Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Meg, you just described how I was when they dx'd me. I don't know what helped, my DR thinks part of it just got better with time. I wish I could tell you what worked but I know someone here will be able to help you. a there has got to be something that can help all of these bizarre symptoms (tingling,dizzy, confused etc...I even had to call to get directions to my own dr's office and I go there every month). Thanks everyone. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Meg, you just described how I was when they dx'd me. I don't know what helped, my DR thinks part of it just got better with time. I wish I could tell you what worked but I know someone here will be able to help you. a there has got to be something that can help all of these bizarre symptoms (tingling,dizzy, confused etc...I even had to call to get directions to my own dr's office and I go there every month). Thanks everyone. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Meg, you just described how I was when they dx'd me. I don't know what helped, my DR thinks part of it just got better with time. I wish I could tell you what worked but I know someone here will be able to help you. a there has got to be something that can help all of these bizarre symptoms (tingling,dizzy, confused etc...I even had to call to get directions to my own dr's office and I go there every month). Thanks everyone. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi all Anyone out there suffering from the neuro. effects of this disease? For some reason when I am in a flare it goes straight to my head (literally). My doc and I discusssed it and he said we should wait on trying something like cytoxan since its a really potent med. I am only 29 and have 1 daughter, and would love to have another baby at some point if i ever go into remission long enough...otherwise i am grateful for what i have.. anyway if any of you have any input on this I'd appreciate it...there has got to be something that can help all of these bizarre symptoms (tingling,dizzy, confused etc...I even had to call to get directions to my own dr's office and I go there every month). Thanks everyone. Meg Quote Link to comment Share on other sites More sharing options...
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