question

[Guest guest]

---Don't hang from the ceiling! LOL Massage (go back a message),

and stretching after mild exercise to keep limber enough. No rough

stuff. I, for one, hate tickling. My nervous system can't handle it.

In @y..., wrote:

>

> I'm fairly new to this. I have a question, and I'm not trying to be

smart or anything. How does one handle sex with disease? If I ahve

any energy at all, I' m usuall in pain. Anybody have any ideas?

>

> Thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

---Don't hang from the ceiling! LOL Massage (go back a message),

and stretching after mild exercise to keep limber enough. No rough

stuff. I, for one, hate tickling. My nervous system can't handle it.

In @y..., wrote:

>

> I'm fairly new to this. I have a question, and I'm not trying to be

smart or anything. How does one handle sex with disease? If I ahve

any energy at all, I' m usuall in pain. Anybody have any ideas?

>

> Thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

asked: «How does one handle sex with disease? If I ahve any energy

at all, I'm usuall in pain. Anybody have any ideas?»

I think the key is having an understanding partner and good communication so

that you both know what's off-limits. With me, that can change on a

minute-by-minute basis LOL Last night, for example, was in a playful

mood and started tickling me. He brushed one of my trigger points very

lightly and I just about jolted completely upright... I think I scared him

half to death, but once I explained what happened, everything was fine

again.

Maybe I'm strange, but I am pretty much *always* up for sex, no matter how

badly I'm hurting from FMS. Actually, I've found that I feel much better

after sex; I think it's probably because of the stress-relief and

endorphin-rush that orgasm provides.

And the times that I am hurting too badly for sex, it's still wonderful to

be held and kissed and massaged gently.

There's my 2¢,

-Mareth from Ohio

~*~*~*~*~*~

There is no need for temples; no need for complicated philosophy. Our own

brain, our own heart is our temple; my philosophy is kindness.

--The Dalai Lama

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

asked: «How does one handle sex with disease? If I ahve any energy

at all, I'm usuall in pain. Anybody have any ideas?»

I think the key is having an understanding partner and good communication so

that you both know what's off-limits. With me, that can change on a

minute-by-minute basis LOL Last night, for example, was in a playful

mood and started tickling me. He brushed one of my trigger points very

lightly and I just about jolted completely upright... I think I scared him

half to death, but once I explained what happened, everything was fine

again.

Maybe I'm strange, but I am pretty much *always* up for sex, no matter how

badly I'm hurting from FMS. Actually, I've found that I feel much better

after sex; I think it's probably because of the stress-relief and

endorphin-rush that orgasm provides.

And the times that I am hurting too badly for sex, it's still wonderful to

be held and kissed and massaged gently.

There's my 2¢,

-Mareth from Ohio

~*~*~*~*~*~

There is no need for temples; no need for complicated philosophy. Our own

brain, our own heart is our temple; my philosophy is kindness.

--The Dalai Lama

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

asked: «How does one handle sex with disease? If I ahve any energy

at all, I'm usuall in pain. Anybody have any ideas?»

I think the key is having an understanding partner and good communication so

that you both know what's off-limits. With me, that can change on a

minute-by-minute basis LOL Last night, for example, was in a playful

mood and started tickling me. He brushed one of my trigger points very

lightly and I just about jolted completely upright... I think I scared him

half to death, but once I explained what happened, everything was fine

again.

Maybe I'm strange, but I am pretty much *always* up for sex, no matter how

badly I'm hurting from FMS. Actually, I've found that I feel much better

after sex; I think it's probably because of the stress-relief and

endorphin-rush that orgasm provides.

And the times that I am hurting too badly for sex, it's still wonderful to

be held and kissed and massaged gently.

There's my 2¢,

-Mareth from Ohio

~*~*~*~*~*~

There is no need for temples; no need for complicated philosophy. Our own

brain, our own heart is our temple; my philosophy is kindness.

--The Dalai Lama

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

---I agree Mareth, Fibro really hasn't changed " desire " . And I do

feel better if I have sex with relative frequency. I have plenty of

friends who complain about their sex lives and they can't even

pronounce fibromyalgia much less understand it.

In @y..., " it's me, Mareth "

wrote:

> asked: «How does one handle sex with disease? If I ahve any

energy

> at all, I'm usuall in pain. Anybody have any ideas?»

>

> I think the key is having an understanding partner and good

communication so

> that you both know what's off-limits. With me, that can change on

a

> minute-by-minute basis LOL Last night, for example, was in

a playful

> mood and started tickling me. He brushed one of my trigger points

very

> lightly and I just about jolted completely upright... I think I

scared him

> half to death, but once I explained what happened, everything was

fine

> again.

>

> Maybe I'm strange, but I am pretty much *always* up for sex, no

matter how

> badly I'm hurting from FMS. Actually, I've found that I feel much

better

> after sex; I think it's probably because of the stress-relief and

> endorphin-rush that orgasm provides.

>

> And the times that I am hurting too badly for sex, it's still

wonderful to

> be held and kissed and massaged gently.

>

> There's my 2¢,

>

> -Mareth from Ohio

> ~*~*~*~*~*~

>

> There is no need for temples; no need for complicated philosophy.

Our own

> brain, our own heart is our temple; my philosophy is kindness.

>

> --The Dalai Lama

>

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device:

http://mobile.msn.com

[Guest guest]

---I agree Mareth, Fibro really hasn't changed " desire " . And I do

feel better if I have sex with relative frequency. I have plenty of

friends who complain about their sex lives and they can't even

pronounce fibromyalgia much less understand it.

In @y..., " it's me, Mareth "

wrote:

> asked: «How does one handle sex with disease? If I ahve any

energy

> at all, I'm usuall in pain. Anybody have any ideas?»

>

> I think the key is having an understanding partner and good

communication so

> that you both know what's off-limits. With me, that can change on

a

> minute-by-minute basis LOL Last night, for example, was in

a playful

> mood and started tickling me. He brushed one of my trigger points

very

> lightly and I just about jolted completely upright... I think I

scared him

> half to death, but once I explained what happened, everything was

fine

> again.

>

> Maybe I'm strange, but I am pretty much *always* up for sex, no

matter how

> badly I'm hurting from FMS. Actually, I've found that I feel much

better

> after sex; I think it's probably because of the stress-relief and

> endorphin-rush that orgasm provides.

>

> And the times that I am hurting too badly for sex, it's still

wonderful to

> be held and kissed and massaged gently.

>

> There's my 2¢,

>

> -Mareth from Ohio

> ~*~*~*~*~*~

>

> There is no need for temples; no need for complicated philosophy.

Our own

> brain, our own heart is our temple; my philosophy is kindness.

>

> --The Dalai Lama

>

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device:

http://mobile.msn.com

[Guest guest]

OMG, i cant believe it, i thought i was wierd, cause i too feel better after

good sex, it distracts you for a while.funny subject but so very true, lol

love terri

territa58 territa58@...> wrote: ---I agree Mareth, Fibro really hasn't

changed " desire " . And I do

feel better if I have sex with relative frequency. I have plenty of

friends who complain about their sex lives and they can't even

pronounce fibromyalgia much less understand it.

In @y..., " it's me, Mareth "

wrote:

> asked: «How does one handle sex with disease? If I ahve any

energy

> at all, I'm usuall in pain. Anybody have any ideas?»

>

> I think the key is having an understanding partner and good

communication so

> that you both know what's off-limits. With me, that can change on

a

> minute-by-minute basis LOL Last night, for example, was in

a playful

> mood and started tickling me. He brushed one of my trigger points

very

> lightly and I just about jolted completely upright... I think I

scared him

> half to death, but once I explained what happened, everything was

fine

> again.

>

> Maybe I'm strange, but I am pretty much *always* up for sex, no

matter how

> badly I'm hurting from FMS. Actually, I've found that I feel much

better

> after sex; I think it's probably because of the stress-relief and

> endorphin-rush that orgasm provides.

>

> And the times that I am hurting too badly for sex, it's still

wonderful to

> be held and kissed and massaged gently.

>

> There's my 2¢,

>

> -Mareth from Ohio

> ~*~*~*~*~*~

>

> There is no need for temples; no need for complicated philosophy.

Our own

> brain, our own heart is our temple; my philosophy is kindness.

>

> --The Dalai Lama

>

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device:

http://mobile.msn.com

[Guest guest]

-

: It doesn't look like you got much response to your

question. Maybe people are skeptical ..... I'll take you

seriously... I guess what I would say would depend on whether you are

in a committed relationship or not. If not, then I can see more of a

problem....as in how to find a partner when you are well enough and

in the mood...

In a relationship, if your partner understands what you're going

through, sex with FM can be like any other time. Don't the experts

all say that sex begins in the mind?... If you start slowly, massage

by partner or shared baths can be a great starter... Or just cuddling

in candlelight..... When it gets past that stage, just think slow and

easy. Find what is most comfortable for you with regards to

positions and let your partner do the work..... If necessary, ask

your family doctor for advice. There are pamphlets advising about sex

for persons with arthritis and they pretty much apply to those with

FM. Be glad you're not a woman with FM....the " female " problems

associated with this disorder can make sex a nightmare!.... Lamisa

-- In @y..., wrote:

>

> I'm fairly new to this. I have a question, and I'm not trying to be

smart or anything. How does one handle sex with disease? If I ahve

any energy at all, I' m usuall in pain. Anybody have any ideas?

>

> Thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

-

: It doesn't look like you got much response to your

question. Maybe people are skeptical ..... I'll take you

seriously... I guess what I would say would depend on whether you are

in a committed relationship or not. If not, then I can see more of a

problem....as in how to find a partner when you are well enough and

in the mood...

In a relationship, if your partner understands what you're going

through, sex with FM can be like any other time. Don't the experts

all say that sex begins in the mind?... If you start slowly, massage

by partner or shared baths can be a great starter... Or just cuddling

in candlelight..... When it gets past that stage, just think slow and

easy. Find what is most comfortable for you with regards to

positions and let your partner do the work..... If necessary, ask

your family doctor for advice. There are pamphlets advising about sex

for persons with arthritis and they pretty much apply to those with

FM. Be glad you're not a woman with FM....the " female " problems

associated with this disorder can make sex a nightmare!.... Lamisa

-- In @y..., wrote:

>

> I'm fairly new to this. I have a question, and I'm not trying to be

smart or anything. How does one handle sex with disease? If I ahve

any energy at all, I' m usuall in pain. Anybody have any ideas?

>

> Thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

-

: It doesn't look like you got much response to your

question. Maybe people are skeptical ..... I'll take you

seriously... I guess what I would say would depend on whether you are

in a committed relationship or not. If not, then I can see more of a

problem....as in how to find a partner when you are well enough and

in the mood...

In a relationship, if your partner understands what you're going

through, sex with FM can be like any other time. Don't the experts

all say that sex begins in the mind?... If you start slowly, massage

by partner or shared baths can be a great starter... Or just cuddling

in candlelight..... When it gets past that stage, just think slow and

easy. Find what is most comfortable for you with regards to

positions and let your partner do the work..... If necessary, ask

your family doctor for advice. There are pamphlets advising about sex

for persons with arthritis and they pretty much apply to those with

FM. Be glad you're not a woman with FM....the " female " problems

associated with this disorder can make sex a nightmare!.... Lamisa

-- In @y..., wrote:

>

> I'm fairly new to this. I have a question, and I'm not trying to be

smart or anything. How does one handle sex with disease? If I ahve

any energy at all, I' m usuall in pain. Anybody have any ideas?

>

> Thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

I completely understand and sympathize. My husband says that all I do is

complain, which I guess I did prior to being diagnosed because I didn't know

what was going on, but I was only diagnosed a couple of weeks ago. I don't

really complain to him much at all anymore, but I do try to talk to him about

new things I have learned about it, which seems to fall on deaf ears. He usually

will walk out of the room when I am talking to him. But I know he does it

because he doesn't know what to tell me to do to fix the problem so he doesn't

want to hear about it. Because he always wants to fix everything.

But anyway I don;t mean to ramble but I just wanted to let you know that I know

where you are coming from and all you can really do in my opinion is try to

educate yourself and your partner and if they are not supportive or responsive

come to the group and vent, ask advice, get support,etc.

question

Does anyone else have trouble with their spouse not believing the pain is so

bad?

Mine is giving me a hard time. especially about the CFS, and the Fibro fog. I

truly don't remember things, and she get mad and says she doesn't believe I

don't remember.

thanks,

---------------------------------

[Guest guest]

I completely understand and sympathize. My husband says that all I do is

complain, which I guess I did prior to being diagnosed because I didn't know

what was going on, but I was only diagnosed a couple of weeks ago. I don't

really complain to him much at all anymore, but I do try to talk to him about

new things I have learned about it, which seems to fall on deaf ears. He usually

will walk out of the room when I am talking to him. But I know he does it

because he doesn't know what to tell me to do to fix the problem so he doesn't

want to hear about it. Because he always wants to fix everything.

But anyway I don;t mean to ramble but I just wanted to let you know that I know

where you are coming from and all you can really do in my opinion is try to

educate yourself and your partner and if they are not supportive or responsive

come to the group and vent, ask advice, get support,etc.

question

Does anyone else have trouble with their spouse not believing the pain is so

bad?

Mine is giving me a hard time. especially about the CFS, and the Fibro fog. I

truly don't remember things, and she get mad and says she doesn't believe I

don't remember.

thanks,

---------------------------------

[Guest guest]

I completely understand and sympathize. My husband says that all I do is

complain, which I guess I did prior to being diagnosed because I didn't know

what was going on, but I was only diagnosed a couple of weeks ago. I don't

really complain to him much at all anymore, but I do try to talk to him about

new things I have learned about it, which seems to fall on deaf ears. He usually

will walk out of the room when I am talking to him. But I know he does it

because he doesn't know what to tell me to do to fix the problem so he doesn't

want to hear about it. Because he always wants to fix everything.

But anyway I don;t mean to ramble but I just wanted to let you know that I know

where you are coming from and all you can really do in my opinion is try to

educate yourself and your partner and if they are not supportive or responsive

come to the group and vent, ask advice, get support,etc.

question

Does anyone else have trouble with their spouse not believing the pain is so

bad?

Mine is giving me a hard time. especially about the CFS, and the Fibro fog. I

truly don't remember things, and she get mad and says she doesn't believe I

don't remember.

thanks,

---------------------------------

[Guest guest]

---Why do you think I'm divorced?

The past two relationships, I've had have been with people who also

have chonic pain. Sometimes you gotta have a little pain to get a

lot of pleasure... One had a neck injury from an auto accident.

We'd rub each other out. Ther other broke his back and has pins and

titanium rods and great stuff like that. He is more limited than I

am but now I'm into quality, not quantity.

Believe me, ya gotta be creative.

I'm sorry you're going through the " yes its real-why can't you

believe me? " drill. Been there done that. I quit talking about it

and then was accused of not communicating my needs! AAARRRGGH

In @y..., wrote:

>

> Does anyone else have trouble with their spouse not believing the

pain is so bad?

>

> Mine is giving me a hard time. especially about the CFS, and the

Fibro fog. I truly don't remember things, and she get mad and says

she doesn't believe I don't remember.

>

> thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

---Why do you think I'm divorced?

The past two relationships, I've had have been with people who also

have chonic pain. Sometimes you gotta have a little pain to get a

lot of pleasure... One had a neck injury from an auto accident.

We'd rub each other out. Ther other broke his back and has pins and

titanium rods and great stuff like that. He is more limited than I

am but now I'm into quality, not quantity.

Believe me, ya gotta be creative.

I'm sorry you're going through the " yes its real-why can't you

believe me? " drill. Been there done that. I quit talking about it

and then was accused of not communicating my needs! AAARRRGGH

In @y..., wrote:

>

> Does anyone else have trouble with their spouse not believing the

pain is so bad?

>

> Mine is giving me a hard time. especially about the CFS, and the

Fibro fog. I truly don't remember things, and she get mad and says

she doesn't believe I don't remember.

>

> thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

---Why do you think I'm divorced?

The past two relationships, I've had have been with people who also

have chonic pain. Sometimes you gotta have a little pain to get a

lot of pleasure... One had a neck injury from an auto accident.

We'd rub each other out. Ther other broke his back and has pins and

titanium rods and great stuff like that. He is more limited than I

am but now I'm into quality, not quantity.

Believe me, ya gotta be creative.

I'm sorry you're going through the " yes its real-why can't you

believe me? " drill. Been there done that. I quit talking about it

and then was accused of not communicating my needs! AAARRRGGH

In @y..., wrote:

>

> Does anyone else have trouble with their spouse not believing the

pain is so bad?

>

> Mine is giving me a hard time. especially about the CFS, and the

Fibro fog. I truly don't remember things, and she get mad and says

she doesn't believe I don't remember.

>

> thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

Dear ,

Gosh, I think most of us have problems in this area! I know I sure did. I

even tried changing spouses and still had some problems in the area! LOL It

is hard to understand the type of pain that we have because when we say we

have a headache or backache, our ache is two to three times what someone else

would feel with the same type of ache. Theirs could be an ache that they can

still function with and ours is hellish. Big difference!

One of the things that helps to help others understand is by introducing them

to others that suffer as we do. If the one we are trying to inform will be

open to any understanding at all, they will hear us, but if they are not

open, nothing you do will open their ears or minds to what we are suffering.

Many people do not want to understand, plain and simple. Understanding means

they must be kind when we cannot do things and they may not want to

understand and act accordingly because it is a hard job to understand and

take on what we cannot do. Many resent us even if they do not wish to resent

us. Their resentment can come from a number of places and understandably so.

They can resent us because we cause them hardship, cannot fullfill things

that they need us to fullfill and because we are not the person they fell in

love with or whatever. Being ill or in pain is not easy and living with a

person who is ill or in pain is not easy. That is the cause of many divorces

with those of us that are ill. Been there, done that, don't want to go there

again.

The best thing you can do is get your outside support and try to

understand how you might be able to make things a bit easier for your spouse.

Then give information that your spouse might be able to understand and if

your spouse is willing, maybe sit down with someone that understands your

pain and understands her pain in this too. Maybe someone that cares about

you both could help you communicate through this one. It is a tough one to

get through alone. I am not suggesting a counseler, unless that is what you

would want. I am suggesting a freind that you both respect that has been

there.

One time a boyfriend of mine went to a doctor friend of his to ask about me

and my illness. Oh boy was that the worst thing that could happen! It

ruined what relationship we could have had. We had been planning on getting

married. This doctor told him that Fibromyalgia was the Neurotic Women's

Disorder! From that point on, my pain was a lie I was trying to use to get

out of living life and working. My doctor was really mad when I told him

what happened and I think he wanted to go kick some tail end!

I lost my husband because I was ill and it was too hard on him. He couldn't

take it. I then didn't want to date anyone because I felt I was invited to a

party from hell and didn't want anyone to escort me to the party. I did

start dating because some freinds of mine insisted I wasn't being fair to

anyone who might wish to love me. That is when I had that boyfriend that the

doctor told such false lies to that ruined things.

It takes a very specail person to be able to handle our illness and even

then, there are pressures and hardships that come into play and rough times.

I wish you and your family the best and encourage you to continue to ask

questions, even if you find no answer right away. Gather as much support as

you can and maybe you can run into someone that can bond with you in a

special way that can support you in a more personal way. Sometimes you don't

want everyone in the world knowing all things about yourself and situation.

It helps to have a close friend that can understand. Sounds like you could

use a friend like that. Heck I think most of us could use a friend like that.

I sure hope things go well for you and know that we are all here just

for this reason, to support and gather support. Feel free to email me any

time if you wish to talk about anything. I know how it is to be alone in

this stuff and wouldn't wish it on anyone but the docs that don't believe

fibro is real!

Donna/Colorado

[Guest guest]

Donna, I felt so badly when I saw your story that I wanted to tell you what a

good description you gave about what happens. I have been to the doctor

who said it wall inmy head, too, and I still would like to confront him about

it. I have had fibromyalgia for 24 years and have lost everything except my

husband has learned to understand that I feel awful and now we don't even talk

about it much - just try to get by. He has gotten to where he has arthritis

pain as well, and with time comes understanding. He has taken really good care

of me. In earlier years he did not feel as patient, however.

I thought your letter really touched my heart, and I thank you for it. Best,

Janet

silversdesk@... wrote: Dear ,

Gosh, I think most of us have problems in this area! I know I sure did. I

even tried changing spouses and still had some problems in the area! LOL It

is hard to understand the type of pain that we have because when we say we

have a headache or backache, our ache is two to three times what someone else

would feel with the same type of ache. Theirs could be an ache that they can

still function with and ours is hellish. Big difference!

One of the things that helps to help others understand is by introducing them

to others that suffer as we do. If the one we are trying to inform will be

open to any understanding at all, they will hear us, but if they are not

open, nothing you do will open their ears or minds to what we are suffering.

Many people do not want to understand, plain and simple. Understanding means

they must be kind when we cannot do things and they may not want to

understand and act accordingly because it is a hard job to understand and

take on what we cannot do. Many resent us even if they do not wish to resent

us. Their resentment can come from a number of places and understandably so.

They can resent us because we cause them hardship, cannot fullfill things

that they need us to fullfill and because we are not the person they fell in

love with or whatever. Being ill or in pain is not easy and living with a

person who is ill or in pain is not easy. That is the cause of many divorces

with those of us that are ill. Been there, done that, don't want to go there

again.

The best thing you can do is get your outside support and try to

understand how you might be able to make things a bit easier for your spouse.

Then give information that your spouse might be able to understand and if

your spouse is willing, maybe sit down with someone that understands your

pain and understands her pain in this too. Maybe someone that cares about

you both could help you communicate through this one. It is a tough one to

get through alone. I am not suggesting a counseler, unless that is what you

would want. I am suggesting a freind that you both respect that has been

there.

One time a boyfriend of mine went to a doctor friend of his to ask about me

and my illness. Oh boy was that the worst thing that could happen! It

ruined what relationship we could have had. We had been planning on getting

married. This doctor told him that Fibromyalgia was the Neurotic Women's

Disorder! From that point on, my pain was a lie I was trying to use to get

out of living life and working. My doctor was really mad when I told him

what happened and I think he wanted to go kick some tail end!

I lost my husband because I was ill and it was too hard on him. He couldn't

take it. I then didn't want to date anyone because I felt I was invited to a

party from hell and didn't want anyone to escort me to the party. I did

start dating because some freinds of mine insisted I wasn't being fair to

anyone who might wish to love me. That is when I had that boyfriend that the

doctor told such false lies to that ruined things.

It takes a very specail person to be able to handle our illness and even

then, there are pressures and hardships that come into play and rough times.

I wish you and your family the best and encourage you to continue to ask

questions, even if you find no answer right away. Gather as much support as

you can and maybe you can run into someone that can bond with you in a

special way that can support you in a more personal way. Sometimes you don't

want everyone in the world knowing all things about yourself and situation.

It helps to have a close friend that can understand. Sounds like you could

use a friend like that. Heck I think most of us could use a friend like that.

I sure hope things go well for you and know that we are all here just

for this reason, to support and gather support. Feel free to email me any

time if you wish to talk about anything. I know how it is to be alone in

this stuff and wouldn't wish it on anyone but the docs that don't believe

fibro is real!

Donna/Colorado

[Guest guest]

,

I have a big problem with my husband understanding any of this fibromyalgia!

He thinks that I use it as an " excuse " .. don't I wish, than it would go away

right. We seperated about 3 and a half years ago because he couldn't " deal "

with all the symptoms, medical test, doctors,etc.... I went through being

diagnosed. His dealing was leaving me home with my 3 year old and 7 year old

while he went out drinking all day and night. I read alot where

spouses/significant others can't quite understand our symptoms and why we do

and feel the way we do. I know that I tended to take alot of my anger when I

wasn't feeling well at all out on him and I am sure he was out his ends with

me too. I guess it would be hard for anyone that doesn't have fibro and/or

cfs to understand any of this...and it is near impossible to explain (tried

to what seems like a million of times) I am sure your spouse believes you and

maybe is having a hard time understanding and seeing you go through all you

are going through with this dd. (my opinion only) hang in there and take care

of yourself

Terri

[Guest guest]

,

I have a big problem with my husband understanding any of this fibromyalgia!

He thinks that I use it as an " excuse " .. don't I wish, than it would go away

right. We seperated about 3 and a half years ago because he couldn't " deal "

with all the symptoms, medical test, doctors,etc.... I went through being

diagnosed. His dealing was leaving me home with my 3 year old and 7 year old

while he went out drinking all day and night. I read alot where

spouses/significant others can't quite understand our symptoms and why we do

and feel the way we do. I know that I tended to take alot of my anger when I

wasn't feeling well at all out on him and I am sure he was out his ends with

me too. I guess it would be hard for anyone that doesn't have fibro and/or

cfs to understand any of this...and it is near impossible to explain (tried

to what seems like a million of times) I am sure your spouse believes you and

maybe is having a hard time understanding and seeing you go through all you

are going through with this dd. (my opinion only) hang in there and take care

of yourself

Terri

[Guest guest]

,

I have a big problem with my husband understanding any of this fibromyalgia!

He thinks that I use it as an " excuse " .. don't I wish, than it would go away

right. We seperated about 3 and a half years ago because he couldn't " deal "

with all the symptoms, medical test, doctors,etc.... I went through being

diagnosed. His dealing was leaving me home with my 3 year old and 7 year old

while he went out drinking all day and night. I read alot where

spouses/significant others can't quite understand our symptoms and why we do

and feel the way we do. I know that I tended to take alot of my anger when I

wasn't feeling well at all out on him and I am sure he was out his ends with

me too. I guess it would be hard for anyone that doesn't have fibro and/or

cfs to understand any of this...and it is near impossible to explain (tried

to what seems like a million of times) I am sure your spouse believes you and

maybe is having a hard time understanding and seeing you go through all you

are going through with this dd. (my opinion only) hang in there and take care

of yourself

Terri

[Guest guest]

Hi ,

I don't have a problem with my hubby......we were divorced years

ago before fibro was diagnosed. I have experienced this with

everyone else.....parents....grandparents... teenaged sons....and

people at the workplace though. Its hard to have a disease that no

one sees. The memory thing effects me bigtime.....especially with

names.....people that I interact with daily! I lose time too. Do

you do that?

Hope you have a great day!

Dawn

>

> Does anyone else have trouble with their spouse not believing the

pain is so bad?

>

> Mine is giving me a hard time. especially about the CFS, and the

Fibro fog. I truly don't remember things, and she get mad and says

she doesn't believe I don't remember.

>

> thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

Hi ,

I don't have a problem with my hubby......we were divorced years

ago before fibro was diagnosed. I have experienced this with

everyone else.....parents....grandparents... teenaged sons....and

people at the workplace though. Its hard to have a disease that no

one sees. The memory thing effects me bigtime.....especially with

names.....people that I interact with daily! I lose time too. Do

you do that?

Hope you have a great day!

Dawn

>

> Does anyone else have trouble with their spouse not believing the

pain is so bad?

>

> Mine is giving me a hard time. especially about the CFS, and the

Fibro fog. I truly don't remember things, and she get mad and says

she doesn't believe I don't remember.

>

> thanks,

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

I hadn't had surgery prior to having FMS.

On that note, however, I was wondering how many of us are/were " type

A " personalities, general overachievers, worry-warts, etc. I grew up

very fast when I was still pretty young, and sometimes I wonder if my

body just couldn't keep up with the demands I've put on it,

physically, mentally and emotionally. Any thoughts on this?

> Just trying to find a link, How many people have had any type of

> surgery prior to having fibro?

>