Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Maybe the connection is not so much having mono, but having had any severe virus in your system. I know for a fact that I've never had mono(I was tested before), but I did have toxic shock syndrome when I was 17(although my fibro symptoms for the most part started before that). Of course, having ridden and jumped horses since I was 6, I exposed my body to a lot of trauma, so maybe that's my underlying factor. But I too firmly believe there is a viral component to this illness. It's nice to think that a few generations from now, doctors will have a handle on this disease, possibly even have a cure. And people then won't have to suffer like we do. And I guess it's possible that a cure (or effective treatment) might actually come about in my lifetime. In spite of the fact that we feel research is going too slow, the medical field is advancing at an astonishing rate. And I'm sure the rest of you are as greatful for that as I am. Take care everyone, > I strongly believe the connection, I was never diagnosed with mono but my EBV titer is over 500. I would bet that most people on this list would have an elevated EBV titer and so would 90% of the general public. I believe a small sub group from those that test positive for EBV developes Fibro/CFS. Just my two cents. > > > Tim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Maybe the connection is not so much having mono, but having had any severe virus in your system. I know for a fact that I've never had mono(I was tested before), but I did have toxic shock syndrome when I was 17(although my fibro symptoms for the most part started before that). Of course, having ridden and jumped horses since I was 6, I exposed my body to a lot of trauma, so maybe that's my underlying factor. But I too firmly believe there is a viral component to this illness. It's nice to think that a few generations from now, doctors will have a handle on this disease, possibly even have a cure. And people then won't have to suffer like we do. And I guess it's possible that a cure (or effective treatment) might actually come about in my lifetime. In spite of the fact that we feel research is going too slow, the medical field is advancing at an astonishing rate. And I'm sure the rest of you are as greatful for that as I am. Take care everyone, > I strongly believe the connection, I was never diagnosed with mono but my EBV titer is over 500. I would bet that most people on this list would have an elevated EBV titer and so would 90% of the general public. I believe a small sub group from those that test positive for EBV developes Fibro/CFS. Just my two cents. > > > Tim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Maybe the connection is not so much having mono, but having had any severe virus in your system. I know for a fact that I've never had mono(I was tested before), but I did have toxic shock syndrome when I was 17(although my fibro symptoms for the most part started before that). Of course, having ridden and jumped horses since I was 6, I exposed my body to a lot of trauma, so maybe that's my underlying factor. But I too firmly believe there is a viral component to this illness. It's nice to think that a few generations from now, doctors will have a handle on this disease, possibly even have a cure. And people then won't have to suffer like we do. And I guess it's possible that a cure (or effective treatment) might actually come about in my lifetime. In spite of the fact that we feel research is going too slow, the medical field is advancing at an astonishing rate. And I'm sure the rest of you are as greatful for that as I am. Take care everyone, > I strongly believe the connection, I was never diagnosed with mono but my EBV titer is over 500. I would bet that most people on this list would have an elevated EBV titer and so would 90% of the general public. I believe a small sub group from those that test positive for EBV developes Fibro/CFS. Just my two cents. > > > Tim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2002 Report Share Posted May 19, 2002 I have never been diagnosed with Mono. However, since the thread is discussing viral infection as impacting the immune system, I can relate to that. I had many childhood contagious diseases and Scarlet Fever. Since then, I have had countless infections and allergies. I have Fibromyalgia, Osteoarthritis,Major Recurring Depression,A.D.D/H.D.,and Post Traumatic Stress Disorder.Several cooperating drs agreed about these. I remember hearing,as a child, that Scarlet Fever and Rheumatic Fever were similar in that they could affect other health problems later in life. I also was told, about 20 years ago, that Fibro and Lupus were sister diseases.The difference,they said, was that FMS can't kill you,it " just makes you feel that way " . A dr said that Fibro was a disgusting disease because it mimics other diseases and people are often misdiagnosed or not believed after repeated instances. I asked him what I should tell my Principal( who sent me to that ER ,thinking I was having a possible heart attack due to severe FMS chest pain that scared my students when they saw it).He said, " that's what's disgusting about it...people don't believe it. " I have found this to be as debilitating as the disease,itself.Even the Rheumatologist,who dxed my case, later changed his mind about the legitimacy of FMS as a physical illness. That was after he became rich and famed as one of the drs who originated the international definition of FMS. Thank God I found the drs who are treating me now. The first dr was a real jerk. Well, I digress,I see. I began this with the intention of commenting about the viral connection. I can certainly agree on that. Also, I have had numerous Strep infections. One went into my kidneys. I will never forget that one. Anyway, I imagine there are plenty of you who have similar stories. In my Support Groups I have met quite a few who had Scarlet Fever as children. Someday there will be a breakthrough that cannot be refuted and the world will have to allow us our dignity and credibility where FMS is concerned. Quote Link to comment Share on other sites More sharing options...
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