RE: for Lenore From Bernie- was severe spinning etc

May 17, 2004

Hi Lenore:

Sorry for my lateness in replying but Yahoo in its strange machinations

turned off my messages to my e-mail address and I almost never use the

yahoo groups site plus I seem to have a major learning disability re

using this computer with any competence......more frustrating than

Meaghan's illness itself, and am hoping that by just reading the posts I

will get some clarity, however have not seen this problem discussed by

others.

Besides a large meal being a trigger for these episodes, the other two

triggers are menstruation and when Meaghan is fighting a cold or virus.

For the past week I have ensured that Meaghan take 1 milk of Magnesia

tablet each evening to reduce the constipation and it seemed to have

helped in so far as she did not have an episode Sun. night after

consuming meat and larger amt. of food plus having nausea symptoms. She

did have a severe night sweat tho.

Also, someone suggested they used digestive enzymes and she has

willingly been taking them with meals, in fact she asks for the capsule.

Knowing Meaghan, when she actually asks for a specific med at mealtime,

then she is experiencing some improvement in her digestion and relief of

that way, way too full feeling

I am wondering what others have found effective for constipation? She

likes to eat nuts, cashews particularly to get extra salt and some

protein in her diet. It really really seems to be meat that is the big

trigger as after consuming a couple of mouthfuls she can't bear to eat

any more of it. Even as a baby she would not eat meat baby

food......but doctors just don't get it that it makes the kid sick

unless the kid has projectile vomiting.

I will keep observing for possible food allergy triggers. We have an

app't with a geneticist on June 2 and I am hopeful her experience will

be helpful as the severe night sweats have been life long thing we have

no answer for.

Bernie, Canada

for bernadette - was severe spinning etc

Hi Bernie,

I am no expert or have experience with these severe symptoms. However,

your daughter sounds so miserable I just had to respond.

I have read a lot about food allergies because I have some. I wonder if

getting checked out for food allergies might be an option to

investigate. The reactions you describe as being directly attributable

to food intake is one clue--the body is rejecting something. Another is

the digestion problem--undigested food, heartburn, constipation. These

can be signs of severe food allergies, since the body can lose the

ability to properly process food or various reasons if a food allergy

is severe and longstanding, One of the results is also an inability to

absorb sufficient minerals and vitamins, including iron. A severe food

allergy, undetected, can really mess up the system. A really good

allergist might be of some use, though from what I've read, most people

discover the cause on their own, with the help of others who have had

similar experiences, or with the help of alternative healers. It seems

to require some careful detecting.

Lenore

in Seattle

> Has anyone had these and what was the cause and or treatment. We

can't

> seem to figure out what would be effective treatment.

>

> Approximately once of twice a month, when my 17 yr old eats a larger

> heavy protein, or fatty meal she will wake in the night with severe,

> severe spinning dizziness. When little (7 or 8) she would describe

this

> as being in a tornado. Each time, she is sweating profusely and

> pyjamas

> are wet, yes wet, had to be sweating long before waking.. She is

pale,

> pale, pale and sometimes gets dusky, unable to focus eyes due to

> dizziness. She has extreme, extreme nausea, is shaking and can't bear

> to be touched, says even her skin is crawling. She is extremely

upset.

> Sometimes, she will throw up sour smelling partially or undigested

> food.

> I have learned to treat the episode by giving her gravol 50 mgm po

> before she throws up or after, if unable to swallow it soon enough.

It

> is very difficult for her to make herself swallow the gravol and water

> with so much nausea. The other thing that helps is domperidone 10 mgm

> which I usually get her to take before the gravol. She has

domperidone

> 10 mgm prn up to 4 times per day ordered. If she has any nausea after

> an

> evening meal I will get her to take domperidone then, and often before

> bed in an effort to prevent occurrences which are so frightening to us

> both and so horrible for her to endure. The episode usually lasts 10

> to

> 20 minutes and she is totally exhausted afterwards, falling asleep in

> total exhaustion although she is too frightened to return to own bed.

> Often, her muscles in arms and legs and neck will be achy, stiff the

> next day.

>

> She gets full very quickly at meals and eats small or tiny amts.at

> all

> meals. Problem is she seems to be eating less and less all the time

> and

> few vegetables and almost no red meat, or any meat for that matter.

Hg.

> is borderline. She used to like salmon, but now the odour of it

causes

> nausea. I know her protein intake is inadequate but protein food is a

> major trigger for nausea or turning her off a meal entirely, but

> particularly triggers these nighttime episodes. The other

contributing

> trigger is a more physically active day...say if we took her to the

> swimming pool that day and she came home hungry and ate more than

usual

> for her. Right now she lives on Mr. Noodle, sometimes made into egg

> drop soup, or Kraft dinner with extra Cheese Whiz in it, the odd half

> banana, half peanut butter sandwich.

>

> On weekends, when she does not need to focus and take LA Dexedrine

that

> totally kills her appetite, she can eat bacon and eggs plus a better

> dinner. These episodes occur almost entirely on weekends with larger

> food intake....also 2nd day of her period, or when she has a virus.

> Unfortunately, snack foods like salty pop corn, potato chips and

> cheesies are fairly well tolerated but perhaps it is the high salt

> content that allows for digestion of these foods in view of her Low BP

> and Orthostatic Intolerance. On 5 occaisons she has had episodes

while

> awake and up that resulted very quickly in vomiting, almost projectile

> in nature. She also has some heartburn, usually experienced on waking

> in the morning and she has always been a constipated kid from infancy.

> My sister was amazed I never had to deal with any gooey, messy diapers

> and the leaking down the leg, not once.

> It seems to me like food is staying in the stomach too long, not

> getting

> out of it, or not being moved along through the bowel adequately. Has

> no

> loose B.M.'s or wind.

>

> Doctors thought that she could be having sleep apnea and she just had

a

> sleep study indicating no apnea but restless leg syndrome which we

have

> both known for years. She also has some deep sleep with lots of

> dreaming (rem sleep)...so sleep apnea is not the problem. I was

> tempted

> to hold her Dexedrine and take her for Chinese to trigger a night

> episode during the study, but episodes are so horrible that even I,

> tough mother that I have had to become could not bring myself to do

> this

> to her. Might have been better to have forced myself to do so,

> however.

>

> Mike, do you have any polarity or acupressure methods that I could try

> and how often does one have to do them to get continuous results? If

> anyone has had similar a pattern, and investigation that yielded

> answers

> plus effective treatment it would be so great to hear. Sorry for the

> length, but I felt best to provide the full picture as she had a

> painful

> rigid untouchable abdomen with daytime episode last Sun. Rigid,

> painful

> abdomen is new aspect but resolved after 40 min. with domperidone and

> when nausea and dizziness subsided.

> Thanks in advance for all suggestions and similar experiences.

> Bernie

>

May 17, 2004

> I am wondering what others have found effective for constipation?

She

> likes to eat nuts, cashews particularly to get extra salt and some

> protein in her diet. It really really seems to be meat that is the

big

> trigger as after consuming a couple of mouthfuls she can't bear to

eat

> any more of it.

Hi Bernie,

Has she been diagnosed with IBS or Diverticulitis?? It sounds like

one of those to me - just my opinion.

I had a HUGE problem with constipation. My doctor put me on Miralax

powder, and it has been a Godsend! I can't even take it daily now,

as I would have the opposite effect; but when I first began it, it

helped tremendously. I also take a fairly new drug out for

IBS/constipation, which is Zelnorm. I take one in the morning and

one at night. Then when necessary, I use the Miralax. I also take 6

stool softeners a day and an herb (Colon Cleanse) twice a day. As

you can tell, it's quite a problem for me.

As far as sweats and such, when I get the cramps associated with IBS,

I can get very light headed and sweaty along with nausea. I have a

medication (Hyoscamine Suf.) that I place under my tongue to relieve

the cramping.

I hope this helps. You can also reach me privately if necessary,

just let me know!

Love Lana

May 17, 2004

> I am wondering what others have found effective for constipation?

She

> likes to eat nuts, cashews particularly to get extra salt and some

> protein in her diet. It really really seems to be meat that is the

big

> trigger as after consuming a couple of mouthfuls she can't bear to

eat

> any more of it.

Hi Bernie,

Has she been diagnosed with IBS or Diverticulitis?? It sounds like

one of those to me - just my opinion.

I had a HUGE problem with constipation. My doctor put me on Miralax

powder, and it has been a Godsend! I can't even take it daily now,

as I would have the opposite effect; but when I first began it, it

helped tremendously. I also take a fairly new drug out for

IBS/constipation, which is Zelnorm. I take one in the morning and

one at night. Then when necessary, I use the Miralax. I also take 6

stool softeners a day and an herb (Colon Cleanse) twice a day. As

you can tell, it's quite a problem for me.

As far as sweats and such, when I get the cramps associated with IBS,

I can get very light headed and sweaty along with nausea. I have a

medication (Hyoscamine Suf.) that I place under my tongue to relieve

the cramping.

I hope this helps. You can also reach me privately if necessary,

just let me know!

Love Lana

May 17, 2004

> I am wondering what others have found effective for constipation?

She

> likes to eat nuts, cashews particularly to get extra salt and some

> protein in her diet. It really really seems to be meat that is the

big

> trigger as after consuming a couple of mouthfuls she can't bear to

eat

> any more of it.

Hi Bernie,

Has she been diagnosed with IBS or Diverticulitis?? It sounds like

one of those to me - just my opinion.

I had a HUGE problem with constipation. My doctor put me on Miralax

powder, and it has been a Godsend! I can't even take it daily now,

as I would have the opposite effect; but when I first began it, it

helped tremendously. I also take a fairly new drug out for

IBS/constipation, which is Zelnorm. I take one in the morning and

one at night. Then when necessary, I use the Miralax. I also take 6

stool softeners a day and an herb (Colon Cleanse) twice a day. As

you can tell, it's quite a problem for me.

As far as sweats and such, when I get the cramps associated with IBS,

I can get very light headed and sweaty along with nausea. I have a

medication (Hyoscamine Suf.) that I place under my tongue to relieve

the cramping.

I hope this helps. You can also reach me privately if necessary,

just let me know!

Love Lana

May 17, 2004

Just a note from one member stating what they use- ( me )

I have colitis/ulcers and often have constipation-

I use sugar free metamucil or the generic version, ( a lot cheaper) at Walmart-

If its not sugar free, it doesn't work for me and ends up so gobby mixed with

water, it makes me throw up-

So I definitely make sure its Sugar Free- and normally I get an orange flavored

one. Comes in a big bottle and use only 1 tsp per glass ( the generic sugar

free one ) - so lasts a long time and works great - for me- but we are all

differen't so hard to tell what will wofk for whom until tried by whomever.

Good luck , will keep in my prayers. Love and Hugs- TJ