Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 > Has anyone had their hair get thinner from FMS? > > It seem to have affected mine. > > Thank, > > > I have lost about half of my long hair. It's been rather depressing. Whenever I have a bad bout with CFS my hair falls out. I hate it. I wish I could stop it somehow. I can relate... > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi my name is , first off sorry to hear you have had problems for so long. it sounds like someone needs to visualize your pancreas not just by C-t or throught MRI, these things only give an outside view of your pancreas ( not an inside view) it maybe that your disease process has not affected the outside yet. There are many valueable tools for G.I.'s to use, unfortunately they are not without risks. One way is an ERCP the G.I. uses a scope to go into your stomach and into your smallbowel to find the way into your common bile duct where they can measure the pressures to see if you have sphicter of oddi dysfunction, or the can directly go into the pancreas to see if you have pancreatic divisum, at this time a secretin test can be performed to see if you are having problems in that area. There is also a newer tool called an MRCP which is less invasive if it is available in your area. It sounds like you are on the right track, just don't let anybody brush you off, think about some of the things you eat that set you off, could it be beef products, pork, fried things,peanut butter, so you'll have a better idea what to tell the Dr. Do you notice diarrhea with the pain? If so let them now. What about frequent vomiting or nausea? These answers to these questions may help in your diagonosis. Just be dilegent when you see the Dr., I hope for you that it is not your pancreas but hopefully this will help a little, feel free to E-Mail me anytime LR-Atwell LPN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi my name is , first off sorry to hear you have had problems for so long. it sounds like someone needs to visualize your pancreas not just by C-t or throught MRI, these things only give an outside view of your pancreas ( not an inside view) it maybe that your disease process has not affected the outside yet. There are many valueable tools for G.I.'s to use, unfortunately they are not without risks. One way is an ERCP the G.I. uses a scope to go into your stomach and into your smallbowel to find the way into your common bile duct where they can measure the pressures to see if you have sphicter of oddi dysfunction, or the can directly go into the pancreas to see if you have pancreatic divisum, at this time a secretin test can be performed to see if you are having problems in that area. There is also a newer tool called an MRCP which is less invasive if it is available in your area. It sounds like you are on the right track, just don't let anybody brush you off, think about some of the things you eat that set you off, could it be beef products, pork, fried things,peanut butter, so you'll have a better idea what to tell the Dr. Do you notice diarrhea with the pain? If so let them now. What about frequent vomiting or nausea? These answers to these questions may help in your diagonosis. Just be dilegent when you see the Dr., I hope for you that it is not your pancreas but hopefully this will help a little, feel free to E-Mail me anytime LR-Atwell LPN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi my name is , first off sorry to hear you have had problems for so long. it sounds like someone needs to visualize your pancreas not just by C-t or throught MRI, these things only give an outside view of your pancreas ( not an inside view) it maybe that your disease process has not affected the outside yet. There are many valueable tools for G.I.'s to use, unfortunately they are not without risks. One way is an ERCP the G.I. uses a scope to go into your stomach and into your smallbowel to find the way into your common bile duct where they can measure the pressures to see if you have sphicter of oddi dysfunction, or the can directly go into the pancreas to see if you have pancreatic divisum, at this time a secretin test can be performed to see if you are having problems in that area. There is also a newer tool called an MRCP which is less invasive if it is available in your area. It sounds like you are on the right track, just don't let anybody brush you off, think about some of the things you eat that set you off, could it be beef products, pork, fried things,peanut butter, so you'll have a better idea what to tell the Dr. Do you notice diarrhea with the pain? If so let them now. What about frequent vomiting or nausea? These answers to these questions may help in your diagonosis. Just be dilegent when you see the Dr., I hope for you that it is not your pancreas but hopefully this will help a little, feel free to E-Mail me anytime LR-Atwell LPN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 ...a newer tool called an MRCP which is less invasive if it is available in your area. It sounds like you are on the right track, just don't let anybody brush you off, think about some of the things you eat that set you off, could it be beef products, pork, fried things,peanut butter, so you'll have a better idea what to tell the Dr. Do you notice diarrhea with the pain? If so let them now. What about frequent vomiting or nausea? These answers to these questions may help in your diagonosis. Just be dilegent when you see the Dr., I hope for you that it is not your pancreas but hopefully this will help a little, feel free to E-Mail me anytime LR-Atwell LPN>>>> Hi , Thank you for taking the time to reply. Well, I am fortunate enough to live about two hours away from s Hopkins in B-more, and have managed to make an appointment w/a Gastro doc there in January. To address the questions you brought up (and I apologize if they were rhetorical in nature, haven't had much sleep lately so my judgement is a bit skewed..), haven't experienced any nausea, or vomitting. Mostly just the dull left-sided pain, the stomach cramps, and after a meal (anywhere between 2-12 hours) I may experience sporadic, very sharp pains in the mid-upper abdominal area, gas, bloating. The other symptoms, as I may have mentioned, seem very symptomic of malabsorption (muscle cramps/spasms, glossitis, occasional fatigue, floating stools). I've read about 'silent' chronic, idiopathic pancreatitis, and wonder if it may apply to me, or possibly be hereditary as my Mom has experienced chronic abdominal pain (once hospitalized over it) over many years, which no doctor or test has been able to diagnosis. Fortunately, so far, I haven't experienced any real debilitating pain for more than a few moments, more just the re-curring dull, nagging ache. I'm hoping the rather extreme measures I've taken in adjusting my lifestyle (no drinking, no smoking, no caffiene) and diet (virtually no fat) will help prevent this from becoming something worse, and in the meantime, hoping one of the two GI's I'll be seeing in the next 2-3 months will be able to provide some answers, and possibly either the ERCP or MRCP procedures. I apologize for the novel, as well as the wild speculation, and I thank you again for taking the time to reply to my posting and your generous offer to keep in touch via email (which I'll gladly do). Take care! Mason Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 ...a newer tool called an MRCP which is less invasive if it is available in your area. It sounds like you are on the right track, just don't let anybody brush you off, think about some of the things you eat that set you off, could it be beef products, pork, fried things,peanut butter, so you'll have a better idea what to tell the Dr. Do you notice diarrhea with the pain? If so let them now. What about frequent vomiting or nausea? These answers to these questions may help in your diagonosis. Just be dilegent when you see the Dr., I hope for you that it is not your pancreas but hopefully this will help a little, feel free to E-Mail me anytime LR-Atwell LPN>>>> Hi , Thank you for taking the time to reply. Well, I am fortunate enough to live about two hours away from s Hopkins in B-more, and have managed to make an appointment w/a Gastro doc there in January. To address the questions you brought up (and I apologize if they were rhetorical in nature, haven't had much sleep lately so my judgement is a bit skewed..), haven't experienced any nausea, or vomitting. Mostly just the dull left-sided pain, the stomach cramps, and after a meal (anywhere between 2-12 hours) I may experience sporadic, very sharp pains in the mid-upper abdominal area, gas, bloating. The other symptoms, as I may have mentioned, seem very symptomic of malabsorption (muscle cramps/spasms, glossitis, occasional fatigue, floating stools). I've read about 'silent' chronic, idiopathic pancreatitis, and wonder if it may apply to me, or possibly be hereditary as my Mom has experienced chronic abdominal pain (once hospitalized over it) over many years, which no doctor or test has been able to diagnosis. Fortunately, so far, I haven't experienced any real debilitating pain for more than a few moments, more just the re-curring dull, nagging ache. I'm hoping the rather extreme measures I've taken in adjusting my lifestyle (no drinking, no smoking, no caffiene) and diet (virtually no fat) will help prevent this from becoming something worse, and in the meantime, hoping one of the two GI's I'll be seeing in the next 2-3 months will be able to provide some answers, and possibly either the ERCP or MRCP procedures. I apologize for the novel, as well as the wild speculation, and I thank you again for taking the time to reply to my posting and your generous offer to keep in touch via email (which I'll gladly do). Take care! Mason Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 ...a newer tool called an MRCP which is less invasive if it is available in your area. It sounds like you are on the right track, just don't let anybody brush you off, think about some of the things you eat that set you off, could it be beef products, pork, fried things,peanut butter, so you'll have a better idea what to tell the Dr. Do you notice diarrhea with the pain? If so let them now. What about frequent vomiting or nausea? These answers to these questions may help in your diagonosis. Just be dilegent when you see the Dr., I hope for you that it is not your pancreas but hopefully this will help a little, feel free to E-Mail me anytime LR-Atwell LPN>>>> Hi , Thank you for taking the time to reply. Well, I am fortunate enough to live about two hours away from s Hopkins in B-more, and have managed to make an appointment w/a Gastro doc there in January. To address the questions you brought up (and I apologize if they were rhetorical in nature, haven't had much sleep lately so my judgement is a bit skewed..), haven't experienced any nausea, or vomitting. Mostly just the dull left-sided pain, the stomach cramps, and after a meal (anywhere between 2-12 hours) I may experience sporadic, very sharp pains in the mid-upper abdominal area, gas, bloating. The other symptoms, as I may have mentioned, seem very symptomic of malabsorption (muscle cramps/spasms, glossitis, occasional fatigue, floating stools). I've read about 'silent' chronic, idiopathic pancreatitis, and wonder if it may apply to me, or possibly be hereditary as my Mom has experienced chronic abdominal pain (once hospitalized over it) over many years, which no doctor or test has been able to diagnosis. Fortunately, so far, I haven't experienced any real debilitating pain for more than a few moments, more just the re-curring dull, nagging ache. I'm hoping the rather extreme measures I've taken in adjusting my lifestyle (no drinking, no smoking, no caffiene) and diet (virtually no fat) will help prevent this from becoming something worse, and in the meantime, hoping one of the two GI's I'll be seeing in the next 2-3 months will be able to provide some answers, and possibly either the ERCP or MRCP procedures. I apologize for the novel, as well as the wild speculation, and I thank you again for taking the time to reply to my posting and your generous offer to keep in touch via email (which I'll gladly do). Take care! Mason Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Kind of off the beaten path here, but I have a Brenna too. She is seven!!!! > >Reply-To: cfparents >To: cfparents > >Subject: Question >Date: Mon, 4 Nov 2002 15:10:20 -0700 > >Has anyone gone through the wish foundation?If so has anyone seen Brittny >Spears?If you have how long were you gone,were did you go to meet her,what >did you do ex. > >lots of hugs >Tammy B mom of Brenna 8 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Kind of off the beaten path here, but I have a Brenna too. She is seven!!!! > >Reply-To: cfparents >To: cfparents > >Subject: Question >Date: Mon, 4 Nov 2002 15:10:20 -0700 > >Has anyone gone through the wish foundation?If so has anyone seen Brittny >Spears?If you have how long were you gone,were did you go to meet her,what >did you do ex. > >lots of hugs >Tammy B mom of Brenna 8 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Kind of off the beaten path here, but I have a Brenna too. She is seven!!!! > >Reply-To: cfparents >To: cfparents > >Subject: Question >Date: Mon, 4 Nov 2002 15:10:20 -0700 > >Has anyone gone through the wish foundation?If so has anyone seen Brittny >Spears?If you have how long were you gone,were did you go to meet her,what >did you do ex. > >lots of hugs >Tammy B mom of Brenna 8 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 , I think I read that about 3% have the liver involvement. A young man near me just had a liver tx due to CF/ Joanne > > As you all know I don't post much as my knowledge on lung problems isn't > all that great, Our daughter has Bilary cirrosis of the liver, my question > is how common is this in C.F. patients? Mandy has overcome alot of things > associated with her liver problems and yet she remains very strong not to > mention happy, she is 13 and her happiest times is while shopping , pretty > typical teen I'd say. > > and Mark (Iowa) parents of 2 Mansy (13 w/cf) and Cyle (11 wo/cf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 , I think I read that about 3% have the liver involvement. A young man near me just had a liver tx due to CF/ Joanne > > As you all know I don't post much as my knowledge on lung problems isn't > all that great, Our daughter has Bilary cirrosis of the liver, my question > is how common is this in C.F. patients? Mandy has overcome alot of things > associated with her liver problems and yet she remains very strong not to > mention happy, she is 13 and her happiest times is while shopping , pretty > typical teen I'd say. > > and Mark (Iowa) parents of 2 Mansy (13 w/cf) and Cyle (11 wo/cf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Deb, Bactrim is very commonly prescribed to those with CF. I think I was on it for about 6 years before I got my lungs. I now take it 3 times a week as part of the post lung tx regime. Bactrim and Sulfatrim are the same thing. Sulfatrim is the generic. As to the bowel movements. Antiobiotics kill bacteria. But your stomach, yours included has good bacteria in it also. This good bacteria helps to digest and you need it. But antiobiotics do not know the difference between good and bad bacteria, so it kills it all. Hence we get the runs and strange bowel movements when on antiobioitics. Many doctors just say, " nothing we can do " . But there are several things you can do. Not sure how old your child is, but eating yogurt can help, but the plain yogurt is better. Acidophillus restores the good bacteria to the stomach and intestines. Yogurt has this. But the acidophillus in yogurt is not really enough to combat the powerful meds, so taking Megadophilus, or acidophillus, in pill form is the way to go. You can ask the pharmacist if they have any. I get mine at our Grocery store in the natural food section, as many people who are into natural food take this. Most likely it is refreigerated and you want to get one that says " 2 billion parts " . The higher the parts the better. Yogurt is very low in this. I know when I would be in the hospital on antiobioitic and just running to the bathroom, they would order a yogurt for me and think they solved my problem. Need to educate our docs on how acidophillus works and what form or it we need. Also, I think that sugars, like in sweetened yogurt can deplete the acidophillus to some degree so that is why the yogurt does little to help. Plain yogurt is best and then for about an hour nothing else sweet is best to do. Hope this helps a little. I still do the acidophlillus if I get put on some heavy drugs and never have a problem anymore. Good luck Joanne > > My youngest is on a medication they call bactruim but the bottle it says > sulfatrim. Ever since we start this she has complain of her stomach hurting > > more after she takes it. I sent a e-mail to the nurse practitioner and she > tell that this is not the character of this medication. Is this true? has > anyone else had problems with this drug. Also her stools have been looser > then normal and very GREEN! YUCK! Thanks for your help in advance. Deb A > > ------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2002 Report Share Posted December 22, 2002 Deb, Bactrim is very commonly prescribed to those with CF. I think I was on it for about 6 years before I got my lungs. I now take it 3 times a week as part of the post lung tx regime. Bactrim and Sulfatrim are the same thing. Sulfatrim is the generic. As to the bowel movements. Antiobiotics kill bacteria. But your stomach, yours included has good bacteria in it also. This good bacteria helps to digest and you need it. But antiobiotics do not know the difference between good and bad bacteria, so it kills it all. Hence we get the runs and strange bowel movements when on antiobioitics. Many doctors just say, " nothing we can do " . But there are several things you can do. Not sure how old your child is, but eating yogurt can help, but the plain yogurt is better. Acidophillus restores the good bacteria to the stomach and intestines. Yogurt has this. But the acidophillus in yogurt is not really enough to combat the powerful meds, so taking Megadophilus, or acidophillus, in pill form is the way to go. You can ask the pharmacist if they have any. I get mine at our Grocery store in the natural food section, as many people who are into natural food take this. Most likely it is refreigerated and you want to get one that says " 2 billion parts " . The higher the parts the better. Yogurt is very low in this. I know when I would be in the hospital on antiobioitic and just running to the bathroom, they would order a yogurt for me and think they solved my problem. Need to educate our docs on how acidophillus works and what form or it we need. Also, I think that sugars, like in sweetened yogurt can deplete the acidophillus to some degree so that is why the yogurt does little to help. Plain yogurt is best and then for about an hour nothing else sweet is best to do. Hope this helps a little. I still do the acidophlillus if I get put on some heavy drugs and never have a problem anymore. Good luck Joanne > > My youngest is on a medication they call bactruim but the bottle it says > sulfatrim. Ever since we start this she has complain of her stomach hurting > > more after she takes it. I sent a e-mail to the nurse practitioner and she > tell that this is not the character of this medication. Is this true? has > anyone else had problems with this drug. Also her stools have been looser > then normal and very GREEN! YUCK! Thanks for your help in advance. Deb A > > ------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 I always thought - green stools were indicative of a virus. Some antibodics play havoc on kids stomachs. Make sure you follow directions i.e. take w/ food, w/o food, w/ water, w/o milk, w/ tv on, etc. Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 I always thought - green stools were indicative of a virus. Some antibodics play havoc on kids stomachs. Make sure you follow directions i.e. take w/ food, w/o food, w/ water, w/o milk, w/ tv on, etc. Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 I always thought - green stools were indicative of a virus. Some antibodics play havoc on kids stomachs. Make sure you follow directions i.e. take w/ food, w/o food, w/ water, w/o milk, w/ tv on, etc. Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 ---My daughter 10 w/cf has been on Bactrim in the past and we have found that yes it does cause stomach problems and also kills ones appetite. My daughters pulmonologist confirmed that as well. Hope that helps. J. In cfparents , gdattig5@a... wrote: > My youngest is on a medication they call bactruim but the bottle it says > sulfatrim. Ever since we start this she has complain of her stomach hurting > more after she takes it. I sent a e-mail to the nurse practitioner and she > tell that this is not the character of this medication. Is this true? has > anyone else had problems with this drug. Also her stools have been looser > then normal and very GREEN! YUCK! Thanks for your help in advance. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 ---My daughter 10 w/cf has been on Bactrim in the past and we have found that yes it does cause stomach problems and also kills ones appetite. My daughters pulmonologist confirmed that as well. Hope that helps. J. In cfparents , gdattig5@a... wrote: > My youngest is on a medication they call bactruim but the bottle it says > sulfatrim. Ever since we start this she has complain of her stomach hurting > more after she takes it. I sent a e-mail to the nurse practitioner and she > tell that this is not the character of this medication. Is this true? has > anyone else had problems with this drug. Also her stools have been looser > then normal and very GREEN! YUCK! Thanks for your help in advance. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 ---My daughter 10 w/cf has been on Bactrim in the past and we have found that yes it does cause stomach problems and also kills ones appetite. My daughters pulmonologist confirmed that as well. Hope that helps. J. In cfparents , gdattig5@a... wrote: > My youngest is on a medication they call bactruim but the bottle it says > sulfatrim. Ever since we start this she has complain of her stomach hurting > more after she takes it. I sent a e-mail to the nurse practitioner and she > tell that this is not the character of this medication. Is this true? has > anyone else had problems with this drug. Also her stools have been looser > then normal and very GREEN! YUCK! Thanks for your help in advance. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 In a message dated 12/23/2002 6:43:57 AM Central Standard Time, luckylungsforjo@... writes: > > Deb, > > Bactrim is very commonly prescribed to those with CF. I think I was on it > for > about 6 years before I got my lungs. I now take it 3 times a week as part > of > the post lung tx regime. > > Bactrim and Sulfatrim are the same thing. Sulfatrim is the generic. > > As to the bowel movements. Antiobiotics kill bacteria. But your stomach, > yours included has good bacteria in it also. This good bacteria helps to > digest and you need it. But antiobiotics do not know the difference between > > good and bad bacteria, so it kills it all. Hence we get the runs and > strange bowel movements when on antiobioitics. Many doctors just say, > " nothing we can do " . But there are several things you can do. Not sure how > > old your child is, but eating yogurt can help, but the plain yogurt is > better. Acidophillus restores the good bacteria to the stomach and > intestines. Yogurt has this. But the acidophillus in yogurt is not really > enough to combat the powerful meds, so taking Megadophilus, or > acidophillus, > in pill form is the way to go. You can ask the pharmacist if they have any. > I > get mine at our Grocery store in the natural food section, as many people > who > are into natural food take this. Most likely it is refreigerated and you > want to get one that says " 2 billion parts " . The higher the parts the > better. Yogurt is very low in this. I know when I would be in the > hospital > on antiobioitic and just running to the bathroom, they would order a yogurt > > for me and think they solved my problem. Need to educate our docs on how > acidophillus works and what form or it we need. Also, I think that sugars, > like in sweetened yogurt can deplete the acidophillus to some degree so > that > is why the yogurt does little to help. Plain yogurt is best and then for > about an hour nothing else sweet is best to do. > > Hope this helps a little. I still do the acidophlillus if I get put on > some > heavy drugs and never have a problem anymore. > > Good luck > Joanne > Joanne my youngest is 5. Do they make that acidophlillus in liquid form? Thanks for you help. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 In a message dated 12/23/2002 6:43:57 AM Central Standard Time, luckylungsforjo@... writes: > > Deb, > > Bactrim is very commonly prescribed to those with CF. I think I was on it > for > about 6 years before I got my lungs. I now take it 3 times a week as part > of > the post lung tx regime. > > Bactrim and Sulfatrim are the same thing. Sulfatrim is the generic. > > As to the bowel movements. Antiobiotics kill bacteria. But your stomach, > yours included has good bacteria in it also. This good bacteria helps to > digest and you need it. But antiobiotics do not know the difference between > > good and bad bacteria, so it kills it all. Hence we get the runs and > strange bowel movements when on antiobioitics. Many doctors just say, > " nothing we can do " . But there are several things you can do. Not sure how > > old your child is, but eating yogurt can help, but the plain yogurt is > better. Acidophillus restores the good bacteria to the stomach and > intestines. Yogurt has this. But the acidophillus in yogurt is not really > enough to combat the powerful meds, so taking Megadophilus, or > acidophillus, > in pill form is the way to go. You can ask the pharmacist if they have any. > I > get mine at our Grocery store in the natural food section, as many people > who > are into natural food take this. Most likely it is refreigerated and you > want to get one that says " 2 billion parts " . The higher the parts the > better. Yogurt is very low in this. I know when I would be in the > hospital > on antiobioitic and just running to the bathroom, they would order a yogurt > > for me and think they solved my problem. Need to educate our docs on how > acidophillus works and what form or it we need. Also, I think that sugars, > like in sweetened yogurt can deplete the acidophillus to some degree so > that > is why the yogurt does little to help. Plain yogurt is best and then for > about an hour nothing else sweet is best to do. > > Hope this helps a little. I still do the acidophlillus if I get put on > some > heavy drugs and never have a problem anymore. > > Good luck > Joanne > Joanne my youngest is 5. Do they make that acidophlillus in liquid form? Thanks for you help. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 In a message dated 12/23/2002 6:43:57 AM Central Standard Time, luckylungsforjo@... writes: > > Deb, > > Bactrim is very commonly prescribed to those with CF. I think I was on it > for > about 6 years before I got my lungs. I now take it 3 times a week as part > of > the post lung tx regime. > > Bactrim and Sulfatrim are the same thing. Sulfatrim is the generic. > > As to the bowel movements. Antiobiotics kill bacteria. But your stomach, > yours included has good bacteria in it also. This good bacteria helps to > digest and you need it. But antiobiotics do not know the difference between > > good and bad bacteria, so it kills it all. Hence we get the runs and > strange bowel movements when on antiobioitics. Many doctors just say, > " nothing we can do " . But there are several things you can do. Not sure how > > old your child is, but eating yogurt can help, but the plain yogurt is > better. Acidophillus restores the good bacteria to the stomach and > intestines. Yogurt has this. But the acidophillus in yogurt is not really > enough to combat the powerful meds, so taking Megadophilus, or > acidophillus, > in pill form is the way to go. You can ask the pharmacist if they have any. > I > get mine at our Grocery store in the natural food section, as many people > who > are into natural food take this. Most likely it is refreigerated and you > want to get one that says " 2 billion parts " . The higher the parts the > better. Yogurt is very low in this. I know when I would be in the > hospital > on antiobioitic and just running to the bathroom, they would order a yogurt > > for me and think they solved my problem. Need to educate our docs on how > acidophillus works and what form or it we need. Also, I think that sugars, > like in sweetened yogurt can deplete the acidophillus to some degree so > that > is why the yogurt does little to help. Plain yogurt is best and then for > about an hour nothing else sweet is best to do. > > Hope this helps a little. I still do the acidophlillus if I get put on > some > heavy drugs and never have a problem anymore. > > Good luck > Joanne > Joanne my youngest is 5. Do they make that acidophlillus in liquid form? Thanks for you help. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 In a message dated 12/23/2002 7:15:45 AM Central Standard Time, j.larocque@... writes: > ---My daughter 10 w/cf has been on Bactrim in the past and we have > found that yes it does cause stomach problems and also kills ones > appetite. My daughters pulmonologist confirmed that as well. > Hope that helps. > J. It just seems like she is really tired too. It is really starting to scary me. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 In a message dated 12/23/2002 7:15:45 AM Central Standard Time, j.larocque@... writes: > ---My daughter 10 w/cf has been on Bactrim in the past and we have > found that yes it does cause stomach problems and also kills ones > appetite. My daughters pulmonologist confirmed that as well. > Hope that helps. > J. It just seems like she is really tired too. It is really starting to scary me. Deb A Quote Link to comment Share on other sites More sharing options...
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