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Do tell: Joy

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Name: Joy Sedgley

Country: USA (ville, FL - a couple hours north of Walt

Disney World)

Age: 39 and slowly creeping upward

Type of EDS: probably hypermobility, poss. classical

Occupation: stay at home mother

Volunteering/Hobbies: occasionally volunteer at the elementary

school of my daughter , who is 8 & in 3rd grade. I like to

read as much as I am able!

Current issues/stressors: mainly left shoulderblade pain due to

muscle tear and nerve problem in addition to my normal challenges.

And I had to euthanize my 14 yr old cat, Roosevelt last month.

Vet said he developed fast growing tumors - he looked as though he

had swallowed a cantaloupe and was miserable. We weathered a lot

together through all those years and he loved my girls.

Current joys/announcements: finding that the pain dr is well versed

in connective tissue problems. She knows much about EDS & Marfan &

seems to think she truly can help. Aside from that I have two great

daughters, (8) and Anne (2 1/2), and an equally great, patient

and loving husband, (32 - wink wink). We have a new 5 month old

dog, Cleo who is either a joy or a stressor, depending on the day!

This is a little of my world!

Joy

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