Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Welcome Back Cindy L. I can't answer you question about the NIH stuff, we just will start with it next week. But I'm just here to say Hi. We have 3 Cindy's here now there is Cindy H. I believe she is in Wisconsin. I'm Cindy C.I live in Michigan. I changed my name to Cindlouwho because people where always mixing us up. Sometimes we would get each others private email from the group. So now we get to confuse everyone again! Talk to you again soon. Cindylouwho From: Cindy Livingston To: ceda Sent: Tuesday, August 10, 2004 10:19 AM Subject: Re: NIH and treatment When you got started in the new location, did they contact you or did you have to get in touch with them? I was participating in the study at NIH in Bethesda. When they left, I received a letter informing me of their knew location and telling me I would be contacted when they were " up and running " . I never heard anything more about the study from them. Cindy L (I just rejoined the CEDAlist last week.) To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
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