Where's the support for Cindy C?

August 19, 2004

Indeed sending prayers & healing thoughts to them, though I didn't know

flooding everyone's in boxes replying to the list was required. I'm sure those

she

knows & vice versa are replying directly to her...but as a newbie, praying

for her & Dylan felt most appropriate to me. Will keep reading to see what they

discover, and hope the news will be good.

Liza

August 20, 2004

Since when did prayer become a public issue? I choose to do mine privately,

and I'd appreciate not being told privacy is neglectful.

In a message dated 8/19/04 5:52:11 PM, ceda writes:

> Where's the support for Cindy C?

>

August 20, 2004

: Thanks, that is what I thought but did not recall any

discussion of choking issues by others.

Bernie

Re: Where's the support for Cindy C?

Hi bernie,

It causes me to choke on my food all the time. There's not a lot i can

eat. Normally when you start to choke on something your gag reflex kicks

in and helps you to cough it back up. My swallowing issues improved

after my fusion but then got much much worse. I've been vomiting for

the last 6 weeks. Either due to high icp or the cervical instability.

We can't get anything to control it. I personally choke on my saliva

all the time too because i don't have the natural response to swallow.

I'm not sure if that's something to look for with no gag reflex or not.

It's just my experience.

RE: Where's the support for Cindy C?

> :

> How does the no gag reflex affect you and what issues do you have to

> be careful about. Does it mean you throw up very easily....or the

> opposite? Since NiH has told Cindy it is frequent with Heds, What

> would a parent notice?

> Bernie

>

August 20, 2004