Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Boone is only five though .... Sissi Re: need advice > > > > All three, but I'm biased. I love his clocks, and I'd buy them in a > > heartbeat....a Boone clock to replace the boring one I already have, > > prints for my kitchen and bedrooms, and books for Christmas gifts. And > > it's not exploitation. It's a way for Boone to earn money. I thought > > this country loved six year old entrepeneurs? > > > > Maggie > > > > ________________________________________________________________ > > The best thing to hit the internet in years - Juno SpeedBand! > > Surf the web up to FIVE TIMES FASTER! > > Only $14.95/ month - visit www.juno.com to sign up today! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Boone is only five though .... Sissi Re: need advice > > > > All three, but I'm biased. I love his clocks, and I'd buy them in a > > heartbeat....a Boone clock to replace the boring one I already have, > > prints for my kitchen and bedrooms, and books for Christmas gifts. And > > it's not exploitation. It's a way for Boone to earn money. I thought > > this country loved six year old entrepeneurs? > > > > Maggie > > > > ________________________________________________________________ > > The best thing to hit the internet in years - Juno SpeedBand! > > Surf the web up to FIVE TIMES FASTER! > > Only $14.95/ month - visit www.juno.com to sign up today! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Boone is only five though .... Sissi Re: need advice > > > > All three, but I'm biased. I love his clocks, and I'd buy them in a > > heartbeat....a Boone clock to replace the boring one I already have, > > prints for my kitchen and bedrooms, and books for Christmas gifts. And > > it's not exploitation. It's a way for Boone to earn money. I thought > > this country loved six year old entrepeneurs? > > > > Maggie > > > > ________________________________________________________________ > > The best thing to hit the internet in years - Juno SpeedBand! > > Surf the web up to FIVE TIMES FASTER! > > Only $14.95/ month - visit www.juno.com to sign up today! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 I really need to read over my posts before I send them. Sorry for all the errors.. > > They attacked you?? How dare they!! How awful..I, to, would be > > > hesitant to go back. > > > I am so sorry for people's insensitivity. > > > I am mentally kicking them all in the shins. > > > Libby > > > > It wasn't that particular board. It was another one entirely. One > of them > > went into this long story about a woman who " invented " a child with > some > > illness and started raising funds, accepting donations, wrote a > book, all > > sorts of stuff -- only to find out later that the child didn't > exist at all. > > > > The person was accusing me of doing that even though I have never > asked for > > donations or money of any sort whatsoever. So you see, some people > are very > > evil and dishonest so they think everybody else is too. > > > > I tend to stay away from non-autism discussion boards after this > and similar > > experiences. > > > > Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 Sissi Sometimes is in " studies " at local children's hospitals. I only put her in things that there is no risk and that will help someone else's kids. I put all the money into her own savings account. If I were you I would take anything you could be paid for and put it all away for Boone when he's older. That's just me. Hugs I know you will make the right decision. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 So, what is the game plan? Georga Re: need advice > Okay, gang. > > I'm going to do it. > > I'm going to start tonight too. > > Sissi > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 So, what is the game plan? Georga Re: need advice > Okay, gang. > > I'm going to do it. > > I'm going to start tonight too. > > Sissi > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2003 Report Share Posted April 27, 2003 I personally don't feel that you'd be exploiting Boone at all. Every person has something they excel at, that usually becomes their life's work. Consider it an investment in his future. You're not pushing it upon him. Point out it takes a lot of work and resources to raise an Autie. Just because he's gifted too, why stifle it just because he's autistic? > I am getting requests to sell Boone's artwork. > > I have also considered attempting to write a book of his clock drawings. > > I have also had requests from people who want to buy his clocks. > > However, I have been accused of " exploiting " Boone simply by having a website for his artwork (never mind the fact that he loves his website and insists that new artwork is added all the time). > > I know I have asked this before, but it is getting to the point that I am being asked quite often and I feel like I should do something soon. > > What would be the best thing to do? > > Prints? A book? Actual clocks? > > All of the above? > > Sissi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Oh I agree as far any an amount that is substantial. It has to be in a trust set up for the child to protect his state supports should something happen to the parents, then the state has to pay disability benefits or whatever. Sue Re: need advice > > > Sissi > > Sometimes is in " studies " at local children's hospitals. I only put > her in things that there is no risk and that will help someone else's kids. > I put all the money into her own savings account. > > If I were you I would take anything you could be paid for and put it all > away > for Boone when he's older. That's just me. > > Hugs I know you will make the right decision. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Oh I agree as far any an amount that is substantial. It has to be in a trust set up for the child to protect his state supports should something happen to the parents, then the state has to pay disability benefits or whatever. Sue Re: need advice > > > Sissi > > Sometimes is in " studies " at local children's hospitals. I only put > her in things that there is no risk and that will help someone else's kids. > I put all the money into her own savings account. > > If I were you I would take anything you could be paid for and put it all > away > for Boone when he's older. That's just me. > > Hugs I know you will make the right decision. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Gail,What does your doctor say. He doesn't whant you to take tylenol, so what does he recommend? There are lots of different pain treatments. Ibuprofen, Aspirin, Acupuncture, & Others, that all work to different degrees in different people. You (and your doctor) should weight the long and short term pros and cons of each one. Ian Could someone help me i have psc had it for 23yrs im doing well at this time. I fell and broke my elbow(left) and right wrist in sep. My doctor doent want me to take tylenol so what do i take ?????? I do still have some pain. Gail in ma -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Gail, I agree with Ian that you and your Dr should have a discussion about the pros and cons. I’ll share with you what my GI told me – even in patients with cirrhosis he would allow a patient to take Tylenol for short periods of time but not to exceed 2 grams per day. This is half of the “normal” daily maximum dose. At the same time he told me that I should be more cautious and not pop them with minor aches I could live with. Rick From: [mailto: ] On Behalf Of gail leedberg Sent: Wednesday, February 25, 2009 8:51 AM To: Subject: need advice Could someone help me i have psc had it for 23yrs im doing well at this time. I fell and broke my elbow(left) and right wrist in sep. My doctor doent want me to take tylenol so what do i take ?????? I do still have some pain. Gail in ma .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Gail, My Hep said exactly the same thing that Rick’s GI said. He also added that I should not take NSAIDs with an inflammatory disease. Joe From: [mailto: ] On Behalf Of Rick Kamp Sent: Wednesday, February 25, 2009 6:07 PM To: Subject: RE: need advice Gail, I agree with Ian that you and your Dr should have a discussion about the pros and cons. I’ll share with you what my GI told me – even in patients with cirrhosis he would allow a patient to take Tylenol for short periods of time but not to exceed 2 grams per day. This is half of the “normal” daily maximum dose. At the same time he told me that I should be more cautious and not pop them with minor aches I could live with. Rick _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Gail, My Hep said exactly the same thing that Rick’s GI said. He also added that I should not take NSAIDs with an inflammatory disease. Joe From: [mailto: ] On Behalf Of Rick Kamp Sent: Wednesday, February 25, 2009 6:07 PM To: Subject: RE: need advice Gail, I agree with Ian that you and your Dr should have a discussion about the pros and cons. I’ll share with you what my GI told me – even in patients with cirrhosis he would allow a patient to take Tylenol for short periods of time but not to exceed 2 grams per day. This is half of the “normal” daily maximum dose. At the same time he told me that I should be more cautious and not pop them with minor aches I could live with. Rick _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Gail, My Hep said exactly the same thing that Rick’s GI said. He also added that I should not take NSAIDs with an inflammatory disease. Joe From: [mailto: ] On Behalf Of Rick Kamp Sent: Wednesday, February 25, 2009 6:07 PM To: Subject: RE: need advice Gail, I agree with Ian that you and your Dr should have a discussion about the pros and cons. I’ll share with you what my GI told me – even in patients with cirrhosis he would allow a patient to take Tylenol for short periods of time but not to exceed 2 grams per day. This is half of the “normal” daily maximum dose. At the same time he told me that I should be more cautious and not pop them with minor aches I could live with. Rick _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 NSAIDs should not be taken with diuretics either. My doctors let me take 8-9 Norco a day. they don't seem to be too concerned, but then I have severe pain issues. Cheryl ID RE: need advice > > > > Gail, > > > > I agree with Ian that you and your Dr should have a discussion about the > pros and cons. I'll share with you what my GI told me - even in patients > with cirrhosis he would allow a patient to take Tylenol for short periods of > time but not to exceed 2 grams per day. This is half of the " normal " daily > maximum dose. At the same time he told me that I should be more cautious > and not pop them with minor aches I could live with. > > > > Rick > > > > > > > > _,_._,___ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 NSAIDs should not be taken with diuretics either. My doctors let me take 8-9 Norco a day. they don't seem to be too concerned, but then I have severe pain issues. Cheryl ID RE: need advice > > > > Gail, > > > > I agree with Ian that you and your Dr should have a discussion about the > pros and cons. I'll share with you what my GI told me - even in patients > with cirrhosis he would allow a patient to take Tylenol for short periods of > time but not to exceed 2 grams per day. This is half of the " normal " daily > maximum dose. At the same time he told me that I should be more cautious > and not pop them with minor aches I could live with. > > > > Rick > > > > > > > > _,_._,___ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 My GI said Tylenol was fine in small doses. He only let me have the codeine version during my stays at the hospital. The reason being the extra stomach discomfort from the codeine. What do you guys think about Low dose Aspirin 81mg one pill a day? Thanks > > My Hep said exactly the same thing that Rick's GI said. He also added that > > I should not take NSAIDs with an inflammatory disease. > > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 My GI said Tylenol was fine in small doses. He only let me have the codeine version during my stays at the hospital. The reason being the extra stomach discomfort from the codeine. What do you guys think about Low dose Aspirin 81mg one pill a day? Thanks > > My Hep said exactly the same thing that Rick's GI said. He also added that > > I should not take NSAIDs with an inflammatory disease. > > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 My GI said Tylenol was fine in small doses. He only let me have the codeine version during my stays at the hospital. The reason being the extra stomach discomfort from the codeine. What do you guys think about Low dose Aspirin 81mg one pill a day? Thanks > > My Hep said exactly the same thing that Rick's GI said. He also added that > > I should not take NSAIDs with an inflammatory disease. > > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 - I would ask your doctor for medication advice. Watching emails for the past 3 years, there are divergent opinions - for example, some PSC'ers are advised that small doses of Tylenol are OK (my son is similar to you, with the OK of one Tylenol twice a day being fine) and his GI is very opposed to use of NSAIDs (due to risk of GI issues from UC). Other PSC'ers doctors have been OK with NSAIDs are less comfortable with Tylenol. Both acetaminophen and non-steroidals are metabolized by the liver and kidney, thus given an individual's specific case, again, I'd want your doctor to guide you. ASA is hard on GI system, with increased risk of bleeding, thus I would be concerned if any UC/Crohn's. Joanne H (, Ca) -----Original Message-----From: [mailto: ]On Behalf Of White99Sent: Saturday, April 04, 2009 5:34 PMTo: Subject: Re: need advice My GI said Tylenol was fine in small doses. He only let me have the codeine version during my stays at the hospital. The reason being the extra stomach discomfort from the codeine.What do you guys think about Low dose Aspirin 81mg one pill a day?Thanks> > My Hep said exactly the same thing that Rick's GI said. He also added that> > I should not take NSAIDs with an inflammatory disease.> > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 - I would ask your doctor for medication advice. Watching emails for the past 3 years, there are divergent opinions - for example, some PSC'ers are advised that small doses of Tylenol are OK (my son is similar to you, with the OK of one Tylenol twice a day being fine) and his GI is very opposed to use of NSAIDs (due to risk of GI issues from UC). Other PSC'ers doctors have been OK with NSAIDs are less comfortable with Tylenol. Both acetaminophen and non-steroidals are metabolized by the liver and kidney, thus given an individual's specific case, again, I'd want your doctor to guide you. ASA is hard on GI system, with increased risk of bleeding, thus I would be concerned if any UC/Crohn's. Joanne H (, Ca) -----Original Message-----From: [mailto: ]On Behalf Of White99Sent: Saturday, April 04, 2009 5:34 PMTo: Subject: Re: need advice My GI said Tylenol was fine in small doses. He only let me have the codeine version during my stays at the hospital. The reason being the extra stomach discomfort from the codeine.What do you guys think about Low dose Aspirin 81mg one pill a day?Thanks> > My Hep said exactly the same thing that Rick's GI said. He also added that> > I should not take NSAIDs with an inflammatory disease.> > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 - I would ask your doctor for medication advice. Watching emails for the past 3 years, there are divergent opinions - for example, some PSC'ers are advised that small doses of Tylenol are OK (my son is similar to you, with the OK of one Tylenol twice a day being fine) and his GI is very opposed to use of NSAIDs (due to risk of GI issues from UC). Other PSC'ers doctors have been OK with NSAIDs are less comfortable with Tylenol. Both acetaminophen and non-steroidals are metabolized by the liver and kidney, thus given an individual's specific case, again, I'd want your doctor to guide you. ASA is hard on GI system, with increased risk of bleeding, thus I would be concerned if any UC/Crohn's. Joanne H (, Ca) -----Original Message-----From: [mailto: ]On Behalf Of White99Sent: Saturday, April 04, 2009 5:34 PMTo: Subject: Re: need advice My GI said Tylenol was fine in small doses. He only let me have the codeine version during my stays at the hospital. The reason being the extra stomach discomfort from the codeine.What do you guys think about Low dose Aspirin 81mg one pill a day?Thanks> > My Hep said exactly the same thing that Rick's GI said. He also added that> > I should not take NSAIDs with an inflammatory disease.> > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Part of what medications we take depends not only on our livers but on what other meds we take. If we are on diuretics then all NSAIDs are out of the question. I used to sneak some baby aspirin to give a little boost to my pain meds, then I found out that it would negate the effect of diuretics. It's very important to have a good relationship with your pharmacist. I take Norco 325/10 tylenol/codeine. Hope you find something that can help you. I HATE pain. take care, Cheryl Id PDC/UC/RPC/new undx condition w/ kidneys > > What do you guys think about Low dose Aspirin 81mg one pill a day? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Part of what medications we take depends not only on our livers but on what other meds we take. If we are on diuretics then all NSAIDs are out of the question. I used to sneak some baby aspirin to give a little boost to my pain meds, then I found out that it would negate the effect of diuretics. It's very important to have a good relationship with your pharmacist. I take Norco 325/10 tylenol/codeine. Hope you find something that can help you. I HATE pain. take care, Cheryl Id PDC/UC/RPC/new undx condition w/ kidneys > > What do you guys think about Low dose Aspirin 81mg one pill a day? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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