Re: Re: STUDY ** High-Dose Ursodeoxycholic Acid Fails in PSC**

[Guest guest]

Cindy,I went off it briefly and ended up in the hospital for 2 weeks. I feel some of the reason for the hospital stay was that things just went south with me as soon as I went off the URSO. It could have been a coincidence of course, but I had increased nausea & vomiting, as well as really out of control pouchitis and dehydration.MarieUC/J-Pouch/PSC/AIH/Adrenal gland insufficiency/chronic pouchitis

To: From: baudouxnorthrup@...Date: Thu, 6 Nov 2008 08:12:25 -0800Subject: Re: Re: STUDY ** High-Dose Ursodeoxycholic Acid Fails in PSC**

I weigh 110 and take 1000 per day. You can bet my hep

is going to get a call asking if it is really

necessary. Not just the study information, but that

drug is horrifically EXPENSIVE, and I have been on it

11 years and nothing has improved, and I never did see

a difference after starting it.

Cindy Baudoux-Northrup

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[Guest guest]

Cindy,I went off it briefly and ended up in the hospital for 2 weeks. I feel some of the reason for the hospital stay was that things just went south with me as soon as I went off the URSO. It could have been a coincidence of course, but I had increased nausea & vomiting, as well as really out of control pouchitis and dehydration.MarieUC/J-Pouch/PSC/AIH/Adrenal gland insufficiency/chronic pouchitis

To: From: baudouxnorthrup@...Date: Thu, 6 Nov 2008 08:12:25 -0800Subject: Re: Re: STUDY ** High-Dose Ursodeoxycholic Acid Fails in PSC**

I weigh 110 and take 1000 per day. You can bet my hep

is going to get a call asking if it is really

necessary. Not just the study information, but that

drug is horrifically EXPENSIVE, and I have been on it

11 years and nothing has improved, and I never did see

a difference after starting it.

Cindy Baudoux-Northrup

Windows Live Hotmail now works up to 70% faster. Sign up today.

[Guest guest]

Marie, I also had my Urso cut drastically after I went to Mayo, I ended up sick and also very itchy. After I called Dr Harnois at Mayo she increased it again, just not quite as high a dose as before. I have started feeling somewhat better, she said she has had this happen to others.

Glad you are doing better. I also have a BCIR like Barby. She will probably tell you all about it .

Take care,

Bettyann