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I’m sorry your tremors are so bad

. I have a small problem with my head and hands. It is mostly

in my left thumb. Weird; I think it is benign familial tremor.

My mom had it. I get embarrassed

when my hand shakes too or when I am writing a check. Your problem is bad

though and it is hard to imagine someone being so cruel as to think you are

strange when your illness is so obvious. Sometimes people suck.

From: auroraskyward

Sent: Friday, June 25, 2004 3:16

AM

To: LUPIES

Subject: Re: DOES ANY ONE

HAVE SPASMS

I know I have had the " shakes " for quite some time now. I

feel like I

am having

seizures. It seems to intensify when I use the muscles (like

using my

hand to open a door, eating, or writing). I get REALLY

embarrassed...especially

when we go out to eat and I start

shaking...my

husband or my son, who is 16 too, has to feed me...I

shake so bad

that all the food on my fork or spoon is gone before I

have enough

time to get it to my mouth. I feel shaky too inside (that

one's a hard

one to explain to doctors). They, some doctors, say it's

a result of

Lupus attacking the brain...like Lupus seizures but they

cannot be

detected through tests (like for epilepsy, narcolepsy,

etc.).

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