Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Due to the findings at NIH, Dylan needs to see some specialists. For the C7 spine laxity, and bulging disk, and the L shoulder with reduced reflex from the cervical or shoulder joint, plus the broken spinus process at L3 right over the nerve that runs to his R knee pain, Does he see a Neurologist or Neurosurgeon? The primary today was no help. He doesn't understand all this and doesn't want to. So I can ask for what ever Doc and tests I want. I was very upset with him today for his response to the problems found. That's a whole other story. Dylan's EKG today still showed him in Bradycardia still,(Two weeks now that I know of) which no-one is taking seriously. His HR during that 1 minute test was 46. He is not a trained athlete, he is a child that has laid in bed for two years. Drives me crazy! My gut tells me this is a problem. A big problem. We got back late from the Doc's so, Monday I'll call a cardiologist. I can only find one Dr in Michigan that treats autonomic dysfunction but I don't know if he is a heart Dr. I'll find out Monday. I don't want him to have a pacemaker if the Autonomic dysfunction isn't addressed at the same time. From what I have read, the autonomic dysfunction can cause the bradycardia, and then he'd have a pace maker when the heart was never the problem. This is all getting so darned complicated. I'm afraid if I take him to a regular heart Dr, they'd want to put in the pacemaker. We just have to get to Dr Grubbs!. I am changing insurance to better suit Dylan's needs, but it doesn't start till Oct 1. Till then, I'm stuck with who ever is in my book. How in the heck do you pick a name of a Dr. in a book? More things show up every day. Today he has been dizzy. Yesterday his foot zapped him everytime he put weight on it. Sorry this is getting long, but I'm frustrated. He's 17 and the Dang Doc just isn't helpful with these new problems found. He admitted it was over his head. I like that a Doc can admit that but where do I go from here? I have to start Monday. I know there are nurses in this group, where do I take him? Cindylouwho Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.