Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Good Night Athena, I hope the meds work soon and you can get sleep. I know, I have this problem too and then I can have weeks that it seems as if sleeping is the only thing I can do. It's afternoon in Holland, stormy weather outside, while I'm informing myself about contracts and taxes stuff. Very boring. It make me sleepy. I hope the pain lessens and you can rest. Sweet dreams. Micha. To: <LUPIES > Sent: Thursday, June 24, 2004 12:17 PM Subject: Cant Sleep > Ugh I hate when I wake up in the middle of the night in pain and > cant fall back to sleep,well it's always comforting to come online > and see everyone post, hope the meds kick in soon and I can get some > rest.. > > Athena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Thanks Micha, its about 6:48 am here and Im up again, I didnt get to sleep to much but i will rest during the day, since im on disbility I don't work anymore..wow Holland that must be awesome to live there. I'm orig from Greece and miss home very much, now being in the states since i was a small child this is home now for me, but i always wonder what it would have been like to grow up longer in Greece. I hope your day goes well..Thanks for the reply.. Athena > Good Night Athena, I hope the meds work soon and you can get sleep. I know, I have this problem too and then I can have weeks that it seems as if sleeping is the only thing I can do. > It's afternoon in Holland, stormy weather outside, while I'm informing myself about contracts and taxes stuff. Very boring. > It make me sleepy. > I hope the pain lessens and you can rest. > Sweet dreams. > Micha. > > From: Athena > To: LUPIES > > Sent: Thursday, June 24, 2004 12:17 PM > Subject: Cant Sleep > > > > Ugh I hate when I wake up in the middle of the night in pain and > > cant fall back to sleep,well it's always comforting to come online > > and see everyone post, hope the meds kick in soon and I can get some > > rest.. > > > > Athena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 HI Micha thanks for the reply, I been in pain for a while now but I am seeing a pain Mang DR and the meds and Injections Im getting seem to be helping some, I been busy with college now and still on disb, I also have Jury duty right now so thats keeping me going as well. I try to stay as busy as I can and rest as often as well, I been learning I can't let this disease get the best of me, sure i have days when I am so weak and tired I can do nothing more they stay in my jammies and curl up and watch TV but thats life with this Disease one day your ok next your a mess!! I don't know what your country looks like you have to send me pictures of it I bet its so Beautiful, stay in touch with me I would love to hear from you soon.. Athena > > Thanks Micha, its about 6:48 am here and Im up again, I didnt get to > > sleep to much but i will rest during the day, since im on disbility > > I don't work anymore..wow Holland that must be awesome to live there. > > I'm orig from Greece and miss home very much, now being in the > > states since i was a small child this is home now for me, but i > > always wonder what it would have been like to grow up longer in > > Greece. I hope your day goes well..Thanks for the reply.. > > > > Athena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hi Athena, I'm glad you have some pain relief. I should start the anti-depressant, which is a pain med. as well, to see if it will help to lift some of my pain. That's nice you keep busy. I hope you study a topic of your interest. I keep busy too, or I am kept busy with bureaucracy. I loose much energy on these phone-calls and than there's not much left for the rest of the day. I had almost been speaking to the city council last week, for my rights as a handicapped person to have transportation, it s just one battle. I do have a lot of these jammies days, for this exhaustion and I don't need to be in a flare for it. The choice may often be, can I wash and dress, or cook a dinner. I loose much my precious energy on asking for an okay to be disabled and than get ill. I don't wonder, but have all those organizations I need to phone to get one thing done, I would go without all or the most, if I wouldn't need any of them so badly. Sorry, I must feel happy for having or about to receive, any help all. Tomorrow I need to talk to my buddy and to tell, the first time I cancelled the appointment, I am not as she said by phone " a bag of salt", yet to tell her what it is to have a flare. I'm about to get a bit messy again. The website I'd had want to send you, is since last week under reconstruction. Perhaps longer. I wasn't so smart to have a look in advance. I can send you a tourist site, but that's like advertising and I like you to have a view in a non-advertising site. So, I thought to translate a poem of mine, to make up for the site under reconstruction. Perhaps you hate poetry and that's alright surely. If you like poetry, you don't know if you will like mine :-)) For a half hour a week, I show such an endurance and the rest of the week, I'm only reactive instead of active. I'll try to give it a go, my freely translation of my own poems, for I think it will give one perspective at the Dutch landscape, so different from 's park, for instance. Btw, Greece won the European football match! I don't like sports on t.v., yet I thought of you when I followed these matches. It was exciting. I was relieved when Holland lost, some quietness around here. My great excitement was before, the OLYMPIC flame was run through our street here. I wished something for us all, for our health. These Olympic games, I know it's ridiculous, yet it feels as a kind of magic, from my childhood. It doesn't happen often, I visit friends. I only have material for court things, and while I think to know jury members may not talk about the cases, I wish you a non-stressful case. Recently, I saw a movie, forget the tittle of the movie and the actor's name, never was good in remembering actors than a few of my interest- the message was not to study while waiting for being in the jury, but it was a sixties movie. Hopefully, things have changed since. I hope this jury duty is not stressful to you and you can rest as much as you can. Micha. Athena wrote:> HI Micha thanks for the reply, I been in pain for a while now but I > am seeing a pain Mang DR and the meds and Injections Im getting seem > to be helping some, I been busy with college now and still on disb, > I also have Jury duty right now so thats keeping me going as well.> I try to stay as busy as I can and rest as often as well, I been > learning I can't let this disease get the best of me, sure i have > days when I am so weak and tired I can do nothing more they stay in > my jammies and curl up and watch TV but thats life with this Disease > one day your ok next your a mess!! I don't know what your country > looks like you have to send me pictures of it I bet its so > Beautiful, stay in touch with me I would love to hear from you soon..> > > Athena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hi Athena, I'm glad you have some pain relief. I should start the anti-depressant, which is a pain med. as well, to see if it will help to lift some of my pain. That's nice you keep busy. I hope you study a topic of your interest. I keep busy too, or I am kept busy with bureaucracy. I loose much energy on these phone-calls and than there's not much left for the rest of the day. I had almost been speaking to the city council last week, for my rights as a handicapped person to have transportation, it s just one battle. I do have a lot of these jammies days, for this exhaustion and I don't need to be in a flare for it. The choice may often be, can I wash and dress, or cook a dinner. I loose much my precious energy on asking for an okay to be disabled and than get ill. I don't wonder, but have all those organizations I need to phone to get one thing done, I would go without all or the most, if I wouldn't need any of them so badly. Sorry, I must feel happy for having or about to receive, any help all. Tomorrow I need to talk to my buddy and to tell, the first time I cancelled the appointment, I am not as she said by phone " a bag of salt", yet to tell her what it is to have a flare. I'm about to get a bit messy again. The website I'd had want to send you, is since last week under reconstruction. Perhaps longer. I wasn't so smart to have a look in advance. I can send you a tourist site, but that's like advertising and I like you to have a view in a non-advertising site. So, I thought to translate a poem of mine, to make up for the site under reconstruction. Perhaps you hate poetry and that's alright surely. If you like poetry, you don't know if you will like mine :-)) For a half hour a week, I show such an endurance and the rest of the week, I'm only reactive instead of active. I'll try to give it a go, my freely translation of my own poems, for I think it will give one perspective at the Dutch landscape, so different from 's park, for instance. Btw, Greece won the European football match! I don't like sports on t.v., yet I thought of you when I followed these matches. It was exciting. I was relieved when Holland lost, some quietness around here. My great excitement was before, the OLYMPIC flame was run through our street here. I wished something for us all, for our health. These Olympic games, I know it's ridiculous, yet it feels as a kind of magic, from my childhood. It doesn't happen often, I visit friends. I only have material for court things, and while I think to know jury members may not talk about the cases, I wish you a non-stressful case. Recently, I saw a movie, forget the tittle of the movie and the actor's name, never was good in remembering actors than a few of my interest- the message was not to study while waiting for being in the jury, but it was a sixties movie. Hopefully, things have changed since. I hope this jury duty is not stressful to you and you can rest as much as you can. Micha. Athena wrote:> HI Micha thanks for the reply, I been in pain for a while now but I > am seeing a pain Mang DR and the meds and Injections Im getting seem > to be helping some, I been busy with college now and still on disb, > I also have Jury duty right now so thats keeping me going as well.> I try to stay as busy as I can and rest as often as well, I been > learning I can't let this disease get the best of me, sure i have > days when I am so weak and tired I can do nothing more they stay in > my jammies and curl up and watch TV but thats life with this Disease > one day your ok next your a mess!! I don't know what your country > looks like you have to send me pictures of it I bet its so > Beautiful, stay in touch with me I would love to hear from you soon..> > > Athena Quote Link to comment Share on other sites More sharing options...
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