Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 Cindy - feel free to vent any time!! Occasionally that is the best blessing we can get. I do understand that your son needs social more than school right now, and I guess I didn't make that clear in my previous post. Most homeschoolers understand the need for socialization - it often doesn't just happen for us - we have to work at it - albiet most of us don't have the severe problems that Dylan does. When I said that many who don't fit in school homeschool - I meant they don't fit in socially - often due to illness - sometimes debilitating illness. I personally know boys about Dylan's age that don't enjoy going to the movies and the mall - aren't into sports or all the usual things. For example - one boy I know spends hours playing computer games and programing his computer - another spends hours playing chess. My brothers favorite thing to do at Dylan's age was to hang out with one or two friends talking about guns (a redneck farmer he is). I know yet another boy who is now in his mid twenties and is a computer geek (I say with respect). He was very ill in his teens - and I mean very ill - he is doing better now - but still not like most other guys his age - and I know that he would understand and depending on personallity would be your son's friend in spite of his illness. High school sports and prom, etc aren't a required rite of the teenage years - missing those things maybe ok if you can find other things - even small things to replace them. If your son isn't up to visits because of the pain - there is always online gaming, email, etc. If your son truely wants and needs socialization you have to keep trying. Even a little is better than none. And one place to look is a homeschool group - not that you would even join the group - just make a connection, maybe a friend or two. Now I just have to say regarding your son's illness - I am no expert, believe me, but it seems like more than just EDS. Is it possible that there is something else going on but the doctors just don't see it and blame it on EDS? I believe that happens a lot. What about going to a doctor that knows nothing about EDS and seeing what he/she can find. Maybe a doctor who practices integrative medicine - who thinks outside the box. I'm sure you've had tons of advice and I hesitate to give you the advice I just did - but I just don't want you to give up and accept that this is just EDS and there is nothing that can be done - just pain meds and more pain meds that don't always work and have such horrid side affects. Maybe there is another answer out there - you MUST keep looking and never give up. My thoughts, prayers and hopes are with you tonight! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Don't worry, Cindy, we'll bring that mamma cat out in no time at the conference!! We're going to find an answer!!!! Love Lana 0 :-) I need to get strong again. Thanks for your suggestions and concerns. I'll find the mamma cat in me again. Love, Cindylouwho To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Don't worry, Cindy, we'll bring that mamma cat out in no time at the conference!! We're going to find an answer!!!! Love Lana 0 :-) I need to get strong again. Thanks for your suggestions and concerns. I'll find the mamma cat in me again. Love, Cindylouwho To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
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