Re: Welcome to Fibromyalgia-CFS

[Guest guest]

It is wonderful to find a group going through the same things I am. My

boyfriend is very understanding and supportive, but he can't understand like

someone with fibromyalgia does.

Thanks for the warm welcome

Re: Re: Welcome to

Welcome to the group , I was just diagnosed

with Fibr Last Friday, I have been in constant pain

since May of this year, I have had IBS for 5-6 years

now. My pain started in my chest only and was first

diagnosed as just costochondritis, then it spread

throughout my body, then they have diagnosed it as

fibro.

Take care, it sure is nice to have people to talk to

that know what you are going through and can relate

and help you with questions. I have found it to be a

blessing.

a Faye

--- heatherdenise@...> wrote:

> Hi everyone I'm new to the list, joining just

> the other day.

>

> Age range: 33

>

> Male/female: female

>

> What are the symptoms? Nearly constant pain.

> Lately I have had alot of

> pain in my back and my Restless Leg Syndrome is

> driving me crazy. I also

> have IBS.

>

> Has you illness been diagnosed? Yes

>

> How long did you suffer before you got help?

> Years....way, way too long.

>

> Is there a time that you can remember when it

> started? I started with IBS

> about 7 years ago, but I can always remember being

> in some kind of pain. I

> just wanted to go check into the hospital for them

> to find out what the heck

> it all was. This is really sad...but last year when

> I had lost 40 pounds,

> was eating great and exercising, I found myself in

> total agony. I stopped

> exercising and my health (and some of my happiness)

> went straight downhill.

> The last year has been awful.

>

> Some of us have found lack of exercise we are

> overweight. Have you found

> this to be a problem also? Yep...unfortunately.

>

> Are you on disability? No.

>

> If you are any pointers for others trying to get on

> disability?

>

> What have you found that helps ease the pain, warm

> baths, medications etc.?

> Not much. I take darvocet or vicodin when my pain

> is unbearable.

>

> Do you have sleep problems? How do you deal with it?

> I was sick of the side

> effects of Elavil, so I stopped taking it. I have a

> hard time falling

> asleep, but since I am so exhausted, I tend to stay

> asleep now.

>

> Do you have family that understands your illness?

> Yes, I do. My boyfriend

> is wonderful and very supportive. I do feel like I

> am complaining too much

> to him, though. It's hard not to. I think he feels

> helpless because there

> is nothing he can do to make me feel better

> sometimes. My kids (especially

> my daughter) are great. They help me out alot.

>

> Some have found certain foods causes problems with

> CFS or Fibro, have you?

> No, not yet.

>

> What type of Doctor have you found that has helped

> you the most? None.

>

>

> ~

>

>

__________________________________________________

[Guest guest]

It is wonderful to find a group going through the same things I am. My

boyfriend is very understanding and supportive, but he can't understand like

someone with fibromyalgia does.

Thanks for the warm welcome

Re: Re: Welcome to

Welcome to the group , I was just diagnosed

with Fibr Last Friday, I have been in constant pain

since May of this year, I have had IBS for 5-6 years

now. My pain started in my chest only and was first

diagnosed as just costochondritis, then it spread

throughout my body, then they have diagnosed it as

fibro.

Take care, it sure is nice to have people to talk to

that know what you are going through and can relate

and help you with questions. I have found it to be a

blessing.

a Faye

--- heatherdenise@...> wrote:

> Hi everyone I'm new to the list, joining just

> the other day.

>

> Age range: 33

>

> Male/female: female

>

> What are the symptoms? Nearly constant pain.

> Lately I have had alot of

> pain in my back and my Restless Leg Syndrome is

> driving me crazy. I also

> have IBS.

>

> Has you illness been diagnosed? Yes

>

> How long did you suffer before you got help?

> Years....way, way too long.

>

> Is there a time that you can remember when it

> started? I started with IBS

> about 7 years ago, but I can always remember being

> in some kind of pain. I

> just wanted to go check into the hospital for them

> to find out what the heck

> it all was. This is really sad...but last year when

> I had lost 40 pounds,

> was eating great and exercising, I found myself in

> total agony. I stopped

> exercising and my health (and some of my happiness)

> went straight downhill.

> The last year has been awful.

>

> Some of us have found lack of exercise we are

> overweight. Have you found

> this to be a problem also? Yep...unfortunately.

>

> Are you on disability? No.

>

> If you are any pointers for others trying to get on

> disability?

>

> What have you found that helps ease the pain, warm

> baths, medications etc.?

> Not much. I take darvocet or vicodin when my pain

> is unbearable.

>

> Do you have sleep problems? How do you deal with it?

> I was sick of the side

> effects of Elavil, so I stopped taking it. I have a

> hard time falling

> asleep, but since I am so exhausted, I tend to stay

> asleep now.

>

> Do you have family that understands your illness?

> Yes, I do. My boyfriend

> is wonderful and very supportive. I do feel like I

> am complaining too much

> to him, though. It's hard not to. I think he feels

> helpless because there

> is nothing he can do to make me feel better

> sometimes. My kids (especially

> my daughter) are great. They help me out alot.

>

> Some have found certain foods causes problems with

> CFS or Fibro, have you?

> No, not yet.

>

> What type of Doctor have you found that has helped

> you the most? None.

>

>

> ~

>

>

__________________________________________________

[Guest guest]

Age range: 30

Male/female: female

What are the symptoms? i feel like i have been run over by a BIG truck...

Has you illness been diagnosed? yes, last month

How long did you suffer before you got help? 2 years

Is there a time that you can remember when it started? not in particular

Some of us have found lack of exercise we are overweight. Have you found this

to be a problem also? yes

Are you on disability? not yet, working on it

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications etc.?

Do you have sleep problems? How do you deal with it?

Do you have family that understands your illness?

Some have found certain foods causes problems with CFS or Fibro, have you?

What type of Doctor have you found that has helped you the most? mayo clinic

scottsdale

[Guest guest]

Age range: 30

Male/female: female

What are the symptoms? i feel like i have been run over by a BIG truck...

Has you illness been diagnosed? yes, last month

How long did you suffer before you got help? 2 years

Is there a time that you can remember when it started? not in particular

Some of us have found lack of exercise we are overweight. Have you found this

to be a problem also? yes

Are you on disability? not yet, working on it

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications etc.?

Do you have sleep problems? How do you deal with it?

Do you have family that understands your illness?

Some have found certain foods causes problems with CFS or Fibro, have you?

What type of Doctor have you found that has helped you the most? mayo clinic

scottsdale

[Guest guest]

Age range: 34

Male/female: F

What are the symptoms? CFS, Depression, 18 Tenderpoints, throat problems,

marital problems, periods from h*ll, severe weight gain, trouble

working any lenghth of time for just a few

Has you illness been diagnosed? Yes - 3 years

How long did you suffer before you got help? The only help that I can get

(per specialist) is drugs & " nothing else I can do "

Is there a time that you can remember when it started? Shortly after bad

car accident in 1998

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also? Yes

Are you on disability? No

If you are any pointers for others trying to get on disability? N/A

What have you found that helps ease the pain, warm baths, medications etc.?

For Christmas my husband bought me a massage mat - if I use it for

longer than intended then it helps by " tingling

the pain

Do you have sleep problems? How do you deal with it? Yes - If I can, I take

a nap in the afternoons or sleep in - many times I've fallen asleep (not

by choice) before I realize it

Do you have family that understands your illness? Yes & No - my husband

thinks I should have better control on things & that it's mostly in my head

Some have found certain foods causes problems with CFS or Fibro, have you?

No

What type of Doctor have you found that has helped you the most? I've

supposedly seen the " worlds " best leading authority on the illness & his

last

remark was that there was nothing more he could

do for me.

If you want to leave a bio you may go to the groups page at www.yahoogroups

com, log in to the file area, and make a folder. There you can leave a

picture of yourself, be sure to click to notify the list. You can also leave

a bio by making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs

[Guest guest]

,Before he told you there was nothing more he could do for you, what did he

do? Meds and exercise? Audie

Re: Welcome to

Age range: 34

Male/female: F

What are the symptoms? CFS, Depression, 18 Tenderpoints, throat problems,

marital problems, periods from h*ll, severe weight gain, trouble

working any lenghth of time for just a few

Has you illness been diagnosed? Yes - 3 years

How long did you suffer before you got help? The only help that I can get

(per specialist) is drugs & " nothing else I can do "

Is there a time that you can remember when it started? Shortly after bad

car accident in 1998

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also? Yes

Are you on disability? No

If you are any pointers for others trying to get on disability? N/A

What have you found that helps ease the pain, warm baths, medications etc.?

For Christmas my husband bought me a massage mat - if I use it for

longer than intended then it helps by " tingling

the pain

Do you have sleep problems? How do you deal with it? Yes - If I can, I take

a nap in the afternoons or sleep in - many times I've fallen asleep (not

by choice) before I realize it

Do you have family that understands your illness? Yes & No - my husband

thinks I should have better control on things & that it's mostly in my head

Some have found certain foods causes problems with CFS or Fibro, have you?

No

What type of Doctor have you found that has helped you the most? I've

supposedly seen the " worlds " best leading authority on the illness & his

last

remark was that there was nothing more he could

do for me.

If you want to leave a bio you may go to the groups page at www.yahoogroups

com, log in to the file area, and make a folder. There you can leave a

picture of yourself, be sure to click to notify the list. You can also leave

a bio by making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs

[Guest guest]

,Before he told you there was nothing more he could do for you, what did he

do? Meds and exercise? Audie

Re: Welcome to

Age range: 34

Male/female: F

What are the symptoms? CFS, Depression, 18 Tenderpoints, throat problems,

marital problems, periods from h*ll, severe weight gain, trouble

working any lenghth of time for just a few

Has you illness been diagnosed? Yes - 3 years

How long did you suffer before you got help? The only help that I can get

(per specialist) is drugs & " nothing else I can do "

Is there a time that you can remember when it started? Shortly after bad

car accident in 1998

Some of us have found lack of exercise we are overweight. Have you found

this to be a problem also? Yes

Are you on disability? No

If you are any pointers for others trying to get on disability? N/A

What have you found that helps ease the pain, warm baths, medications etc.?

For Christmas my husband bought me a massage mat - if I use it for

longer than intended then it helps by " tingling

the pain

Do you have sleep problems? How do you deal with it? Yes - If I can, I take

a nap in the afternoons or sleep in - many times I've fallen asleep (not

by choice) before I realize it

Do you have family that understands your illness? Yes & No - my husband

thinks I should have better control on things & that it's mostly in my head

Some have found certain foods causes problems with CFS or Fibro, have you?

No

What type of Doctor have you found that has helped you the most? I've

supposedly seen the " worlds " best leading authority on the illness & his

last

remark was that there was nothing more he could

do for me.

If you want to leave a bio you may go to the groups page at www.yahoogroups

com, log in to the file area, and make a folder. There you can leave a

picture of yourself, be sure to click to notify the list. You can also leave

a bio by making text file then bio.txt

Post are in text only not html codes.

SEND POST TO: fibromyalgia-cfs