How about a get to know you poll!!!

[Guest guest]

1. Name??

2. Age??

3. State you live in??

4. Are you married and how long??

5. How old were you when you were diagnosed??

6. When you are in you flare what are you symptoms??

7. If you could give advice to someone with disease what would it

be??

8. If you could go anywhere with just you and your dh or so where

would it be??

9. Do you have any pets?? (what kind and there names)

10. What is your favorite color??

Hope you all don't mind this, I just thought this would be a fun way

to get to know you all better.

Have fun!!

Mandy

[Guest guest]

1.

2. 36

3. California

4. 10 years (on July 19th)

5. 21 years old

6. Can't get enough sleep/very tired

7. It's NOT all in your head

8. On a white sandy beach with clear water and cloud cover

9. 3 dogs (Rio, Asia, and Nagi)

10. Grey is my favorite color (I'm not good and I'm not bad...I'm in

the middle)

> 1. Name??

>

> 2. Age??

>

> 3. State you live in??

>

> 4. Are you married and how long??

>

> 5. How old were you when you were diagnosed??

>

> 6. When you are in you flare what are you symptoms??

>

> 7. If you could give advice to someone with disease what would it

> be??

>

> 8. If you could go anywhere with just you and your dh or so where

> would it be??

>

> 9. Do you have any pets?? (what kind and there names)

>

> 10. What is your favorite color??

>

> Hope you all don't mind this, I just thought this would be a fun way

> to get to know you all better.

>

> Have fun!!

> Mandy

[Guest guest]

1.

2. 36

3. California

4. 10 years (on July 19th)

5. 21 years old

6. Can't get enough sleep/very tired

7. It's NOT all in your head

8. On a white sandy beach with clear water and cloud cover

9. 3 dogs (Rio, Asia, and Nagi)

10. Grey is my favorite color (I'm not good and I'm not bad...I'm in

the middle)

> 1. Name??

>

> 2. Age??

>

> 3. State you live in??

>

> 4. Are you married and how long??

>

> 5. How old were you when you were diagnosed??

>

> 6. When you are in you flare what are you symptoms??

>

> 7. If you could give advice to someone with disease what would it

> be??

>

> 8. If you could go anywhere with just you and your dh or so where

> would it be??

>

> 9. Do you have any pets?? (what kind and there names)

>

> 10. What is your favorite color??

>

> Hope you all don't mind this, I just thought this would be a fun way

> to get to know you all better.

>

> Have fun!!

> Mandy

[Guest guest]

> 1. Name?? Joanne

>

> 2. Age?? 45

>

> 3. State you live in?? Massachusettes

>

> 4. Are you married and how long?? yes 25yrs

>

> 5. How old were you when you were diagnosed?? 30

>

> 6. When you are in you flare what are you symptoms?? Bad leg

pains, extreme fatigue, nausea, migraines.

>

> 7. If you could give advice to someone with disease what would it

> be?? Learn as much as you can,about yourself and support groups are

so important!!(We learn from each other!) Know your not alone.

>

> 8. If you could go anywhere with just you and your dh or so where

> would it be?? Cacun, Mexico

>

> 9. Do you have any pets?? (what kind and there names)2 hamsters

(peppe and peaches)

>

> 10. What is your favorite color?? teal green

>

> Hope you all don't mind this, I just thought this would be a fun

way

> to get to know you all better.

>

> Have fun!!

> Mandy

[Guest guest]

> 1. Name?? Joanne

>

> 2. Age?? 45

>

> 3. State you live in?? Massachusettes

>

> 4. Are you married and how long?? yes 25yrs

>

> 5. How old were you when you were diagnosed?? 30

>

> 6. When you are in you flare what are you symptoms?? Bad leg

pains, extreme fatigue, nausea, migraines.

>

> 7. If you could give advice to someone with disease what would it

> be?? Learn as much as you can,about yourself and support groups are

so important!!(We learn from each other!) Know your not alone.

>

> 8. If you could go anywhere with just you and your dh or so where

> would it be?? Cacun, Mexico

>

> 9. Do you have any pets?? (what kind and there names)2 hamsters

(peppe and peaches)

>

> 10. What is your favorite color?? teal green

>

> Hope you all don't mind this, I just thought this would be a fun

way

> to get to know you all better.

>

> Have fun!!

> Mandy

[Guest guest]

good idea!!

1. Meg

2. 29 yrs old but feeling way older these days

3. live in NY (long island)

4. Married - will be 5 years in November

5. diagnosed at 27

6. this one's easy as I am in a flare right now! mainly: severe

joint/muscle pain, headaches, dizzy, rashes all over, hair falls out,

totally confused and forgetful, nauseous, the worst exhaustion

etc....and now a new one: ITCHING!!!

7. join this group = best thing i have done since being diagnosed

8. this is a tough one, rather than go anywhere with just him, I

would really just love one day with my husband and daughter where I

am feeling good and there's not a million things hanging over my

head...wishful thinking!

9. Pets: one sick doggy (just had surgery today) named Rudy (yellow

lab) and a black cat named Buddy

10. Favorite color: Blue

[Guest guest]

good idea!!

1. Meg

2. 29 yrs old but feeling way older these days

3. live in NY (long island)

4. Married - will be 5 years in November

5. diagnosed at 27

6. this one's easy as I am in a flare right now! mainly: severe

joint/muscle pain, headaches, dizzy, rashes all over, hair falls out,

totally confused and forgetful, nauseous, the worst exhaustion

etc....and now a new one: ITCHING!!!

7. join this group = best thing i have done since being diagnosed

8. this is a tough one, rather than go anywhere with just him, I

would really just love one day with my husband and daughter where I

am feeling good and there's not a million things hanging over my

head...wishful thinking!

9. Pets: one sick doggy (just had surgery today) named Rudy (yellow

lab) and a black cat named Buddy

10. Favorite color: Blue

[Guest guest]

good idea!!

1. Meg

2. 29 yrs old but feeling way older these days

3. live in NY (long island)

4. Married - will be 5 years in November

5. diagnosed at 27

6. this one's easy as I am in a flare right now! mainly: severe

joint/muscle pain, headaches, dizzy, rashes all over, hair falls out,

totally confused and forgetful, nauseous, the worst exhaustion

etc....and now a new one: ITCHING!!!

7. join this group = best thing i have done since being diagnosed

8. this is a tough one, rather than go anywhere with just him, I

would really just love one day with my husband and daughter where I

am feeling good and there's not a million things hanging over my

head...wishful thinking!

9. Pets: one sick doggy (just had surgery today) named Rudy (yellow

lab) and a black cat named Buddy

10. Favorite color: Blue

[Guest guest]

1. Name?? Burnette2. Age?? 453. State you live in?? TN; southeast TN4. Are you married and how long?? yes, 26 yrs. July 3rd. w/4 children & 3 grandsons (another due in Oct.)5. How old were you when you were diagnosed?? officially...42 Had symptoms for much longer6. When you are in your flare what are your symptoms?? Extreme fatigue (can't seem to wake up), aches & pains everywhere, dizzyness, confusion, nausea, bad headache, I feel like I'm sunburned under the skin (I know, weird!), fever & chills, brain fog. 7. If you could give advice to someone with disease what would it be?? learn all you can, rest when you need to & enjoy every moment you can8. If you could go anywhere with just you and your dh or so where would it be?? As long as we are together it really doesn't matter!

9. Do you have any pets?? (what kind and there names)

Many! 4 dogs, Ty (Llasa), Rosie (St. Bernard), Chief (Lab mix) & Ginger (Beagle/Terrier mix); Birds, Cherry (Chattering Lory), Cream (Umbrella Cockatoo), Frazier (Black Headed Caique), Sammy (cockatiel) & many more; hamster (Hambone)10. What is your favorite color?? Cobalt or Royal Blue; Yellow a close 2nd.Hope you all don't mind this, I just thought this would be a fun way to get to know you all better.Have fun!!Mandy

[Guest guest]

1. Name?? Burnette2. Age?? 453. State you live in?? TN; southeast TN4. Are you married and how long?? yes, 26 yrs. July 3rd. w/4 children & 3 grandsons (another due in Oct.)5. How old were you when you were diagnosed?? officially...42 Had symptoms for much longer6. When you are in your flare what are your symptoms?? Extreme fatigue (can't seem to wake up), aches & pains everywhere, dizzyness, confusion, nausea, bad headache, I feel like I'm sunburned under the skin (I know, weird!), fever & chills, brain fog. 7. If you could give advice to someone with disease what would it be?? learn all you can, rest when you need to & enjoy every moment you can8. If you could go anywhere with just you and your dh or so where would it be?? As long as we are together it really doesn't matter!

9. Do you have any pets?? (what kind and there names)

Many! 4 dogs, Ty (Llasa), Rosie (St. Bernard), Chief (Lab mix) & Ginger (Beagle/Terrier mix); Birds, Cherry (Chattering Lory), Cream (Umbrella Cockatoo), Frazier (Black Headed Caique), Sammy (cockatiel) & many more; hamster (Hambone)10. What is your favorite color?? Cobalt or Royal Blue; Yellow a close 2nd.Hope you all don't mind this, I just thought this would be a fun way to get to know you all better.Have fun!!Mandy

[Guest guest]

Fwd: How about a get to know you poll!!!

>

> 1. Name: Barbara s

>

> 2. Age: 42

>

> 3. State you live in: Illinois

>

> 4. Are you married and how long: Yes & 11 years

>

> 5. How old were you when you were diagnosed: 38 and with many

disorders!!!! But, I had to be hurt in a car accident before it really

showed it's EVIL FACE....

>

> 6. When you are in you flare what are you symptoms: Well, for me I start

to get very tired and very " stupid " brain fog, alot of sharp, shooting joint

pain in my fingers, wrists, knees, and hips, and I get extreme abdominal

pain with nausea, loss of appetite, and reddening of molar area on face and

I have an eye problem. My left eye on the lower lid has lost all the lashes

and when in a flare it turns bright red, and starts to itch real bad....

>

> 7. If you could give advice to someone with disease what would it

> be: I say " Live life to the fullest and don't feel bad when you are

unable to. Always remember that this is not your fault.... "

>

> 8. If you could go anywhere with just you and your dh or so where

> would it be: ( Desired Honey! ): Utopia!!!! I am just being a smart A**, I

would love to go too the past....the 1920's or 30's and re-live that era,

I've heard so many stories from my parents and always " day dreamed " myself

there. But, getting back to reality, I guess I would be happy seeing Alaska

and all the " bare essence " it has to offer.

>

> 9. Do you have any pets?? (what kind and there names)Yes, I have a dog

and she is a female and her name is Sable, she is labador and shepherd mix

and 5 years old, and the Queen of the castle!!!! ( can't help it, she always

listens ).

>

> 10. What is your favorite color: Orange!!!!( I like bright colors)

>

> Hope you all don't mind this, I just thought this would be a fun way

> to get to know you all better.

>

> Have fun!!

> Mandy

> --- End forwarded message ---

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