Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi ,Glad you found us. Guess where I live? Sacramento! Are you in Elk Grove outside of Sac? I live off of Calvine near HWY 99. Small world. There might be another Elk Grove CA though that I don’t know about. The only lupus support group here is in Auburn. We used to have one at Methodist Hosp. near me but only 4 of us were there and we had no DR. This city is the pits for that. The group used to be more active and we had a charity event once a year but it’s gone now. I moved here from LA about 11 years ago. We had a real nice group there with a Dr. presiding. I finally found this group and find it to be helpful. Who are you seeing for lupus? I see Dr. Shaperio. He prescribes Celebrex and Aralen but won’t give me pain meds. He wants me to get the other Dr. for that. I have lupus, fibromyalgia, TMJ dysfunction, interstitial cystitis, arthritis, osteoporosis, cognitive dysfunction (lupus fog), tremors, IBS, and I probably forgot something. I have had Lupus since a teen but didn’t get a proper dx until in my 40’s. My kids are both grown and gone. My mom had fibromyalgia. That is strange that your mom can’t find more sympathy for you when she has a problem of her own. I am glad you found us. We all understand how you feel. We have all had problems getting out friends and family to understand. It is hard for people to understand we are ill if we don’t look ill. You have a good husband though and that means a lot. Do you have a job out side of the home? I have been on disability for about 8 years. Sincerely, Cheryl in CA From: shannon_dannewitz Sent: Thursday, June 24, 2004 11:42 AM To: LUPIES Subject: Hello My name is and I live in Elk Grove, CA. I just came upon this site when I was searching for support groups. I was diagnosed with Lupus/RA almost one year ago, and still have not fully accepted what's happened!! For me, my problems began following a car accident in 2002. Since then there has been many doctors appointments going back and forth over symptoms, aches and pains, tests, and xrays. Once diagnosed, I was put on plaquenil, bextra, and elavil. It seemed to be working pretty well for me until about 3 months ago, when I started working. Then the pain came back with a vengence. Last week, I was put on methotrexate, which I took for the first time a week ago. I take my next dose tomorrow night. I don't know if it'll help or not, and it sure makes me feel awful. I have a very supportive husband and two young sons (7 & 5). I feel like I am letting them down. My mom, who suffers from fibromyalgia, was pretty helpful for awhile, but recently has not been too supportive. She is not happy that my doctor and I decided to try methotrexate and is now telling me that I'm behaving like a victim and that I don't care about my family. It's putting more stress on an already stressful situation, and I'm running out of places to turn. I was so excited to find a website devoted to lupus and support, it may just be exactly what I need!! " The LUPIES Store " Come check out our store... http://www.cafepress.com/thelupies " The LUPIES Web Page " http://www.itzarion.com/lupusgroup.html " The LUPIES online photo albums! " Check out what your fellow Lupies look like... http://www.picturetrail.com/lupies size=2 width="100%" align=center> Express yourself with over 8,000 FREE Email Smileys - click here! size=2 width="100%" align=center> Get your FREE personalized email signature at My Mail Signature! Quote Link to comment Share on other sites More sharing options...
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