Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 I’m sorry your tremors are so bad . I have a small problem with my head and hands. It is mostly in my left thumb. Weird; I think it is benign familial tremor. My mom had it. I get embarrassed when my hand shakes too or when I am writing a check. Your problem is bad though and it is hard to imagine someone being so cruel as to think you are strange when your illness is so obvious. Sometimes people suck. From: auroraskyward Sent: Friday, June 25, 2004 3:16 AM To: LUPIES Subject: Re: DOES ANY ONE HAVE SPASMS I know I have had the " shakes " for quite some time now. I feel like I am having seizures. It seems to intensify when I use the muscles (like using my hand to open a door, eating, or writing). I get REALLY embarrassed...especially when we go out to eat and I start shaking...my husband or my son, who is 16 too, has to feed me...I shake so bad that all the food on my fork or spoon is gone before I have enough time to get it to my mouth. I feel shaky too inside (that one's a hard one to explain to doctors). They, some doctors, say it's a result of Lupus attacking the brain...like Lupus seizures but they cannot be detected through tests (like for epilepsy, narcolepsy, etc.). Quote Link to comment Share on other sites More sharing options...
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