Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 I\'m asking everyone to write to www.arthritis.org and ask them to update their EDS information. 3 months ago all they had was an article on EDS that had misinformation and was terribly out of date. I met with the director of publications and gave him a book of information that I asked him to read and use to update his website and information that is mailed out. This week they had the following: Since we have not updated our information about EDS for some time, we >suggest you contact the Ehlers-Danlos National Foundation for the latest on >this disease: >Ehlers-Danlos National Foundation >6399 Wilshire Blvd., Suite 510 >Los Angeles, CA 90048 > > http://www.ednf.org/ Now lets get them to update the info!!! Judy The Ehlers Danlos National Foundation http://www.ednf.org'>www.ednf.org Quote Link to comment Share on other sites More sharing options...
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