Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Clear DayI'm sorry your daughter is having these problems. The symptoms I had prior to my Fundo were Refluxing constantly so I was having to hold my breath as much as I could after eating. Even tying my shoe laces was a struggle. I even refluxed a mouthful of water. I also experienced episodes of abdominal pain and vomiting. I've not had the symptoms of needing to eat very regularly as your daughter has. I took 20mg Cisapride (Prepulsid) twice daily and still need to take it now and I also take Esomeprazole (Nexium) 40mg daily. I don't need to have an Endoscope every 6 monthly. The only problem I've had since the surgery is that I am unable to eat crusty bread, Pastries etc as it feel like a lead-weight and bloated feeling. Hope this helps and I'm here if you want to ask me anything else. Take care Vee (UK) Message: 8 Date: Mon, 24 May 2004 22:29:20 -0700 Subject: Re: Re Fundoplication Thank you so much for your reply, vee My daughter (20 yr), HEDS, is who I am inquiring for. She is going through this period where she has to eat every other hour or so. Wakes in the evening and is hungry - ravished. The doc said it might be because the cells were changing from 'esophigus' to 'stomach' cells; which I *assume* could be Barrett's Esophiigus. I was not in the room when she was told and did not hear about the discussion until last week. She is about 5'6 " and weighs about 105 lb. She has been on liquid zantec for about six years; and reacts to prilosec. Does this sound similar to what you were experiencing? Is this why you had a fundo? What sort of complications did you have? Do you have to have an endiscopic procedure every six months? Thank you in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Vee; Thank you for your reply. It does sound somewhat like my daughter. She is taking liquid zantec because of the reverse motility in her throat. Now that you mention it; I see her hold her breath after eating - I didn¹t think she was holding down food. The pain is extreme. Everyday seems to be such a struggle for her; hunting down food and then digesting it. It seems that is all there is to her day some times The doc thinks it might be Barretts Esophigus; but I keep thinking Diabetes on top of the reverse motility, chronic gastritis and dumping syndrome. Regardless he is refusing to treat her as she is 20 years and no longer can see a child gi specialist. We go to a teaching hospital and I think it quite a statement when the child gi specialist advises us to not go on to the adult gi services; but to go into the community and pick a gi specialist from there. I got her into her pcp to get a diabetes test and then will find the gi specialist if that test does not show she has diabetes. The doc had told her the surgery if she continued to be hungry and losing weight. I wasn¹t in the room when he said that; so I feel a bit out of the loop of understanding what is going on. Thank you again for your reply. On 5/25/04 11:28 PM, " ceda " ceda > wrote: > > Subject: Re Fundoplication > > Clear DayI'm sorry your daughter is having these problems. > > The symptoms I had prior to my Fundo were Refluxing constantly so I was having > to hold my breath as much as I could after eating. Even tying my shoe laces > was a struggle. I even refluxed a mouthful of water. I also experienced > episodes of abdominal pain and vomiting. I've not had the symptoms of > needing to eat very regularly as your daughter has. > > I took 20mg Cisapride (Prepulsid) twice daily and still need to take it now > and I also take Esomeprazole (Nexium) 40mg daily. > > I don't need to have an Endoscope every 6 monthly. > > The only problem I've had since the surgery is that I am unable to eat crusty > bread, Pastries etc as it feel like a lead-weight and bloated feeling. > > Hope this helps and I'm here if you want to ask me anything else. > > Take care > Vee > (UK) > > She is going through this period where she has to eat every other hour or > so. Wakes in the evening and is hungry - ravished. The doc said it might > be because the cells were changing from 'esophigus' to 'stomach' cells; > which I *assume* could be Barrett's Esophiigus. I was not in the room when > she was told and did not hear about the discussion until last week. She is > about 5'6 " and weighs about 105 lb. She has been on liquid zantec for about > six years; and reacts to prilosec. > > Does this sound similar to what you were experiencing? Is this why you had > a fundo? What sort of complications did you have? Do you have to have an > endiscopic procedure every six months? > > Thank you in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Vee; Thank you for your reply. It does sound somewhat like my daughter. She is taking liquid zantec because of the reverse motility in her throat. Now that you mention it; I see her hold her breath after eating - I didn¹t think she was holding down food. The pain is extreme. Everyday seems to be such a struggle for her; hunting down food and then digesting it. It seems that is all there is to her day some times The doc thinks it might be Barretts Esophigus; but I keep thinking Diabetes on top of the reverse motility, chronic gastritis and dumping syndrome. Regardless he is refusing to treat her as she is 20 years and no longer can see a child gi specialist. We go to a teaching hospital and I think it quite a statement when the child gi specialist advises us to not go on to the adult gi services; but to go into the community and pick a gi specialist from there. I got her into her pcp to get a diabetes test and then will find the gi specialist if that test does not show she has diabetes. The doc had told her the surgery if she continued to be hungry and losing weight. I wasn¹t in the room when he said that; so I feel a bit out of the loop of understanding what is going on. Thank you again for your reply. On 5/25/04 11:28 PM, " ceda " ceda > wrote: > > Subject: Re Fundoplication > > Clear DayI'm sorry your daughter is having these problems. > > The symptoms I had prior to my Fundo were Refluxing constantly so I was having > to hold my breath as much as I could after eating. Even tying my shoe laces > was a struggle. I even refluxed a mouthful of water. I also experienced > episodes of abdominal pain and vomiting. I've not had the symptoms of > needing to eat very regularly as your daughter has. > > I took 20mg Cisapride (Prepulsid) twice daily and still need to take it now > and I also take Esomeprazole (Nexium) 40mg daily. > > I don't need to have an Endoscope every 6 monthly. > > The only problem I've had since the surgery is that I am unable to eat crusty > bread, Pastries etc as it feel like a lead-weight and bloated feeling. > > Hope this helps and I'm here if you want to ask me anything else. > > Take care > Vee > (UK) > > She is going through this period where she has to eat every other hour or > so. Wakes in the evening and is hungry - ravished. The doc said it might > be because the cells were changing from 'esophigus' to 'stomach' cells; > which I *assume* could be Barrett's Esophiigus. I was not in the room when > she was told and did not hear about the discussion until last week. She is > about 5'6 " and weighs about 105 lb. She has been on liquid zantec for about > six years; and reacts to prilosec. > > Does this sound similar to what you were experiencing? Is this why you had > a fundo? What sort of complications did you have? Do you have to have an > endiscopic procedure every six months? > > Thank you in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 Vee; Thank you for your reply. It does sound somewhat like my daughter. She is taking liquid zantec because of the reverse motility in her throat. Now that you mention it; I see her hold her breath after eating - I didn¹t think she was holding down food. The pain is extreme. Everyday seems to be such a struggle for her; hunting down food and then digesting it. It seems that is all there is to her day some times The doc thinks it might be Barretts Esophigus; but I keep thinking Diabetes on top of the reverse motility, chronic gastritis and dumping syndrome. Regardless he is refusing to treat her as she is 20 years and no longer can see a child gi specialist. We go to a teaching hospital and I think it quite a statement when the child gi specialist advises us to not go on to the adult gi services; but to go into the community and pick a gi specialist from there. I got her into her pcp to get a diabetes test and then will find the gi specialist if that test does not show she has diabetes. The doc had told her the surgery if she continued to be hungry and losing weight. I wasn¹t in the room when he said that; so I feel a bit out of the loop of understanding what is going on. Thank you again for your reply. On 5/25/04 11:28 PM, " ceda " ceda > wrote: > > Subject: Re Fundoplication > > Clear DayI'm sorry your daughter is having these problems. > > The symptoms I had prior to my Fundo were Refluxing constantly so I was having > to hold my breath as much as I could after eating. Even tying my shoe laces > was a struggle. I even refluxed a mouthful of water. I also experienced > episodes of abdominal pain and vomiting. I've not had the symptoms of > needing to eat very regularly as your daughter has. > > I took 20mg Cisapride (Prepulsid) twice daily and still need to take it now > and I also take Esomeprazole (Nexium) 40mg daily. > > I don't need to have an Endoscope every 6 monthly. > > The only problem I've had since the surgery is that I am unable to eat crusty > bread, Pastries etc as it feel like a lead-weight and bloated feeling. > > Hope this helps and I'm here if you want to ask me anything else. > > Take care > Vee > (UK) > > She is going through this period where she has to eat every other hour or > so. Wakes in the evening and is hungry - ravished. The doc said it might > be because the cells were changing from 'esophigus' to 'stomach' cells; > which I *assume* could be Barrett's Esophiigus. I was not in the room when > she was told and did not hear about the discussion until last week. She is > about 5'6 " and weighs about 105 lb. She has been on liquid zantec for about > six years; and reacts to prilosec. > > Does this sound similar to what you were experiencing? Is this why you had > a fundo? What sort of complications did you have? Do you have to have an > endiscopic procedure every six months? > > Thank you in advance. Quote Link to comment Share on other sites More sharing options...
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