...Tremors

[Guest guest]

,

I am sorry to hear of your struggle. Bless your heart. I also know

it is so sad to lose someone you care about and I am sorry for the

loss of your Lupies friend.

Ok - on to the shakes, I also get shakes and tremors in my hands.

WHen a flare up is bad, I can hardly write, or type, or function.

Yes it can be embarassing I know. I have had a siezure in the Brain

scan did not show anything but swelling. It is known as lupus

cerebritits. It caused me a great deal of problems. It caused me

complete memory loss and I was driving on a trip. Lost all memory

for 4 days.

I also have to visit the ER often. It seems my flare ups do

not " slow down " unless I have a big, bolus dose of Solumedrol.

You mentioned pain....Oh my friend. I do not know what else to do

either. Pain meds are bad for our liver and kidneys which mine do

NOT need any help getting worse. But there has to be some other

things. I do have spinal epidural shots routinely to help with pain

and they do help. Have you ever looked into that?

I am thinking of you. Let me know how you are doing.

You are needed here...don't think of closing those eyes and getting

your wings yet!

hugs -