Kate.....RE: High pain days

[Guest guest]

Hi Kate,.just knowing that you and the others understand helps me be able to get thru my day. The pain isn’t as intense as it was when I first posted this, but last night I was feeling a little puny, and my blood sugars were high. But we took it again this morning and it was down, so I probably had too much carbs yesterday, plus stress can cause high readings too. Seems like I’m never too far from some drama event. Nothing high this time, just worried about my daughter and grandson. Her hubby is so mean to her and as cute as Doodles is, he is a handful. They stopped by here yesterday morning on their way up to Whidbey Island, [a 5 hour trip] for Tina’s 20th school reunion, and when she called last night she said he [doodles aka, Christian] didn’t do very well on the ride. First really long trip he’s been on, and his dad has road rage, so I can imagine what type of driving he was doing. I just hope he [her hubby] can enjoy the beauty of the Island, and not decide he wants to come home because he can’t stand her friends. She has all her friends she left behind when we moved, and never really connected with any girlfriends down here like she had there. So this was a really big deal for Tina, and I’m just afraid he will spoil it for her. He can’t seem to take the attention off of him, so I’m just waiting for that call saying they are coming back early. I know I shouldn’t worry so much about stuff like this, but when my children hurt I hurt. L Anyhooo, yes taking a nice foo foo bath ALWAYS relaxed me, it was my stress reliever. I think I am going to push for one of those walk in baths. Even if we have to make payments. Its getting to the point where I have to do something about this dry skin problem. My skin has never been like this and I think its because I always took oil and herbal baths. Its weird because my skin color was always olive and when growing up I tanned, never burned, and never had dry skin. But after I had my kids my skin changed. Dang kids……lol… ;-)I don’t think its psoriasis, but I do have scalp patches that could be, or its just seborrhea dermatitis. I really need to see a dermatologist. Thanks for the offer of the Eucerin cream. I can even get my Dr. to prescribe it and then my HSA card would pay for it. Steve tries to be as supportive as well as he can. He has his own high pain to contend to and its all he can do to get thru the day. So I try to keep my problems at a minimum when I share with him. I have to keep him well because he’s the bread winner, and so my energy goes in to making sure he doesn’t overdo. Yes I have been having more depression, but I listen to a wonderful Christian music station and it really helps me. JThank you for caring.  Love and hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Tuesday, August 09, 2011 7:17 AMTo: MSersLife Subject: Re: High pain days Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say?I think that just stinks that you have so much pain you can't even lesirely take a shower or bath!My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into.Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve!I love you,Kate To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie