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good news at last!!!!!!!!!!!!!

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Hello all

I just recieved the best news of all and Lord knows I needed this.....my older

boy does not have VEDS. He does not have the gene mutation that I have and

my younger boy had. My husband & I feel like a huge weight has been lifted.

ALthough I was very emotional when I heard today, I did have thoughts like why

did Danny get it and pass away from it and doesn't have it. (not that I

wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted

to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Betty

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