about severe blood pressure drops and diagnosis

[Guest guest]

Thank you , , and Caro for your contributions about

POTS, blood pressure, etc.

I want to send my sister a summary of what I've been learning, and

thought I'd post it here first to see if anyone could add anything

more.

It is possible for someone with a very strong physique to develop EDS

symptoms as they grow older because, for example, as the joints and

tissues start to wear out the genetic disposition to stretch and

overextend will then kick in. It is also not uncommon among people with

EDS to have low blood pressure (in fact most people on the CEDA list

have low BP it seems, myself included), usually with blood pooling in

the legs, needing to lie down in order allow the blood pressure to rise

and resupply energy.

Some people with EDs also experience POTS and dysautonomia, though

whether these go with specific types is not clear (at least not to me).

Symptoms of POTS can include seizures, blackouts, shaking and

incontinence, though I gather noone with POTS shares the severe

seizure-like symptoms of my sister. However, there is very little

research out there on the relationship between POTS and EDS; the people

on the CEDA list who have it have had great difficulty getting it

recognized as a problem and then having it diagnosed and connections

made with EDS.

POTS Place: A Guide to Postural Orthostatic Tachycardia Syndrome  - ...

dysautonomia, with a focus on the following: Postural Orthostatic

Tachycardia

Syndrome Often more simply referred to as postural tachycardia

syndrome, or POTS,

....

http://www.potsplace.com/

Thanks again for your help.

Lenore in Seattle