Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 I am sorry to say that I decided to sign off the CEDA list for the time being. I have learned so much from all of you. Strength, perseverance, asking for help--these come through so clearly on this list. But having learned all that, I realize that only way I am going to complete my PhD is by drastically reducing distractions. I know of one professor in my field who was able to complete his PhD in 2 years (almost unheard of time frame!), primarily, he said, because because he turned off his email completely. So cheers, all, and I will continue to pray for you. Sincerely, Lenore in Seattle > I forgot to add to my posts regarding this --that congential or > aquired cervical stenosis CAN cause much the same set of > symtpoms as chiari can -- both forms of stenosis can narrow the > csf passageways and cause CSF to back up with higher presure > in the head too . > > It can be difficult to find a neurosurgeon who KNOWS those > internal diameter " normal " measurements of each veratabra > and has true expertise in sorting out congenital issues for > example --again the chiari neurosurgeon guru's often seem the > best choice to diagnosis this . > > Chiari itself that is congenital is OFTEN associated with a > degree of congential spinal stenosis in the cervical vertabrae too > -- there IS need to open the top vertabrae in some instances -but > doing so below the level of c1 can pose integreity issues of > stablity with cervical shifting occuring later -- with an EDS > diagnosis I'd approach this with TRUE caution given the > ligament /tendon issues with EDS and the dura integrity issues > ect . -- AGAIN if this were suspected I " D head for the NY chiari > instutue where the neurosurgeons know this conditon well too > -and know /have some experience with EDS and issues of > neurosurgery /dura grafting ect --it's NOT something to jump into > surgery with lesser experienced neurosurgeons in MY opinion . > > Aquired stenosis can occur with trama - cervical disc's shifting > ect and again that dura ingretiy would pose a special chaallnege > in those with EDS . > > ONE diagnostic clue that the TCI neurosurgeons discovered too > - is on 3d Ct scans in those with EDS the ligament's /tendons > are often VERY enlarged taking up MORE room that normal -- > they develope in this larger way trying to provide /compensate for > the weakness in the tissue and provide stablity to the spinal > collum ect . -- they are spoting this now -and able to SKIP part of > the EDS diagnostic criteria ( still checking finger joints ect though > ) and KNOW at that first glance seeing this enlargement that the > person IS affected by EDS . > > Hmmm -- I'm SURE I'm forgetting some other bits Dr Bolognese > explained in his discussion of the diagnosis for chiari /EDS > jointly --I'll keep adding bits as the come back to my shaky > memory's - LOL . > > > > > > > > To learn more about EDS, visit our website:http://www.ehlersdanlos.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.