Itinerary Update MIKE - Really EVERYONE

[Guest guest]

>>>Now all we have to do is figure out how to clone you so you can be

available in all states of the Union to all the people who need your

services! " <<<

Interesting she would say that Mike.

I was going to wait till you settled down a bit but I will go ahead now and

tell you about my conversation with my GP.

First off, I am sure you have *heard* me speak of him.

He is an osteopath and works with sports medicine and has make it his best

effort to learn as much as he can of the *new* information about EDS so he

is up to date.

So, I had an apt with him on Wednesday.

I told him of your visit, what you did for me and some of the successes that

you wrote about from the conference.

He was honestly more than a bit skeptical about the decreasing of a high

temp but said......

" I totally believe in this! " " Did you know that the school of osteopath

(here in California in Pomona) has been teaching this for 10 - 15 years

now? " I told him I didn't know that. I said that you had been going around

the Country giving treatments to EDS patients but you certainly can't do

that forever and I want to find someone here who can help me. If for

nothing else they can teach me how to do it.

His eyes got really big and bright and he said, " Well, first of all you can

call the school and get a list of the graduates that have the most extensive

training in this. It is covered under your insurance so don't be worried

about that. It is not like PT where you can only have 24 sessions per year.

And then, call the director of the Intern department (he gave me his name)

and tell him that you are my patient. Tell him that I am treating your

total body and that you have EDS. Make sure you say it slow and loud and

often. Try to slip into the conversation Ehlers Danlos Syndrome as often as

you can.

" He is, I am sure, aware that I that I train Interns here in my office and

that I am interested in having you take some of the courses. "

Doctor G. then said to me that he is aware of my limitations and would most

likely only be able to sit thru parts and certainly not all but he said,

" Tell them that you have no intention in ever practicing but that I want you

to learn how to adjust your joints and decrease the joint pain thru energy. "

He said again that I should tell them I have EDS. I was to tell them over

and over and over. He said that perhaps you could be a test patient and

have the sessions free. The worst that could happen with that is that I

would have to drive to Pomona (which is not that far really) but he was sure

they would find a practioner some place near.

Isn't that fantastic!

I wanted to post this because there are So Cal EDSers out there that could

do the same thing. Not take the courses, I think that is a bit of " who you

know " , but call and find a practioner some place near.

Also, if the School of Osteopathic Medicine in Pomona California is teaching

this than you have to think there are other Osteopath schools that are

teaching it too. If you are not in So Cal you could look up your nearest

School of Osteopath and call them asking for a list of graduates that have

been " extensively " (he was clear on that point to use extensively)trained in

energy therapy/healing.

So isn't that interesting and enlightening.

I love my doctor!

Debbi

Itinerary Update

I now have more information ont he meeting in Baltimore. Turns out

there will actually be two. Here is the direct passage I just

received from Dr. Francomano: " We will be meeting at the s

Hopkins Bayview medical campus in Baltimore on August 26, from 9 AM

to 4 PM and at the Kennedy Krieger Institute on August 27. " There is

also a high probability that I will be meeting/treating one of her

EDS patients on the 25th.

I will also share another comment from her email. " It was a great

pleasure to meet you in Buffalo and to have the opportunity to watch

your work with Aase. Now all we have to do is figure out how to

clone you so you can be available in all states of the Union to all

the people who need your services! " Have to admit, that one sure

made my day.

At any rate, we are currently at an RV park on the peninsula

northeast of Green Bay Wisconsin. As soon as I finish checking

emails and posts, we are going to hit the road again. We are going

to drive up and over through northern Wisconsin and Michigan today.

Plans are to be in the southern Michigan area then for the next 2-4

days, exact details not yet determined. I will then be able to

rework the itinerary based on the Baltimore dates and put out

another post with the latest revision.

Given the unreliability of our email, my personal cell phone number

is . I have been leaving it plugged in to the car

charger and turned on the last couple of days and will probably

continue to for the next couple of days. If for any reason it is

turned off, it does have voice mail. Just as info if anybody really

NEEDS to get in touch with me.

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca