Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Hello all, At the symposium a medical school student, Peggy Wang, who attended was interested in seeing if anyone would like to participate in a research project. They worked on a questionnaire on alternative therapies to collect some preliminary data for a possible grant request in the future. I'm enclosing the questionnaire as attachment The purpose of this questionnaire is to gauge interest levels in chronic pain sufferers for alternative therapies and is at this stage, a gathering of preliminary data. They can't tell at this point whether or not (or when) a formal study might be undertaken. They are interested in finding out what treatments, both conventional and alternative, help chronic pain sufferers and this survey might help shape a future study. I hope you will be willing to help them. Please feel free to call the her at or email at nharrierpw@... if you have any questions or if the files don't transfer. Her mailing address is: Peggy Wang 5465 Barlby Dr. Indianapolis, IN 46237 Karyn , RN Founder / Executive Director http://www.pancassociation.org 1- / KarynWms@... PAI Home Office: Indianapolis, Indiana, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 In a message dated 10/30/2002 22:06:21 US Eastern Standard Time, hominid2@... writes: >>>> afraid the questionaire didn't make it. Remember, all attachments are > stripped from the postings. Maybe you can add it to the files database and > people can download it from there. Kimber <<< I knew that. Gheeze. (Hand across the forehead). I'll put it on a text file in the files section.---tomorrow. Karyn , RN Founder / Executive Director http://www.pancassociation.org 1- / KarynWms@... PAI Home Office: Indianapolis, Indiana, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 In a message dated 10/30/2002 22:06:21 US Eastern Standard Time, hominid2@... writes: >>>> afraid the questionaire didn't make it. Remember, all attachments are > stripped from the postings. Maybe you can add it to the files database and > people can download it from there. Kimber <<< I knew that. Gheeze. (Hand across the forehead). I'll put it on a text file in the files section.---tomorrow. Karyn , RN Founder / Executive Director http://www.pancassociation.org 1- / KarynWms@... PAI Home Office: Indianapolis, Indiana, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Karyn, afraid the questionaire didn't make it. Remember, all attachments are stripped from the postings. Maybe you can add it to the files database and people can download it from there. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Karyn, afraid the questionaire didn't make it. Remember, all attachments are stripped from the postings. Maybe you can add it to the files database and people can download it from there. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Karyn, afraid the questionaire didn't make it. Remember, all attachments are stripped from the postings. Maybe you can add it to the files database and people can download it from there. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 had it since a teen, dxed in my 40’s. Dr. asked lots of questions on a questionnaire and took bloodtests. 2 Aralen, Celebrex Sarna From: nursealso Sent: Sunday, June 20, 2004 8:44 AM To: lupies Subject: Re: ?'s and Mojo Here are the questions: 1. How where you tested for lupus and how long between your first symptoms to diagnosis? The first sign I had was in 1997 and the Doctor I worked for(an OB/GYN) looked at a rash I had on my back that wouldn't go away, and told me that it looked like a lupus rash and tested my ANA. It was 1/121 ? I can't remember but I had a bx that came back inconclusive. So, I blew it off until I had another rash or two. Then after a few years or so I started having alot of other sx's. More test, then in May of 2002 I went to Vanderbilt in Nashville, and had another bx that was positive. I was already seeing a Rhumy so he just continued my Plaqunil. 2. What medication are you taking strictly for lupus. I know most of these are not actually " for " lupus, but I need the names of the ones that are given to treat lupus, not the secondary illnesses associated with lupus. Also, please mention what symptoms this medication is for and whether it is helping you or not. The only Lupus medication is Plaqunil 200mg three times a day. So far the only side effect has been increased acne. Not sure if it's from plaqunil or the DHEA that I use for fatigue. 3. Skin lupus: please give me your input on medication used. I use a steriod cream called Clobetasol Propionate 0.05% It helps alot with the rashes. 4. What alternative medicine are you using, for how long and with what result. Not using Mojo, I hope this helps some. I would like to see other responces as well. This could be helpful for all of us. Helen " The LUPIES Store " Come check out our store... http://www.cafepress.com/thelupies " The LUPIES Web Page " http://www.itzarion.com/lupusgroup.html " The LUPIES online photo albums! " Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
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