Re: NIH and treatment-new Cindy

[Guest guest]

Hi Cindy ,

Welcome to the group. This is a wonderful , supportive bunch of people. I

have not been very active lately and I want everyone to know that I miss being

able to dothat. I hope to again soon but I know it will be sporatic at best

right now. Both shoulders are acting up along with hips, si and and lower back

and

knees. When it rains, it pours! Some rain is good I've heard but I'm

starting to flood here!

I had been in touch with Dr. Francomano through much of the time that she was

trying toget it up and running. WHen she thought it was done, a year and a

half (approx) she contacted me and I was the first but it was just a very

initial visit and a premature one at that. She moved the study to Bayview from

Hopkins and all the filing and acceptance still wasn't finished.

When she got the go ahead, she did contact me again. I know that lots of

folks are contacting themm though. I'm not sure that they have hired the program

coordinator person yet to field all the inquiries and set things up. Until they

do, one of the fellows working with Clair is handling that for the study.

My advice is to go ahead and contact them. They are rather swamped so it

could be a long wait otherwise. It's the squeaky wheel principle i think.

Good luck.