Re: Welcome to Fibromyalgia-CFS

[Guest guest]

Age range: 23

Male/female: Female

What are the symptoms? You name it, I have it. Fatigue, insomnia, mood swings,

extreme pain, irritable bowel, skin pain, extreme depression...it's easier to

list the things I don't have. I've developed severe carpal tunnel in my left

arm as well. My doctor is looking into testing to see if surgery is needed. I

also have a foot longer large intestine than normal, which was found in a

laporoscopy when I was 16, my kneecaps are grown more to the side and tend to

dislocate and I have problems with my ankles. One has osteochondritis and

they've both had so many sprains that there's been permanent damage.

Has you illness been diagnosed? Yes, for around six or seven years now.

How long did you suffer before you got help? I was always sick, starting from

when I was very young. I had severe stomach and ear pain, which my doctor wrote

off as just wanting to get out of school. Later it was found I had symptoms of

TMJ and trigger points throughout my body.

Is there a time that you can remember when it started? When I was 14 or 15 the

extreme fatigue, depression and pain started.

Some of us have found lack of exercise we are overweight. Have you found this to

be a problem also? Yes. My joint problems and leg pain makes it almost

impossible.

Are you on disability? No, though I need to be. I'm living off of my parents

and things are getting very tight.

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications etc.? I'm

on birth control to keep my periods regular, vicodin for pain, Ambien for sleep

and now prednisone to take the swelling from the nerves in my wrist. Nothing

else has worked. Anti-depressants make my mood swings and personality

drastically change and they've tried close to every class.

Do you have sleep problems? How do you deal with it? I take one 10mg tablet of

Ambien every night.

Do you have family that understands your illness? They try, but sometimes it's

hard for them to understand how I can do some things, but others cause pain.

Some have found certain foods causes problems with CFS or Fibro, have you?

Bananas make my stomach pains worse. And sitting in some booths at restaraunts

seems to set off my IBS.

What type of Doctor have you found that has helped you the most? My regular MD

seems to want to try to keep me comfortable, which is the most any doctor has

done.

---------------------------------

[Guest guest]

Hi, I'm and I've been around for about a week, so maybe I'm not 'new' but

I'm still 'newish'. For some reason, I can't find my questionaire that people

are mailing in. I'll blame it on my current drugs :-D So I took a form and

filled it out. Maybe I already filled one out, but, if so, I can't remember.

So here it is:

/ Louisville, KY

> Age range: 37

>

> Male/female: female

>

> What are the symptoms?

Extreme fatigue; headaces; pain in all extremities (it got too long to list);

extreme, sharp pain, burning, cramping, and tingling in toes and feet; shin

pain (very sharp); hip and leg pain when walking; extremely tender and sore low

back; and depression. Also, which sounds weird, but I'll list it, I've noticed

a change in my magnetic field. I turn street lamps off or on simply by being

near them and I melt watches. I have found this actually listed in a

fibromyalgia book or I wouldn't have thought of it as related. I've been doing

the light/watch thing since I was 14. My friends used to laugh about it.

>

> Has you illness been diagnosed? Yes, 10 years ago, 2 years ago and a couple

of weeks ago. Hey, maybe it went away! It doesn't hurt to check.

>

> How long did you suffer before you got help? About 6 months before I was

initially diagnosed. Then I was still suffering because most of the HMO doctors

didn't believe in fibromyalgia. They would insist I had arthritis or I just

needed to lose weight. In the past two years, thanks to a terrific doctor, I'm

getting some relief.

> Is there a time that you can remember when it started? I injured my back

1/92, and never really got better, but I think I probably had it before then.

>

> Some of us have found lack of exercise we are overweight. Have you found

> this to be a problem also? Yes, and we'll just leave it at that, okay? :-D

>

> Are you on disability? No, but I am applying

>

> If you are any pointers for others trying to get on disability? share

info.

I have always heard it is best to get a lawyer on contingency from the very

start, and if you are denied, take it to court. Oh, I've also always heard that

a psych diagnosis usually gets in on first pass, but a medical diagnosis will be

more likely denied on the first pass.

>

> What have you found that helps ease the pain, warm baths, medications

etc.?

Currently on neurotin and baclofen (pardon the spelling and lack of dosages,

but I'm upstairs and the bottles are downstairs) and I'm also on a duragesic

pain patch. I finally have a doctor who gives medicine that actually works.

> Do you have sleep problems? How do you deal with it?

I have sleep apnea and I'm also an insomniac. Currently on a C-Pap machine with

no relief. Was on ambian before my insurance company decided that it worked and

they didn't want to pay for it.

> Do you have family that understands your illness? No. My cousin suggested I

" just take some aspirin and get moving " and even though my family promises to

help, I don't feel I can count on them. It also was one of the underlying

causes for my 7 year relationship to break up.

>

> Some have found certain foods causes problems with CFS or Fibro, have

you?

MSG and I just don't get along. Other than that, fried foods, onions, spicy

foods, and pizza upset my stomach.

> What type of Doctor have you found that has helped you the most?

My family doctor. I lost her once, but finally found her new office (no

competition clause in her contract). You know, it took almost a year to find

her, and I'm not driving almost 25 miles one way to see her and I don't mind a

bit.

I would like to add that I'm really unsure of what is fibromyalgia and what is

my ulcer/esophogitis or my extra herniated lumbar disk or my asthma or holdovers

from TB I had 14 years ago or what is my fibromyalgia.

I still have hopes that this will all improve and I can have a life again. I

had one once and I rather miss it.

~ :-D

[Guest guest]

Age range:

44

Male/female:

Female

What are the symptoms?

All of the fibromyalgia symptoms in variying degrees

Has you illness been diagnosed?

yes

How long did you suffer before you got help?

10 years

Is there a time that you can remember when it started?

After my 2nd child

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also?

yes

Are you on disability?

no. Would like to be.

If you are any pointers for others trying to get on disability?

n/a

What have you found that helps ease the pain, warm baths, medications etc.?

warm bath, relaxation

Do you have sleep problems? How do you deal with it?

yes, meditation

Do you have family that understands your illness?

my husband does, my parents have a hard time.

Some have found certain foods causes problems with CFS or Fibro, have you?

milk, sugar

What type of Doctor have you found that has helped you the most?

Accupuncturist

..

[Guest guest]

Age range:

44

Male/female:

Female

What are the symptoms?

All of the fibromyalgia symptoms in variying degrees

Has you illness been diagnosed?

yes

How long did you suffer before you got help?

10 years

Is there a time that you can remember when it started?

After my 2nd child

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also?

yes

Are you on disability?

no. Would like to be.

If you are any pointers for others trying to get on disability?

n/a

What have you found that helps ease the pain, warm baths, medications etc.?

warm bath, relaxation

Do you have sleep problems? How do you deal with it?

yes, meditation

Do you have family that understands your illness?

my husband does, my parents have a hard time.

Some have found certain foods causes problems with CFS or Fibro, have you?

milk, sugar

What type of Doctor have you found that has helped you the most?

Accupuncturist

..

[Guest guest]

Age range:

44

Male/female:

Female

What are the symptoms?

All of the fibromyalgia symptoms in variying degrees

Has you illness been diagnosed?

yes

How long did you suffer before you got help?

10 years

Is there a time that you can remember when it started?

After my 2nd child

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also?

yes

Are you on disability?

no. Would like to be.

If you are any pointers for others trying to get on disability?

n/a

What have you found that helps ease the pain, warm baths, medications etc.?

warm bath, relaxation

Do you have sleep problems? How do you deal with it?

yes, meditation

Do you have family that understands your illness?

my husband does, my parents have a hard time.

Some have found certain foods causes problems with CFS or Fibro, have you?

milk, sugar

What type of Doctor have you found that has helped you the most?

Accupuncturist

..

[Guest guest]

It is wonderful to find a group going through the same things I am. My

boyfriend is very understanding and supportive, but he can't understand like

someone with fibromyalgia does.

Thanks for the warm welcome

Re: Re: Welcome to

Welcome to the group , I was just diagnosed

with Fibr Last Friday, I have been in constant pain

since May of this year, I have had IBS for 5-6 years

now. My pain started in my chest only and was first

diagnosed as just costochondritis, then it spread

throughout my body, then they have diagnosed it as

fibro.

Take care, it sure is nice to have people to talk to

that know what you are going through and can relate

and help you with questions. I have found it to be a

blessing.

a Faye

--- heatherdenise@...> wrote:

> Hi everyone I'm new to the list, joining just

> the other day.

>

> Age range: 33

>

> Male/female: female

>

> What are the symptoms? Nearly constant pain.

> Lately I have had alot of

> pain in my back and my Restless Leg Syndrome is

> driving me crazy. I also

> have IBS.

>

> Has you illness been diagnosed? Yes

>

> How long did you suffer before you got help?

> Years....way, way too long.

>

> Is there a time that you can remember when it

> started? I started with IBS

> about 7 years ago, but I can always remember being

> in some kind of pain. I

> just wanted to go check into the hospital for them

> to find out what the heck

> it all was. This is really sad...but last year when

> I had lost 40 pounds,

> was eating great and exercising, I found myself in

> total agony. I stopped

> exercising and my health (and some of my happiness)

> went straight downhill.

> The last year has been awful.

>

> Some of us have found lack of exercise we are

> overweight. Have you found

> this to be a problem also? Yep...unfortunately.

>

> Are you on disability? No.

>

> If you are any pointers for others trying to get on

> disability?

>

> What have you found that helps ease the pain, warm

> baths, medications etc.?

> Not much. I take darvocet or vicodin when my pain

> is unbearable.

>

> Do you have sleep problems? How do you deal with it?

> I was sick of the side

> effects of Elavil, so I stopped taking it. I have a

> hard time falling

> asleep, but since I am so exhausted, I tend to stay

> asleep now.

>

> Do you have family that understands your illness?

> Yes, I do. My boyfriend

> is wonderful and very supportive. I do feel like I

> am complaining too much

> to him, though. It's hard not to. I think he feels

> helpless because there

> is nothing he can do to make me feel better

> sometimes. My kids (especially

> my daughter) are great. They help me out alot.

>

> Some have found certain foods causes problems with

> CFS or Fibro, have you?

> No, not yet.

>

> What type of Doctor have you found that has helped

> you the most? None.

>

>

> ~

>

>

__________________________________________________

[Guest guest]

Age range: 30

Male/female: female

What are the symptoms? i feel like i have been run over by a BIG truck...

Has you illness been diagnosed? yes, last month

How long did you suffer before you got help? 2 years

Is there a time that you can remember when it started? not in particular

Some of us have found lack of exercise we are overweight. Have you found this

to be a problem also? yes

Are you on disability? not yet, working on it

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications etc.?

Do you have sleep problems? How do you deal with it?

Do you have family that understands your illness?

Some have found certain foods causes problems with CFS or Fibro, have you?

What type of Doctor have you found that has helped you the most? mayo clinic

scottsdale

[Guest guest]

Age range: 34

Male/female: F

What are the symptoms? CFS, Depression, 18 Tenderpoints, throat problems,

marital problems, periods from h*ll, severe weight gain, trouble

working any lenghth of time for just a few

Has you illness been diagnosed? Yes - 3 years

How long did you suffer before you got help? The only help that I can get

(per specialist) is drugs & " nothing else I can do "

Is there a time that you can remember when it started? Shortly after bad

car accident in 1998

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also? Yes

Are you on disability? No

If you are any pointers for others trying to get on disability? N/A

What have you found that helps ease the pain, warm baths, medications etc.?

For Christmas my husband bought me a massage mat - if I use it for

longer than intended then it helps by " tingling

the pain

Do you have sleep problems? How do you deal with it? Yes - If I can, I take

a nap in the afternoons or sleep in - many times I've fallen asleep (not

by choice) before I realize it

Do you have family that understands your illness? Yes & No - my husband

thinks I should have better control on things & that it's mostly in my head

Some have found certain foods causes problems with CFS or Fibro, have you?

No

What type of Doctor have you found that has helped you the most? I've

supposedly seen the " worlds " best leading authority on the illness & his

last

remark was that there was nothing more he could

do for me.

If you want to leave a bio you may go to the groups page at www.yahoogroups

com, log in to the file area, and make a folder. There you can leave a

picture of yourself, be sure to click to notify the list. You can also leave

a bio by making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs

[Guest guest]

Age range: 34

Male/female: F

What are the symptoms? CFS, Depression, 18 Tenderpoints, throat problems,

marital problems, periods from h*ll, severe weight gain, trouble

working any lenghth of time for just a few

Has you illness been diagnosed? Yes - 3 years

How long did you suffer before you got help? The only help that I can get

(per specialist) is drugs & " nothing else I can do "

Is there a time that you can remember when it started? Shortly after bad

car accident in 1998

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also? Yes

Are you on disability? No

If you are any pointers for others trying to get on disability? N/A

What have you found that helps ease the pain, warm baths, medications etc.?

For Christmas my husband bought me a massage mat - if I use it for

longer than intended then it helps by " tingling

the pain

Do you have sleep problems? How do you deal with it? Yes - If I can, I take

a nap in the afternoons or sleep in - many times I've fallen asleep (not

by choice) before I realize it

Do you have family that understands your illness? Yes & No - my husband

thinks I should have better control on things & that it's mostly in my head

Some have found certain foods causes problems with CFS or Fibro, have you?

No

What type of Doctor have you found that has helped you the most? I've

supposedly seen the " worlds " best leading authority on the illness & his

last

remark was that there was nothing more he could

do for me.

If you want to leave a bio you may go to the groups page at www.yahoogroups

com, log in to the file area, and make a folder. There you can leave a

picture of yourself, be sure to click to notify the list. You can also leave

a bio by making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs

[Guest guest]

,Before he told you there was nothing more he could do for you, what did he

do? Meds and exercise? Audie

Re: Welcome to

Age range: 34

Male/female: F

What are the symptoms? CFS, Depression, 18 Tenderpoints, throat problems,

marital problems, periods from h*ll, severe weight gain, trouble

working any lenghth of time for just a few

Has you illness been diagnosed? Yes - 3 years

How long did you suffer before you got help? The only help that I can get

(per specialist) is drugs & " nothing else I can do "

Is there a time that you can remember when it started? Shortly after bad

car accident in 1998

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also? Yes

Are you on disability? No

If you are any pointers for others trying to get on disability? N/A

What have you found that helps ease the pain, warm baths, medications etc.?

For Christmas my husband bought me a massage mat - if I use it for

longer than intended then it helps by " tingling

the pain

Do you have sleep problems? How do you deal with it? Yes - If I can, I take

a nap in the afternoons or sleep in - many times I've fallen asleep (not

by choice) before I realize it

Do you have family that understands your illness? Yes & No - my husband

thinks I should have better control on things & that it's mostly in my head

Some have found certain foods causes problems with CFS or Fibro, have you?

No

What type of Doctor have you found that has helped you the most? I've

supposedly seen the " worlds " best leading authority on the illness & his

last

remark was that there was nothing more he could

do for me.

If you want to leave a bio you may go to the groups page at www.yahoogroups

com, log in to the file area, and make a folder. There you can leave a

picture of yourself, be sure to click to notify the list. You can also leave

a bio by making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs