sometimes i want to scream

[Guest guest]

I just want everyone to know what a relief it is to have found

this group.

I'm 30 and have been " lupified " since Dec. of 95'.All seemed well

up until this year.As of today i've been in n out of hospital 5x

since Feb.

The steroids haven't helped much and i'm at my lowest.My family

have been of little help and sometimes i wonder if they even care at

all.They seem to think since my physical appearance hasn't changed

much(except the rash on arms) i must be fine.Little do they know what

i go through every day just to get out of bed.I'm not one to feel

sorry for myself but a lil help would be nice every once in awhile.

I've had a boyfriend for the past year and he knew of my lupus

when we met,but it seems to taking a toll on our relationship.He's

taken the road of denial and will rarely mention the word Lupus.

I think what i need now is some feedback on how to handle these

situations as they come up.I would appreciate any comments,good or

bad.

Thanx a bunch! Stef