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I am not taking Plaquenil or Aralen

anymore. I can’t afford it. I get Celebrex samples

free. I also get some antidepressants free but ran out of money for all

my other meds. I was on Neurontin and don’t have that anymore

either. I feel pretty tired and sore but still making it. I feel

like I am starting to get a bladder infection as I am out of the 2 meds for

interstitial cystitis too. I know I am headed for sickness but what can I

do? I was on Neurontin for a long time for the tingling, pins and needles

with pain in my legs and feet. You know what? I don’t feel

any worse without the meds. I don’t think they helped and I wasted

my money. Before I quit I was going to raise my dose, who knows, that

might have helped. I wish I could just chuck all these meds and Dr’s.

From:

Ellencland@...

Sent: Saturday, June 26, 2004 5:14

PM

To: LUPIES

Subject: Re: Plaque

nil/Eyes

I was on plaquenil from 1989 until I went off

it myself (bad bad girl) around

1995. I was in remission and felt

great. I just thought that I could give

my self a break from all drugs. It

worked for a few years, then the lupus came

back.....I will never ever take myself off it

again, as the long wait of 6-8

weeks for it to start working again is not

worth it. I praise plaquenil.

Love & Friendship,

Ellen

..

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