new girl with a few questions

[Guest guest]

Hi everyone, first i want to say that i think what you have here is

wonderful. Just from reading a bit you all seem like the most caring

people. I have had lupus now for about 2 years, although I think I

spent the better part of those 2 in denial. Right now I seem to be in

the middle of a horrendous flare. Does anyone have the experience of

feeling like your dizzy all the time? I feel very shaky and unstaedy.

I have a 2 yr old daughter and I am afraid to get in the car and

drive because of this. Any insight would be helpful. I am seieng my

rheum tomorrow...Ive been on CellCept and Prednisone for about 1.5

yrs now. I am considering asking to try something new as the CellCept

doesnt seem to be keeping things at bay for very long. I spent a week

in the hosp. at the end of March. Anyway - can anyone give me an

honest opinion about some of the other meds you use?

Thank you so much for listening, I am really stressed and very upset

right now.

Meg

[Guest guest]

-Hi Meg- A lot of us take plaquenil, it's used for lupus, and RA,

maybe other things too. Originally was a antimalarial drug, but

seems to help autoimmune disease too.

I had dizzy spells a while back but mine were more panic

attack/anxiety related. I am on paxil (antideppressant) for this

problem. Sounds like you have been a good girl taking meds for 1.5

years if you are in denial. I am glad , as if you don't take your

meds your organs can be at risk of being attacked. Go talk to your

doctor about these dizzy spells---maybe it's something else??? You

aren't pregnant are you? (i don't mean to offend!, just a thought)

I am 36 and have had SLE for about 1 year (diagnosed). I have 3

children---11 y/o boy who is autistic, 8y/o girl and 5y/o boy. I am

married and live in Michigan. I am really busy and only get on here

once in a while, but I do care about everyone on here, and try to

keep up when I can. I can be reached on yahoo personal email too. I

hope you find the support and caring that I have found from this

group, talk to you later!!

- In LUPIES , " megl2001 " wrote:

> Hi everyone, first i want to say that i think what you have here is

> wonderful. Just from reading a bit you all seem like the most

caring

> people. I have had lupus now for about 2 years, although I think I

> spent the better part of those 2 in denial. Right now I seem to be

in

> the middle of a horrendous flare. Does anyone have the experience

of

> feeling like your dizzy all the time? I feel very shaky and

unstaedy.

> I have a 2 yr old daughter and I am afraid to get in the car and

> drive because of this. Any insight would be helpful. I am seieng my

> rheum tomorrow...Ive been on CellCept and Prednisone for about 1.5

> yrs now. I am considering asking to try something new as the

CellCept

> doesnt seem to be keeping things at bay for very long. I spent a

week

> in the hosp. at the end of March. Anyway - can anyone give me an

> honest opinion about some of the other meds you use?

> Thank you so much for listening, I am really stressed and very

upset

> right now.

>

> Meg

[Guest guest]

Wanting to scream.. Oh my isn't amazing how we all have so much in

common. I have beenin pain like that. My lupus developed after I

delivered my baby also. I have dizziness all the time and my

balance is not good. WHen I am in a flare...I stumple and run into

walls and have such memory problems that I dont recognize myself.

We are all going through the same things and I am comforted to know

I am not alone.

I just started Plaquenil in hopes of less falre ups.

Hugs -

[Guest guest]

Wanting to scream.. Oh my isn't amazing how we all have so much in

common. I have beenin pain like that. My lupus developed after I

delivered my baby also. I have dizziness all the time and my

balance is not good. WHen I am in a flare...I stumple and run into

walls and have such memory problems that I dont recognize myself.

We are all going through the same things and I am comforted to know

I am not alone.

I just started Plaquenil in hopes of less falre ups.

Hugs -

[Guest guest]

Wanting to scream.. Oh my isn't amazing how we all have so much in

common. I have beenin pain like that. My lupus developed after I

delivered my baby also. I have dizziness all the time and my

balance is not good. WHen I am in a flare...I stumple and run into

walls and have such memory problems that I dont recognize myself.

We are all going through the same things and I am comforted to know

I am not alone.

I just started Plaquenil in hopes of less falre ups.

Hugs -

[Guest guest]

Wanting to scream.. Oh my isn't amazing how we all have so much in

common. I have beenin pain like that. My lupus developed after I

delivered my baby also. I have dizziness all the time and my

balance is not good. WHen I am in a flare...I stumple and run into

walls and have such memory problems that I dont recognize myself.

We are all going through the same things and I am comforted to know

I am not alone.

I just started Plaquenil in hopes of less falre ups.

Hugs -