Eliz., Tara, Robin; fatigue; elavil

[Guest guest]

-I had swollen glands for about the first 10 years of this disease.

The swelling stopped for the most part 5 years ago, and the pain seemed to

get much worse at that time. I still have the low grade temps though, and

of course, I demanded a blood culture about 5 years ago, and assume it was

OK, as I never heard a thing about it!

Tara-I've been waiting around for the last 10 years waiting for a cure, and

we're not going to get one, this disease is not going to go away, I can't

put my life on hold anymore, and have decided to find ways to cope with it,

rather than fight it anymore, or waste what little energy I have on being

afraid or angry about it.

Robin-Your symptoms sound alot like what we all have, some doctors don't

believe in FMS. I'm about 10-20# overweight and I wish that I could lose

the weight. I tell people that I inherited the double fat gene, so it's

impossible! I've tried....some people were born to be chubby.

Rheumatologists are supposed to be the doctor for FMS/CFS...there aren't any

in my area, and i'm not healthy enough to travel hours away to see one....if

you can get to one, he/she might be able to help you more than your primary

MD.

Fatigue, I found that the warmer weather, zoloft and NADH have helped a

great deal with the fatigue. I'm spending less time in bed anyway.

Elavil-I took it for 6 years in doses from 25-150 mgs. and put on about 20#,

and when I stopped taking it, the weight stayed....it didn't help me, the

doctor insisted that it would.....I figure 6 years was more than enough time

for it to start working.

-2

kmnewberry@...

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