Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Oh ,THank you for your message...WHat are you doing up at 4:00 am...which in CAlifornia is what 3am? Get to bed! ha! First off - I am still in shock over your daughters assault. I also have a 7 year old daughter. I am really proud of your determination to make it right. You keep going with strength and wisdom from GOd. I am praying for you and your family. On to our " families " outside of my own home and how they " percieve " my Lupus....well, all I can say is I am with you girl... I have had this lupus for 3 years. During that time, My father passed away from Luekiemia. I have a sister who is a parapalygic. SHe is completely paralyzed from the waist down and is in a wheelchair full-time. SHe is a vital active beautiful mother and wife in spite of that situation. HOWEVER, I laugh a joke and say " that in my family you have to either be dead or paralyzed to get any sympathy. " In short no, my mom and sisters and most of my friends are used to me being active and the strong one, that they act like I am sooooo weak when I get sick. Or, that maybe I am " just depressed about my father's death " , or " Faking, cuz' I dont look sick " ...or " not dealing with the stresses of 3 children by " just going to bed " for a week " ! They even get angry when I am ill because somehow it scares them I think. I mean, if " the rock " of the group gets really sick...then who will be there to help them (seems so selfish, but they do that). I have heard and seen them all...the attitudes that is. My mother-in-law, on the other hand acts like " I am ALWAYS sick....She even writes it up in her Christmas newsletters, and mostly acts like I am an incompetent human " . As if somehow getting lupus has given her son a raw-deal. The irony of it all is that if I ever ask any of these folks to define what lupus is...they can't. Maybe they are in some form of denial, but it sure doesnt help those of us with lupus. I think you are right that when you feel good you should LIVE. But focus on my kiddos and hubby...not the cleanliness of my home. Ha! I dont want to get sick by over doing it. But I dont want to miss out on life with my family and there is not much excitiement laying in bed trying to beat a flare. Take care of yourself during this difficult time for you. Please keep in touch if you have the time. THanks a bunch- Quote Link to comment Share on other sites More sharing options...
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