Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Yeah I do, but when you answered this e-mail I was heading back to bed. It was only 7 am here and I have to have a few more hours of sleep before I’m up for the day. I get up at 6 am every morning to take meds, and then if I have the clarity to answer a few e-mails I might be able to do that. I usually don’t check my FB until later at night after Steve goes to bed. That’s usually around 11 pm, and then I don’t get to bed before 1 am most nights. I have a schedule that fits my pain med doses at certain times, and I usually can make it for 4 hrs before I have to take my next dose. Sometimes sooner, once in a while later. But if its later I’m in a world of hurt. The amount I take wouldn’t do much for most people, but because of my sensitivities I can’t take higher doses. So I spread 3 a day out over a 24 hr period.Love to you too, Jackie  From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Monday, August 01, 2011 6:44 AMTo: MSersLife Subject: Re: n.........RE: Garden -reply- Ok, thanks for the explanation there, Jackie! Hey, on a separate note, do youhave chat on FB? Cuz if you do, and you're on the 'puter now, we can chat.love you and all my 'buds' here,Kate To: MSersLife Sent: Monday, August 1, 2011 9:37 AMSubject: RE: n.........RE: Garden -reply- Hi Kate,……RSD = Reflex Sympathetic Dystrophy and they changed the name to Complex Regional Pain Syndrome, hmmm n is it Complex or Central? Now my brain is fuzzy….lol… anyhow it’s a dysfunction of the Sympathetic Nervous System. If you google RSD it will explain it better than I could. Hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Monday, August 01, 2011 6:17 AMTo: MSersLife Subject: Re: n.........RE: Garden -reply- Hey, sorry to be dense, but what is/are CRPS/RSD? I guess I should be able to figure it out, but mypoor brain can't fetch the information.love, KateTo: MSersLife Sent: Monday, August 1, 2011 3:18 AMSubject: n.........RE: Garden -reply- Hi n,….i was thinking the same thing about the water. After the pictures I’ve seen of the flooding it couldn’t help but be contaminated. I’d have it tested too. By the way I joined the CRPS/RSD group you are on [saw your name] but I haven’t posted yet. My legs have been in bad shape lately, especially the RSD side [right one]Hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of marion j rojasSent: Sunday, July 31, 2011 11:04 PMTo: MSersLife Subject: Re: Garden -reply- (I do not know your first name) I was sorry to read of your reaction to vegetablesfrom your garden; I am somewhat inclined to think that the flood water that hit yoursoil may well have been contaminated. Is there a way that you can have the soiltested--maybe even taking some of it in a small container with water and having yourdoctor's laboratory test it? I am not aware--despite all the quirks of our MysteriousSymptoms--of MS causing any change in diet as such.Good luck with all this,n Rojas, 74--wMS since age 19, from way out near San FranciscoSubject: GardenTo: MSersLife Date: Sunday, July 31, 2011, 10:11 PM Was so concerned about losing my garden to the flood, now that it is sharing bounty and massive amounts.. I am trying to enjoy cucumbers and tomatoes and getting very ill each time. I have always been able to eat cucumbers and tomatoes. I found a great recipie with vinegar, water, sugar, salt, dill weed and cukes. Tastes great. So I had oh about 1/3 c of cukes. I peeled the cukes and put the syrup in the crockpot since my stove is in storage for the flood and then cukes in crockpot syrup and turned off to marinate and cool.So simple.. didnt seem bad.I got so so sick. AGAIN. Not the first time. Last week same thing, but I had a diff recipie then that had a TB evoo in the recipie. okay.so my question is this:With MS do any of you find that at about 50 do you find you can no longer eat what you used to?I have ibs but it had not bothered me. Now , I thought oh appendix, or gallbladder. the back pain I said oh normal ms stuff. okay. Well the pain after gettin sick is still there by my belly button on the left side of my body... so... I guess I will have to call dr tomarrow and tell him this pain is annoying and what is it. I have been fine and now this..Im so so so sick n tires of being sick n tired.We did find 4 nice new tires this past weekend so we are ready for the flood and ready to head on down to the land for clearing and starting to build the cabin and go off grid. I cannot wait. Solar and wind only! I cannot wait!!! will have zip on util bills, Hopefully can use the wood from the land to build an basically have no bills ahh that would be a blessing!Knowing I got screwed on this house and walking away.. Will try and sell but I gotta do what I gotta do. If the taxes go up I have no choice. On a fixed income and who knows what the cuts in Medicare are going to be now... gotta cut back and go back to the basics.I can and will survive ... not like I am now. but i will! Quote Link to comment Share on other sites More sharing options...
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