RE: Re: - ** High-Dose Ursodeoxycholic Acid Fails in PSC**

[Guest guest]

-----Original

Message-----

I'm ever the optimimist, at one point on this release it actually says that urso can " restore normal life expectancy "

Is this true? Are there documented cases of it combatting cirhossis that well???

Hi ,

You’re right, it did say

that, but..….. you have to read the next sentence

too, it said “To confirm the

benefits observed in small uncontrolled studies” they weren’t able to confirm that conclusion

in the larger Dr. Lindor study.

Sorry,

Barb in Texas - Together in the Fight - Whatever it

Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007

@ Baylor/Dallas

[Guest guest]

-----Original

Message----- Subject:

Re: - **

High-Dose Ursodeoxycholic Acid Fails in PSC**

Still, i am not stopping from remaining positive on new findings,

,

It takes a while to

understand, especially if people are newly diagnosed, but truthfully looking at

the big picture, every “finding” if it works or not, is a good

thing. With no cure in immediate sight,

if we can rule something out, it’s almost as important as finding

something that’s works, - please note I did say “almost”,

sure would like to find a cure ;-) We’re all going to stay positive because we are

- Together in the fight, whatever it takes!

Barb in Texas - Together in the Fight - Whatever it

Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007

@ Baylor/Dallas

[Guest guest]

My own personal findings, and from readings posts from this forum, is that URSO does work for some people. and us people have our own personal correct dosage. When I was started on URSO 9 years ago my LFT numbers were rising rapidly and I was expecting I would need a liver transplant very soon, A rapid rise in LFT numbers when I tried going off URSO confirms to me that URSO is the reason I haven't needed the liver transplant yet. I am sticking by URSO. My personal dosage is 750mg/day and I weight about 210 lbs.

Ian (52) PSC 89

Re: - ** High-Dose Ursodeoxycholic Acid Fails in PSC**

Still, i am not stopping from remaining positive on new findings,

,

It takes a while to understand, especially if people are newly diagnosed, but truthfully looking at the big picture, every "finding" if it works or not, is a good thing. With no cure in immediate sight, if we can rule something out, it's almost as important as finding something that's works, - please note I did say "almost", sure would like to find a cure ;-) We're all going to stay positive because we are - Together in the fight, whatever it takes!

Barb in Texas - Together in the Fight - Whatever it Takes!

Son Ken (34) UC 91 PSC 99, LTX 6/21 & 6/30 2007 @ Baylor/Dallas

-- Ian Cribb P.Eng.