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first DX

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Sorry having a brain scramble moment and i can't remember the people that

were talking about the depression and crying that comes with having a dx.

I think everyone can understand the big WOW moment of knowing what you

finally have. When i first got my dx, i felt overwhelmed too. It was a big

change from feeling like everything was in my head and i was going crazy to

having 1 800 #'s that i could call and get information on this disease. Or

to be able to come into a group like this and someone starts talking about

something you just started to experience and you can say " oh ok someone else

has this too, i am not imagining it. " Or to have pamphlets to hand to

family members when they don't understand.

There is a lot of information out there on the net, and yes some of it is

all doom and gloom but there is also hope there too. Hope, in the form of

the groups like this that are warm and welcoming and filled with lots of

great positive information.

I do like what someone said about in a weird way this disease was the best

thing that could have happened that she takes time with her family, takes

life one moment at a time and does the things that please her so she

doesn't contribute to her disease by worrying about it. (sorry i don't

remember who it was and i am paraphrasing)

Take care of yourself

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