Wanted to share some good news!

[Guest guest]

Just wanted to share with my CEDA family that rarest of things these

days - some good news!

I hadn't been looking forward to today as after a long, painful

sleepless night the idea of a dentist appt and PT session seemed

like pure torture - but I have been very pleasantly surprised!

Firstly my new dentist is a lovely, young guy with a humour to rival

that of my OS Mac and best of all....he has learned all about

connective tissue disorders! I was shell shocked when he knew of

EDS/Marfan and just understood the situation. He is automatically

treating me with care and taking all the necessary precautions. He's

even contacting my cardiologists to see if I require antibiotic

cover before he repairs my tooth fracture and is going to use a

special extra strength numbing agent combination because of my poor

reaction to normal locals. He's an absolute gem and a definite

keeper - seems I got lucky with a medical guy for a change!! Yay!!

The second bit of good news today came form PT - I have been

discharged from formal therapy as I've made such brilliant progress

and worked so hard! I can now continue my PT home, but I have

reached maximum levels of mobility and strength I will recover

following the restructuring Mac has performed internally, and

without any sign of instability so far. I am thrilled with how good

a job Mac has done and my therapist is thrilled at how hard I've

work on my rehab - so I'd say that our combined efforts have

produced the results this time. It is going to be so great having

the PT report as successful rehab when I see Mac next week - he will

be so happy! I am just so pleased not only for having a stable

shoulder at the moment, but also for Mac as he took a huge risk

performing such risky and ad-hoc surgery on me. I owe him big time

for this. We both know that this wont last and I will eventually

need more surgery when this begins failing again, but with his

courage and ingenuity Mac has hopefully given me a few more years

before facing the very drastic bony reconstruction options. He may

be an arrogant, brusque Orthopod to many people, but he really is a

hero to me :-)

Anyway, just wanted to share some good news for a change as I'm sure

you are all sick and tired of hearing of each disaster I seem to

lurch from week by week! I'm off to try and get some sleep before my

helium filled neighbours brat starts squealing again as I have

another early start for my 8:30am wrist MRI, then cardiac monitor

fitting tomorrow. Take care everyone and know that I am thinking of

you all.

Love and hugs.....Jo

xxx

" Your attitude determines your altitude in life "