this has become a very long read,

it's just so hard to explain how important coping is. I cope so that I

can show others, especially my kids, that no matter what life throws at

me, I'll meet it head on. It's my job!

[Guest guest]

Onale --

I second that!!!!! I like your style, too!!

Patti

Re: How do you cope? (a bit of a read)

Hi Grace.

I'm Onale. I don't contribute much to the list, mostly just because I'm

always so busy and topics are old by the time I read about them. I'm 31,

mom of 2 boys. I was diagnosed with EDS when I was about 15 I think. I

went from being a very athletic, active person to someone who had EDS.

I have very much spent my life with this " black cloud " over my head that

has seemed to follow me everywhere. Since I was a little girl, I just

seemed to have really bad luck. I had many accidents, broke bones, etc.

And above that, it seems that everything that has ever seemed like it

was going good in my life, took a hard right turn and failed.

I have tried very hard to keep positive and for the most part I do...

but then something horrible will happen to beat me down again. Most of

it has nothing to do with EDS but when it seems like nothing in your

life can work out, it gets really hard to cope with the pain and other

realities of this disorder.

I decided a long time ago that I was given this for a reason. My very

religious aunt has always told me that I can't " own it " , I have to

'refuse' the EDS and not let it into my body. Which would also mean not

wearing my braces or doing anything to adjust to it. Don't get me

wrong... I absolutely believe that there is a lot more power in people

than most of us know (or can accept) and that healing comes in many

different ways, but I just don't think that commanding my joints to come

back together and it just 'happening' is quite the point.

I have always really felt like I have a reason and a purpose, and a long

time ago I decided that my purpose was to take the phrase " you can't do

that " as a challenge.

When my mom broke down in tears and told me to realize that I would

never ride a horse again... I couldn't accept that. Not only did I ride

a horse again, I packed up a bag, moved to Alberta, got a job working in

Bull sales and then on a big cattle ranch. I did more physical labor in

a few months than a lot of people do in years!

Doctors told me that my back was really bad and my hips were so loose

that I couldn't carry a baby past 5 months and I'd be in a wheelchair. I

have two kids, 2nd pregnancy was really hard but I never spent one

minute in a wheelchair.

There have been countless things that someone said that I couldn't do

and I did. That's my purpose... to show people that only you know what

you're capable of and that there are hurdles to get over but you just

have to get over them, adjust, and keep going. Sometimes we have to do

things differently, but we still do them. And yes, sometimes there comes

something that I just can't do anymore, then I have to get creative and

find a different crazy way to do it.

I'm sorry that I'm really babbling and this has become a very long read,

it's just so hard to explain how important coping is. I cope so that I

can show others, especially my kids, that no matter what life throws at

me, I'll meet it head on. It's my job!

[Guest guest]

Onale --

I second that!!!!! I like your style, too!!

Patti

Re: How do you cope? (a bit of a read)

Hi Grace.

I'm Onale. I don't contribute much to the list, mostly just because I'm

always so busy and topics are old by the time I read about them. I'm 31,

mom of 2 boys. I was diagnosed with EDS when I was about 15 I think. I

went from being a very athletic, active person to someone who had EDS.

I have very much spent my life with this " black cloud " over my head that

has seemed to follow me everywhere. Since I was a little girl, I just

seemed to have really bad luck. I had many accidents, broke bones, etc.

And above that, it seems that everything that has ever seemed like it

was going good in my life, took a hard right turn and failed.

I have tried very hard to keep positive and for the most part I do...

but then something horrible will happen to beat me down again. Most of

it has nothing to do with EDS but when it seems like nothing in your

life can work out, it gets really hard to cope with the pain and other

realities of this disorder.

I decided a long time ago that I was given this for a reason. My very

religious aunt has always told me that I can't " own it " , I have to

'refuse' the EDS and not let it into my body. Which would also mean not

wearing my braces or doing anything to adjust to it. Don't get me

wrong... I absolutely believe that there is a lot more power in people

than most of us know (or can accept) and that healing comes in many

different ways, but I just don't think that commanding my joints to come

back together and it just 'happening' is quite the point.

I have always really felt like I have a reason and a purpose, and a long

time ago I decided that my purpose was to take the phrase " you can't do

that " as a challenge.

When my mom broke down in tears and told me to realize that I would

never ride a horse again... I couldn't accept that. Not only did I ride

a horse again, I packed up a bag, moved to Alberta, got a job working in

Bull sales and then on a big cattle ranch. I did more physical labor in

a few months than a lot of people do in years!

Doctors told me that my back was really bad and my hips were so loose

that I couldn't carry a baby past 5 months and I'd be in a wheelchair. I

have two kids, 2nd pregnancy was really hard but I never spent one

minute in a wheelchair.

There have been countless things that someone said that I couldn't do

and I did. That's my purpose... to show people that only you know what

you're capable of and that there are hurdles to get over but you just

have to get over them, adjust, and keep going. Sometimes we have to do

things differently, but we still do them. And yes, sometimes there comes

something that I just can't do anymore, then I have to get creative and

find a different crazy way to do it.

I'm sorry that I'm really babbling and this has become a very long read,

it's just so hard to explain how important coping is. I cope so that I

can show others, especially my kids, that no matter what life throws at

me, I'll meet it head on. It's my job!

[Guest guest]

Onale --

I second that!!!!! I like your style, too!!

Patti

Re: How do you cope? (a bit of a read)

Hi Grace.

I'm Onale. I don't contribute much to the list, mostly just because I'm

always so busy and topics are old by the time I read about them. I'm 31,

mom of 2 boys. I was diagnosed with EDS when I was about 15 I think. I

went from being a very athletic, active person to someone who had EDS.

I have very much spent my life with this " black cloud " over my head that

has seemed to follow me everywhere. Since I was a little girl, I just

seemed to have really bad luck. I had many accidents, broke bones, etc.

And above that, it seems that everything that has ever seemed like it

was going good in my life, took a hard right turn and failed.

I have tried very hard to keep positive and for the most part I do...

but then something horrible will happen to beat me down again. Most of

it has nothing to do with EDS but when it seems like nothing in your

life can work out, it gets really hard to cope with the pain and other

realities of this disorder.

I decided a long time ago that I was given this for a reason. My very

religious aunt has always told me that I can't " own it " , I have to

'refuse' the EDS and not let it into my body. Which would also mean not

wearing my braces or doing anything to adjust to it. Don't get me

wrong... I absolutely believe that there is a lot more power in people

than most of us know (or can accept) and that healing comes in many

different ways, but I just don't think that commanding my joints to come

back together and it just 'happening' is quite the point.

I have always really felt like I have a reason and a purpose, and a long

time ago I decided that my purpose was to take the phrase " you can't do

that " as a challenge.

When my mom broke down in tears and told me to realize that I would

never ride a horse again... I couldn't accept that. Not only did I ride

a horse again, I packed up a bag, moved to Alberta, got a job working in

Bull sales and then on a big cattle ranch. I did more physical labor in

a few months than a lot of people do in years!

Doctors told me that my back was really bad and my hips were so loose

that I couldn't carry a baby past 5 months and I'd be in a wheelchair. I

have two kids, 2nd pregnancy was really hard but I never spent one

minute in a wheelchair.

There have been countless things that someone said that I couldn't do

and I did. That's my purpose... to show people that only you know what

you're capable of and that there are hurdles to get over but you just

have to get over them, adjust, and keep going. Sometimes we have to do

things differently, but we still do them. And yes, sometimes there comes

something that I just can't do anymore, then I have to get creative and

find a different crazy way to do it.

I'm sorry that I'm really babbling and this has become a very long read,

it's just so hard to explain how important coping is. I cope so that I

can show others, especially my kids, that no matter what life throws at

me, I'll meet it head on. It's my job!