Re: DOES ANY ONE HAVE SPASMS

[Guest guest]

Jane, Welcome, and these are muscle spasms you are talking about, right? Are you taking

Plaquenil, yet? If not, why not? Anti-malarials like Plaquenil and Quinine can really reduce muscle

cramps and spasms. You might ask your rheumy about that. Also, have they been keeping track

of your electrolytes? Loss of potassium can cause severe muscle cramping such as you describe.

Please keep us posted on your progress, and keep writing to the group, it really helps to alleviate the

frustration and loneliness we all feel sometimes. Loving hugs, MM

[Guest guest]

Jane, Welcome, and these are muscle spasms you are talking about, right? Are you taking

Plaquenil, yet? If not, why not? Anti-malarials like Plaquenil and Quinine can really reduce muscle

cramps and spasms. You might ask your rheumy about that. Also, have they been keeping track

of your electrolytes? Loss of potassium can cause severe muscle cramping such as you describe.

Please keep us posted on your progress, and keep writing to the group, it really helps to alleviate the

frustration and loneliness we all feel sometimes. Loving hugs, MM

[Guest guest]

Hi and welcome to the group/family...

I wanted to quickly answer this as I have alot to try to answer since

I have been out sick.

Yes I have experienced these spasms that feel like charlie horses,

sometimes they last a few minutes sometimes half an hour, a few times

several hours. My team of doctors found that I was low in potassium

during the times I would get these and so they prescribed me

potassium supplements for a certain amount of time. This may be your

situation and it would definetly be something to check into. Have

your blood work done and discuss it with your doctor.

Hope this was of some help to you and good luck. Let us know what the

outcome of it is.

Hugs

Deanna

> I would like to know if any of you have,what the doc's like to call

spasms, in the neck,shoulders,down the arms in the hands and in the

upper back. I think that they feel more like a Charlie's,like i get

in the calf of my legs.

> Sometimes it feels like my bones are going to break,I cant walk,I

cant even talk.My son has to carry me to the bathroom...I just hate

that.he is 16.

> Sometimes they last just a few days,to weeks or even months.I use

to go to the ER but they refuse to treat ME any more.so I just suffer

now.he flexeril don't help when they get that bad.So i just lay in

bed and cry...I just had a bout with them last week,It was not

fun...Thank god they only lasted for 3 days this time...

> I would like to thank you all for the welcomes that you sent,I am

sorry I cant answer all of them all the time.I do read the though...

(SIX FLAGS commercial is on...love it)...have to go for now...best

wishes to all...

>

> Jane

[Guest guest]

Hi and welcome to the group/family...

I wanted to quickly answer this as I have alot to try to answer since

I have been out sick.

Yes I have experienced these spasms that feel like charlie horses,

sometimes they last a few minutes sometimes half an hour, a few times

several hours. My team of doctors found that I was low in potassium

during the times I would get these and so they prescribed me

potassium supplements for a certain amount of time. This may be your

situation and it would definetly be something to check into. Have

your blood work done and discuss it with your doctor.

Hope this was of some help to you and good luck. Let us know what the

outcome of it is.

Hugs

Deanna

> I would like to know if any of you have,what the doc's like to call

spasms, in the neck,shoulders,down the arms in the hands and in the

upper back. I think that they feel more like a Charlie's,like i get

in the calf of my legs.

> Sometimes it feels like my bones are going to break,I cant walk,I

cant even talk.My son has to carry me to the bathroom...I just hate

that.he is 16.

> Sometimes they last just a few days,to weeks or even months.I use

to go to the ER but they refuse to treat ME any more.so I just suffer

now.he flexeril don't help when they get that bad.So i just lay in

bed and cry...I just had a bout with them last week,It was not

fun...Thank god they only lasted for 3 days this time...

> I would like to thank you all for the welcomes that you sent,I am

sorry I cant answer all of them all the time.I do read the though...

(SIX FLAGS commercial is on...love it)...have to go for now...best

wishes to all...

>

> Jane

[Guest guest]

I agree. I still get plenty of spasms, but they are not as intense as they used to be before I started Plaquenil, and they don't last as long.

Mojo

Re: DOES ANY ONE HAVE SPASMS

Jane, Welcome, and these are muscle spasms you are talking about, right? Are you takingPlaquenil, yet? If not, why not? Anti-malarials like Plaquenil and Quinine can really reduce musclecramps and spasms. You might ask your rheumy about that. Also, have they been keeping trackof your electrolytes? Loss of potassium can cause severe muscle cramping such as you describe.Please keep us posted on your progress, and keep writing to the group, it really helps to alleviate thefrustration and loneliness we all feel sometimes. Loving hugs, MM "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

I know I have had the " shakes " for quite some time now. I feel like I

am having seizures. It seems to intensify when I use the muscles (like

using my hand to open a door, eating, or writing). I get REALLY

embarrassed...especially when we go out to eat and I start

shaking...my husband or my son, who is 16 too, has to feed me...I

shake so bad that all the food on my fork or spoon is gone before I

have enough time to get it to my mouth. I feel shaky too inside (that

one's a hard one to explain to doctors). They, some doctors, say it's

a result of Lupus attacking the brain...like Lupus seizures but they

cannot be detected through tests (like for epilepsy, narcolepsy,

etc.). It's funny too when I have those feelings in my legs and I try

to walk. I fall down. I know it's not funny at all but I look at the

bright side of things....cruel people could tease me all the want and

I can handle it but unlike cruel people teasing little children

because of their disabilities I blow up on them. So I'm glad they

tease me. Just like when I used to go to Disneyland and other

amusement parks I kind of envied those " disabled " people because they

got to go to the front of the line...now I think I wish I was able

bodied to stand in line with everyone else and I'd be normal again. I

know how it feels from both sides. Take care.

Blessings,

In California

> I would like to know if any of you have,what the doc's like to call

spasms, in the neck,shoulders,down the arms in the hands and in the

upper back. I think that they feel more like a Charlie's,like i get in

the calf of my legs.

> Sometimes it feels like my bones are going to break,I cant walk,I

cant even talk.My son has to carry me to the bathroom...I just hate

that.he is 16.

> Sometimes they last just a few days,to weeks or even months.I use to

go to the ER but they refuse to treat ME any more.so I just suffer

now.he flexeril don't help when they get that bad.So i just lay in bed

and cry...I just had a bout with them last week,It was not fun...Thank

god they only lasted for 3 days this time...

> I would like to thank you all for the welcomes that you sent,I am

sorry I cant answer all of them all the time.I do read the

though...(SIX FLAGS commercial is on...love it)...have to go for

now...best wishes to all...

>

> Jane

[Guest guest]

I know I have had the " shakes " for quite some time now. I feel like I

am having seizures. It seems to intensify when I use the muscles (like

using my hand to open a door, eating, or writing). I get REALLY

embarrassed...especially when we go out to eat and I start

shaking...my husband or my son, who is 16 too, has to feed me...I

shake so bad that all the food on my fork or spoon is gone before I

have enough time to get it to my mouth. I feel shaky too inside (that

one's a hard one to explain to doctors). They, some doctors, say it's

a result of Lupus attacking the brain...like Lupus seizures but they

cannot be detected through tests (like for epilepsy, narcolepsy,

etc.). It's funny too when I have those feelings in my legs and I try

to walk. I fall down. I know it's not funny at all but I look at the

bright side of things....cruel people could tease me all the want and

I can handle it but unlike cruel people teasing little children

because of their disabilities I blow up on them. So I'm glad they

tease me. Just like when I used to go to Disneyland and other

amusement parks I kind of envied those " disabled " people because they

got to go to the front of the line...now I think I wish I was able

bodied to stand in line with everyone else and I'd be normal again. I

know how it feels from both sides. Take care.

Blessings,

In California

> I would like to know if any of you have,what the doc's like to call

spasms, in the neck,shoulders,down the arms in the hands and in the

upper back. I think that they feel more like a Charlie's,like i get in

the calf of my legs.

> Sometimes it feels like my bones are going to break,I cant walk,I

cant even talk.My son has to carry me to the bathroom...I just hate

that.he is 16.

> Sometimes they last just a few days,to weeks or even months.I use to

go to the ER but they refuse to treat ME any more.so I just suffer

now.he flexeril don't help when they get that bad.So i just lay in bed

and cry...I just had a bout with them last week,It was not fun...Thank

god they only lasted for 3 days this time...

> I would like to thank you all for the welcomes that you sent,I am

sorry I cant answer all of them all the time.I do read the

though...(SIX FLAGS commercial is on...love it)...have to go for

now...best wishes to all...

>

> Jane